thumb swelling up/fingers swelling up and getting stuck in one position

2008-10-31 22:38:45

About ten years ago, I had the exact same problem with my dominant right
thumb. The doctor injected steroids, half casted it with plaster and wrapped
the back with stretchy bandages. I also was taking what was then new- Advil
for inflammation and it really helped.
As for the deformed finger goes, I would try to wait as long as I could
before I let them cut me. Once the flare goes away you will be left with just
a
crooked finger that may or maynot be able to be rehabilitated .
Michelle S
group founder

Re: Be careful with Vitamin C

2008-10-31 21:30:05

Notes On Orthomolecular (Megavitamin) Use of Vitamin C
http://www.doctoryourself.com/ortho_c.html
By Andrew W. Saul
Vitamin C (ascorbate, ascorbic acid) has varying activity in the body
at varying levels of intake. At low levels of consumption, vitamin C
is like a trace nutrient: you need very little of it to stay alive,
but without any at all you die. Even a few milligrams a day will
suffice to preserve life. At moderate levels of consumption, say 500
to 1,500 mg per day for an adult, the vitamin works to build health in
a positive sense. statistically, fewer colds will be reported;
incidence, severity and duration of influenza will be less. (Stone,
The Healing Factor, 1972 and Pauling, Vitamin C, the Common Cold and
the Flu, 1976). But it is at high levels, say 8,000 to 40,000 mg per
day for an adult, that we begin to obtain therapeutic properties for
the vitamin.
At the proper (high) level, vitamin C has antihistamine, antitoxin,
antibiotic, and antiviral properties. The pharmacological effects of a
vitamin at high concentration do not disqualify our continuing to call
it, and think of it, as a vitamin. Money still buys things even if you
have a lot of it; its nature has not changed but its power has. If it
takes 50 gallons of gas to drive from New York City to Albuquerque,
you simply are not going to make it on 10 gallons, no matter how you
try. Likewise, if your body wants 35,000 mg of vitamin C to fight an
infection, 7,000 mg won't do. The key is to take enough C, take it
often enough, and take it long enough.
QUANTITY, FREQUENCY and DURATION are the keys to effective
orthomolecular use of vitamin C. So many people hold a philosophical
viewpoint such as "I shouldn't have to take so much of a vitamin."
That's certainly true; you do not have to. This is America, where
everyone has the right to be sick if they want to. But if you want
swift recovery, and if you want to use vitamin C, you might just as
well use it effectively. What we are interested in is results. High
doses of vitamin C gets those results as well or better than any
broad-spectrum drug on the market. Rather than take what we think the
body should require, we take the amount of C that the body says it wants.
The safety of vitamin C is extraordinary. There is not one case of
vitamin C toxicity anywhere in the world's medical literature. There
is not one case of vitamin C-caused kidney stone ever proven, to the
best of my knowledge. Vitamin C has been used to prevent and cure the
formation of kidney stones since William J. McCormick, M.D. used it in
1946 (Medical Record 159:7, p 410-413). 10,000 mg of ascorbic acid per
day does not significantly increase urinary excretion of calcium
(Linus Pauling Institute Newsletter "Effect of High Intake of Ascorbic
Acid on Excretion of Calcium" by Dr. C. Tsao, 2:3, 1983). Daily doses
of over 120,000 mg have been used with safety by medical doctors, and
guinea pigs have been given the human daily dose equivalent of 500,000
mg without harm. The major side effect of vitamin C overload is an
unmistakable 5-times-an-hour diarrhea. This indicates absolute
saturation, and the daily dose is then dropped to the highest amount
that will not bring about diarrhea. That is a THERAPEUTIC level.
Robert Cathcart, M.D. of California routinely employs high-ascorbic
acid therapy with his patients with success (Journal of Orthomolecular
Psychiatry, 2nd Quarter, 1981). Frederick R. Klenner, M.D. of North
Carolina has seen cures of diphtheria, staph and strep infections,
herpes, mumps, spinal meningitis, mononucleosis, shock, viral
hepatitis, arthritis and polio using high doses of vitamin C (Journal
of Preventive Medicine, Spring, 1974). Dr. Klenner says: "Ascorbic
acid is the safest and the most valuable substance available to the
physician" and "If you want results, use adequate ascorbic acid."

Re: [PsoriaticArthritis] Be careful with Vitamin C

2008-10-31 14:47:33

I totally agree. I was willing to "trial and error" every supplement anyone
suggested. The supplements I am on now are after confirming by blood test
that my body was deficient on these. I just got another blood test after
six months to confirm I had enough and not too much. My doctor said I would
know I had too much Vitamin C when I was increasing my dose if I got
diarrhea.
Ks Di

Enbrel and possibly back to remicade

2008-10-31 07:41:26

Hello all,
I must share my moment with my boss at work yesterday. It was end of month
reporting time and I took the final reports down to the financial offices. I
stopped into my boss' office and gave him his reports. I also spoke to him
about my changing work schedule that would be coming up in a few weeks. I would
need to be takiing half days off work to go to the clinic for the infusions
which take about 4 hours. I would have to make up my time either with extended
work hour days, no lunches or weekend hours. He knew there had been problems
with the new Rx policy at our offices with our new insurance carrier. I now pay
an extra $100 a month to not have a cap on my Rx for the year. He is not one
to want to know when you have a dr appointment or dentist appointment, only need
to request days off for vacation time. I reminded him that since I only had two
more weeks of injectible drugs that I had no choice but to go back to the
remicade infusions (that I had stopped as they were no longer working for me)
but it was my only option. He quickly said, you need to go talk to MIssy (the
VP of HR) and I told him that I had already done that she she told me "oh well,
work it out". :-( He then asked me if this drug was covered with our previous
insurance carrier. I said yes, that I paid the copay for a 3 month supply at a
time. He said well "this is ridiculous". I was then told to send him the name
of the drug as he was going to see Lucille (PRESIDENT) about this and that he
could not promise anything but he was going to talk to her. I felt 10 feet tall
that he was at least willing to TRY to help me. He gave me value which in the
corporate world and mind set - that is saying something. Good for me, the elder
of the department to hear. :-) Sometimes I think this corporate mind set is to
get rid of the older staff and bring in the new younger people. Fortunately
some still like having us as we tend to be more dependable.
I pray to stay on the Enbrel. It is not the total answer for me but I don't
have the highs and total lows between infusions.
Nanc

holistic health care facility.

2008-10-31 07:10:34

Ks Di,
what was the name again of that facility? I'd like to check it out...
Rachel

Fibro Query

2008-10-31 02:26:26

Those of you who have fibromyalgia as well as the maladies that
qualify you for this list ---
1) Do you have muscle jerks? Example: While I'm at the keyboard with
a hand on the mouse, the first finger will jerk causing a click.
Other times, the jerk is further up and makes the hand fly across the
desk.
2) While asleep, something in the tummy area jerks enough to sit me
up wondering "Why?"
These jerks don't hurt but are most puzzling. Makes me wonder if it
can lead to something worse and more troublesome.
What's happenig to my body?
Although the jerks don't hurt, there's enough pain to keep me busy
searching for whatever will take the edge off. Then I spend the day
dozing off as soon as I slow down.
Thanks to any and all who can answer my query.
pattyb in the Pineywoods of East Texas

RE: [rheumatic] Dr in MD

2008-10-30 10:56:36

Maybe I could give you Tamika's email and you could tell her about going
there.
Cooky
_____

Re: [PsoriaticArthritis] Thirsty all the time-dry mouth?

2008-10-30 10:35:57

Hi Michelle,
Thanks so much for your respond-I really appreciate it. I will check out the
link. I want you and Jane to know how much it means to me for answering my
question.
God bless, Sue.

Re: [rheumatic] AP Doctor in Atlanta

2008-10-30 08:54:54

Hi,
Are u an Indian?Do you know of any AP doctor in India?I have RA since last 6
yrs and on AP for the last 3 months,but no reactions as yet.I have started on my
own with a little help from my family physician in India.Hope u get a doctor
soon and start on this road to recovery.
bye,
Ashis Kar <ashis_kar@...
Hello,
I have been suffering from RA for the past 2years, and
my left knee is always swollen. I'm looking to start
AP therapy.
Does anybody know any AP doctor in Atlatna?
Any help on this will be greatly appreciated.
Regards,
Ashis

Re: [PsoriaticArthritis] A few questions on course of treatment for PA

2008-10-30 01:13:39

Dove,
I was afraid with the news about Bextra too...my rheumy said to keep taking
it, but prescribed extra folic acid to counteract the elevated homocystine
(sp?) levels that have caused the heart problems in some of the recent studies.
She also said the dosages in the studies were much higher than what I am
currently taking. I don't know where to find the research to back up her
recommendation, but she researches everything very thoroughly...
Rachel

Re: Itching and PA/psoriasis

2008-10-29 21:04:32

--- That is really interesting, thanks for the info. Susie

humo(u)r.... lol!

2008-10-29 15:21:27

hi orin,
i believe americans are the only ones who DON'T have the "u".... in
Canada we spell humour, neighbour, labour, etc. with the "u" and as
well, australia, south africa etc. do the same... center, theater
is different as well - we write centre, theatre etc. and then there
is the z (zee, zed) issue.... even the letter is pronounced
differently! realise/realize etc... all confusing, but in the end,
they all mean the same :)
love, karen
spelled certain words. I like the humour spelling better ;) Orin

Re: question on Back pain-OT

2008-10-29 08:41:11

sandy,
that is hilarious - and now that you have let the cat out of the bag
and come up with such a wonderful suggestion, i bet there are a lot
of us that are going to try the 'grapefruit trick' lolol!
thanks for that :)
love, karen
razz me about my complaints until for Halloween one year I had us
dressed in reverse rolls. As I'm heavily endowed I made him wear
grapefruits in one of my bras. Towards the end of the evening he
whispered to me that he'd never razz me again about all my pain.
According to him it really is worse than wearing a traditional neck
tie.

Re: [rheumatic] Re:Henry Scammel's book

2008-10-28 22:20:07

Thanks anyway Ros.

Re: [rheumatic] Ken

2008-10-28 14:54:50

Hi Ken
When I first went to the Rheumy, she had me on 65mg Steroids, plus weekly
injections of methotrexate, both of which helped at the beginning,but the side
effects where sending me to an early grave.
So trust me, do not take any, of those drugs, as they are poison.
I gave them drugs up, when the Minocin kick in.
Minocin is the only thing that works for me.
And I am living proof this treatment works.
Thank god for this support group, which has given me back my life.
My GP, has put several of her other patience's, on this drug, who are also
having excellent results.
So the word, is slowly getting out, and the drug companies will be going broke.
Regards Gwen

Re: Thirsty all the time

2008-10-28 13:24:48

Do you have Sjogren's syndrome? It often occurs with autoimmune
diseases. I always hear about it in regards to dry eyes, but a dry
mouth is another common symptom.
Myself, I've been noticing I was very thirsty for a while now, and
then I realized I was drinking so much water that my stomach was
getting all bloated, and thought, "maybe this is not real thirst."
Sure enough, when I pay attention I notice that I'm usually not all
that thirsty, my mouth is just dry.
--Raina

A few questions on course of treatment for PA

2008-10-27 23:25:20

Hi All,
Ok here's my issue, I'm 28 with P, PA with sacroillitis, along with
having mild thoracolumbar scoliosis, fibroymalgia and tendonitis in
my shoulders (gee I sound like I'm falling apart when I list it that
way! I guess I am, lol).
I am currently on methotrexae, follic acid, Ibuprofen and Percocet
for pain. My ankles right specifically swells, I've had 1 cortizone
shot, rheumy is now referring me for ankle arthrosis. Metho isn't
working yet rhuemy will not put me on other meds yet and insists
Ibuprofen be taken in lowest possible dose.
I was on Bextra but due to recent news was taken off of it. Anyhow,
my back pain is chronic so much so I cant sleep in bed anymore (I've
posted on my back issues b4) anyhow, I'm being referred to a
Physiatrist and the waiting list is 8 months long that's without the
doc even seeing my referral yet. I'm on long term disability, as my
health will no longer allow me to work. Does it seem like my rheumy
is being non-aggressive in treating my PA? I've asked for Enbrel but
she says I have to fail metho first, I've been on it since July 04
and I just saw her recently and she agree's it's not helping but yet
has kept me on it with no other meds to try.
Should I be asking for more or should I be switching rheumies?? I'm
so confused and dont know what to do. I hope I've made my long story
as short as possible. Should I put up and shut up or should I insist
on more, then again what's more?
Any and all replies welcome. Thanks for listening!
Sincerely,
Dove

Re: [PsoriaticArthritis] To Dove, Kirsten, Kylie and Herman

2008-10-27 17:59:48

Hi Martin,
It's great to hear from you and thank-you, being new to this board, as I was a
regular Prohealth user, it was difficult making the choice of where to find
support and this board is proving to be as enjoyable as Prohealth's was! I look
forward to contributing with giving advice, support, a friendly understanding
ear and heck, I like playing devils advocate every now and again! Thank you to
all of those people that have welcomed me and responded to my posts.
I espcially like finding a community of people that are going through similar
issues as PA can be a complex disease and I'm learning to feel not so alone.
Hugs,
Dove
martincoyless@... wrote:
Hi Dove, Kirsten, Kylie and Herman and anyone else I may have missed,
Welcome to the group. Sorry it has take me so long to say hello but I seem
to always be days behind everyone else here recently. I'm sure you will have
found what a great group of people you have joined. Its great for advice,
sympathy, humo(u)r and you will even get the odd heated discussion as you have
probably seen recently. lol
Hope you can get any help you require from us.
Take care,
Martin
Ed Note; I was once asked if I were British because of the way I spelled certain
words. I like the humour spelling better ;) Orin

BONE SCAN,

2008-10-27 17:52:33

Especialy to Sheeba452003
The difference between a BONE scan and xray or MRI are the way the
tests get the pictures. MRI and Xray (CT is xray in 3d) look at
anatomy, (the structure), while nuclear medicine sees medicine that
is guided by physiology, (the way the chemicals are pushed around by
living tissue).
Look at the medicines injected. The MRI and contrast radiology use a
dye , something thick enough to show up better on the resulting
pictures, (for MRI gadolinium has a similar function). The dye goes
where you put it, into the blood, and through the excretion systems
or injected into a body cavity to get better contrast on the film or
screen. There is usually enough dye or contrast to potentially
change the way you feel, and some people's systems react to the dye,
sometimes even an allergic reaction. Nuclear medicine uses very
small amounts of chemicals that are radioactive (the part the
machine sees). The radiation from the nuclear medicine is slightly
more or the same as an xray, and alot less radiation to the patient
than a CAT scan. MRI does not use Xrays, and the risks from the
magnetic field are usually insignificant. Chemically the nuclear
medicine is a trace chemical (very small amount), so you do not sign
a consent form for risk for nuclear medicine like you do for CAT and
MRI. You should minimize xray/nuclear exposure when pregnant.
The bone scan is more expensive and takes longer. It is used because
is more sensitive since it shows what is biologically active. You
need xrays from different times to see changes between films to plot
out what damage is old and what is new. The sensitivity is because
the nuclear medicine is actively transported by the living cells in
the tissue of the bone, something that doesn't happen with contrast
agents. Also, nuclear bone scans routinely look at the entire body,
with less radiation than CT or xray ( for the whole body). Of
course, if you just need a picture of say a finger, xray exposure
would be less for xray, since nuclear medicine goes everywhere in
your body when injected.
Bone scans are mostly used to find the extent (if any) of cancer or
fractures but also show increased or decreased ares of activity
caused by inflammation (like PA), or Pagets disease or bone infarct,
or reaction to fracture or a dozen other things. With cancer, bone
scan's increased sensitivity means it can detect disease 6-12 months
before xray.
CT, xray and MRI all show more detail than nuclear medicine for
evaluating joint damage that has already occurred. They are also
better for seeing soft tissue damage. Since PA medications are
systemic, WHERE the disease is active isn't overly important, just
the EXTENT of disease. For EXAMPLE, back pain is very common, and
say you have PA in your fingers. Is the back pain PA?? Treatment for
widespread active PA might deemphasize physical therapy in favor of
more aggressive anti-inflammatory agents and more expensive PA meds.
But if the back has mild OA and degenerative changes, THEN treatment
would be different and you might benefit from exercise. That's where
a bone scan might be used, as well as to rule out other diseases.
Details of BONE SCAN , what to expect, see my 3 previous recent
posts.

Re: [PsoriaticArthritis] Thanks for advice on Back Pain

2008-10-27 10:55:52

Last time I was at the Rheumy's for my infusion, there
was a nice poster of the muscular-skeletal system of
the back. If the poster is accurate, then there is a
conjuction of the four major muscle groups (two upper,
two lower) and related tendons located --- right under
the bra strap. Go fig. No wonder we have back pain
there!
-- Allison
=====

Itching and PA/psoriasis

2008-10-27 09:25:32

Itching comes with inflamation, sometimes as a precursor to pain.
For example, sometimes local joint swelling can actually seep to the
surface and form blister-like structures that can first itch and
then be REALLY sore, like a deep burn. There's a fancy med term for
this that I have thankfully forgotten. Surgery is sometimes used to
get rid of these little devils.
I think the difference between pain and itching is only a matter of
degree. When the usual surface psoriasis sores get bad enough they
can be pretty sore too.
Pete from Baltimore

Re: [rheumatic] Dr. F in California

2008-10-27 00:09:05

Cindy, I saw Dr Franco one time, in 2001. I refused all xrays because at the
time, I had no labs that indicated RA or indications of RA...and did not want
the additional radiation, I did allow him to do all labs which my insurance
covered. I liked him, found him very nice...but he told me nothing new about my
SD...and I was already on minocin for my SD....which after 2 yrs, my ordering
rheumy in NJ had me discontinue. I live in Cincinnati and drive once a year to
see my rheumy in NJ.
Hope this helps, Debbie

Re:Henry Scammel's book

2008-10-26 10:09:02

Hi Leonie
I got the book from Amazon in the US and it was delivered within
about 10 days to Australia. I'm in Byron so can't just pop over and
lend it to you :-)
Ros

Re:Angela from North Coast

2008-10-26 08:15:12

Hi Angela
I'm Ros from the rheumatoid group. I saw your email and thought I'd
tell you that live in Byron Bay too. I haven't found any drs who are
experienced in antibiotic therapy but my dr does what I ask him and
he's quite interested in following my progress but too busy to
investigate it himself. I've been on minocycline for about 15
months. I also take plaquenil. After 3 months of taking both these
my RA improved dramatically. I plan to stop the plaquenil eventually
but I do notice that when I stop the minocycline I get worse again.
My rheumatoid reading was 37 two years ago and it's now 9.
I've put all the info I can find onto a cd disc which I took to my dr
along with some printed-out articles. My rheumatologist is David Grey
from Ballina but I haven't seen him for more than a year. He wasn't
happy that I wanted to do antibiotics but he did print out some
research studies which he said seemed to show that it works for some
people. There is apparently a GP in Ballina who uses this therapy but
he charges hundreds of dollars for the first few appointments so I
couldn't afford to see him.
If you want to chat, my phone number is 6685 8849.
Best wishes
Ros

Be careful with Vitamin C

2008-10-26 04:34:05

Hi Everyone,
I just wanted to put my "two cents" in about Vitamins including
Vitamin C. High levels of Vitamin C can cause: Diarrhea, abdominal
cramps, high stomach acids, increased urination (boy I don't need
that drinking all this water every day!!), insomina, irritabily,
joint pains (I don't need this either!), osteoporosis, headaches,
hypoglycemia, weakness, anemia, PMS, may increase infections by
causing copper deficiency, reduced estrogen, reduced progesterone,
reduced prolactin.
Four years ago I was going to the "Health Store" about every day.
The owner told me that the P on my scalp was caused by kidney problems
(this was before I was diagnosed with PA); I thought that was odd
because my Mother, Cousin, Grandmother all had P on their scalp. It
gave my Dr. a good laugh. I also was taking extra Iron-he (my Dr.)
told me to knock it off because it was affecting my liver. I brought
all my different vitamins I was on to his office and he said that as
long as I was eating a balanced meal that I didn't need all those.
He said I was making alot of people rich.
I do think there are people that need some Vitamins-but you need to
check out everything you are taking with your GP first.
God Bless, Sue.

Re: [PsoriaticArthritis] Any Ideas?

2008-10-25 17:27:22

Hi and welcome!!
This is a great group-very compassionate and caring!! I first wanted to say
that I feel so bad for you-anyone that hasn't experience hip pain have no
idea-since it is located to the biggest bone in our body it can be the most
painful. I had a total hip replacement this past Dec. after almost three years
of pain. I was on pain pills of every kind until the replacement. After me
last surgery I couldn't believe how much pain went away. Extra Strength Vicodin
was what I mostly was on. I did have three bone scans-it shows layers of your
bones and muscles so Drs. can get a better idea where the damage is. I guess it
shows great detail. You can email me if you want if you have any questions
about your hips. Before my surgery I was walking with a walker; now I use a
cane-I'm 43 years old!! It is real painful laying on the table getting the bone
scan if you have hip and back problems...I didn't want to discourage you, but
wanted to be honest. I won't post real often here I belong
to another group now.
God Bless, Sue.
sheeba452003 <sheeba452003@...
Hi,
I'm new to posting here but not to reading, I've been doing that
for over a year now.
Currently I am on Enbrel, relafen and darvocet for PA. I tried a
few other DMARDS first to no avail, have been on this combo
since June. I also go to PT 2x a week for gentle stretching, deep
massage and phonophereis ( deep heat ultrasound w/cortisone )this is
being done on my hips and spine since December. This is my second
round of PT, the first was last year from June-August and yet the
problem still exists. I have erosion of my hip joints, but not to
the extent of hip replacement. I have seen two orthopedics, one for
my hips and one who specializes in the lower lumbar area. Although I
have hip erosion my rheumy and both ortho's feel that my continued
pain is stemming from bursar inflammation and sacroiliac issues. I
have also had cortisone injections into my hips on two different
occasions, the first was wonderful but it only lasted an six days,
the second round even less.
I have had x-rays & MRI's and nothing significant shows other than
the erosion that we've known about for a while now, and S4, S5, L1
disc buldge which is pretty common for anyone over 30 ( So the ortho
told me ) Our next plan is to have a bone scan, has anyone had one?
And what differences if any would that show as compared to an x-ray
or MRI...? Nothing really seems to kill the pain entirely, although
I will have to say the combo that I'm on is helpful ( I found this
out by going off Enbrel for 3 weeks due to a cold and could barely
walk by the third week due to a full flare up ) My hips/spine wake
me up every night, yet all my other joints seem ok, with a lil flare
up here and there in different areas, why would my drug combo work
o.k. on some joints and not my hips/spinal area? Do you all still
experience ongoing pain depsite treatment? Maybe this is normal?
Would minor hip erosion alone cause constant pain?
Has anyone had cortisone injections into the sacroiliac area and
found it to relieve pain in your hips too?
Sorry for all the questions, not sure what to do....
Thanks.

Re: [rheumatic] Gwen

2008-10-25 15:01:22

Hi everyone and Happy New Year. Your stories all sound like mine. I was at
Death's door for most of the yr. 2005. In October of 2005, I was told that I
had, not long to live. I looked the part of a dying person. Started Minocin 2
months later and exactly 18 months later in May of 2007, I went into remission.
To look at me now, you would never guess that I literally came back from the
grasp of the grim reaper. Your doc on one side of Australia is saying he can't
treat you is just stringing you along. All he/she has to do is write the script
for Minocin and fax it to the pharmacy, then mail the original. I see my Rheumy
in Boston once a yr. My Primary Care Physician nearby does all the necessary
blood work and the Rheumy gets the results. Find yourself another Rheumy and if
you can't, then print out lots of material on A/P and bring it with you to your
next appt. with your family doc. You've got to convince them. They don't turn
easily. But if you show them that
that's the only way you will do business with them, then rather than lose you
altogether as a patient, they will write the script. Don't accept less than
100mg, twice a day every day for at least two years, then re-evaluate the
situation. Make sure it is the brand name by Triax and it is the pelleted kind
and not the powder. Some people do well on the powder, some don't. I never
used the generic, so I don't know. Take it on an empty stomach. Do not eat
solids two hours prior or two hours after taking the Minocin dose.. Foods will
hamper the ability for Minocin to work to it's full potential. Minocin will
irritate your esophagus especially if you lay down to sleep right after taking
it. So, drink it with lots of water and sit upright at least 30 minutes or
longer. Best to take it and watch a good hour long TV show to take your mind
off it. You may have to resort to taking some Acidophillus or Lactobacillus
tablets to replace the good bacteria in your stomach. Do
this at least and hour or half hour before taking the minocin dosage. If you
still continue with the Reflux problems, then have your doc prescribe something
stronger for your stomach. You may also develop problems with yeast infections.
Remember antibiotics kills good bacteria also. You may need to take an
antifungal sometimes. I never did, but others, do. Try to live thru the
adjustment period, which may be bumpy at first, but will reap great rewards
later. Brace yourself and go for the ride. Write often, we will support you
and help you. Try the libraries for your copy of Henry Scammells books. I
don't know many patients who would give up their copy of the book. The main
thing is to get started on the Minocin as soon as possible and read the books
when it shows up. God Bless~~~~~~~Dolores
leonie cent <leoniecent@...
Hi Gwen,
Did you need the IV antibiotics initially, or just the tablets 3 times a week ?
I am confused about whether I will need IV therapy in the beginning or not.
Thanks...
Leonie

Re: [PsoriaticArthritis] Thirsty all the time

2008-10-25 12:53:01

Hi Sue,
I recently posted about thirst in relation to sjogrens
syndrome. I started carrying water with me when I
actually lived in the Mojave Desert, but at the time
chalked it up to the dry heat there. Now, it may be a
cold winter here in northern Michigan, but I don't go
anywhere without my jug of ice water. Perhaps you
should do some research on sjogrens, it's causing me
some painful problems with my parotid glands right
now, as well as cracks in my nostrils and sores on my
lips and mouth. Something to consider... :)
warm blessings, jane

Re: [PsoriaticArthritis] ATTN Women using Methotrexate I have a question

2008-10-25 04:15:58

HI, I just stopped MTX after 8 months....I suppose I had been on it about a
month when I stopped having a period altogether. I have been off for about a
month and still have not had one. I saw my gyne and had a bunch of tests,
nothing else wrong...she said it was from MTX,
hope this helps
julienne
dovedthe1 <dovedthe1@...
Hello all,
I am wondering for those women on methotrexate have you experienced
any interruptions of your menstrual cycle? I take 20mg/week and have
not had a menstrual cycle in almost 4 months. I'm not usually regular
to begin with but I've never gone this long without one. When I saw
my OBGYN she indicated having a period wasn't necessary or alarming
as I was on methotrexate, stupid me I didn't question any further.
I'm wondering if this happens to other women using this drug. Thank-
you in advance for your replies.
Sincerely,
Dove

Re: ATTN Women using Methotrexate I have a question

2008-10-24 21:30:16

Hi Dove,
I was on 6 pills of MTX for about 6 months. I have stopped now
because I am going to start Enbrel only. My periods didn't stop all
together, but kept being delayed by a week or two each month till I
felt as if I was skipping a month. I didn't question it either, but
I assumed the MTX was the cause. You have confirmed my beliefs.
Thanks!
Tamara

Nail Psoriasis/PA and getting Artificial

2008-10-24 13:38:56

I would not take the chance on getting artificial due to the liklihood of a
nail bed infection which is extremely painful. The immune suppressants
we take can make us very susceptible to bacterial infections throughout our
bodies and this can be miserable-take it from me.
For the last 16 months I habe been battling sinus infection mostly on rather
than off. And to top it off, a couple of times the bacteria was
methicillin resistant and I had to use a very expensive antibiotic that is
just new (thank the Lord it is available now) to get it down for a couple of
weeks. Unfortunately, the sinuses being mucous membranes make good hiding
places for just a few bacteria. So when the coast is clear and I am through
with the 21 days of antibiotics, after two or three weeks
I start to get symptomatic again. Severe headache and face pain, cough
bringing up discolored discharge from the postnasal drip, etc...
I didn't mean to get so windy. My message is clear- do everything you can
to avoid the possibility of infection while you are taking immunosuppressive
drugs. It is not the same as when you are not!!
Michelle S
Group Founder

Re: [rheumatic] Angela from North Coast

2008-10-24 13:10:46

Hello to you Angela,
I was at death door 3 years ago, could not get out of bed, pain throughout my
body, and thanks to this wonderful group, which I will be eternally grateful to,
I am now in remission after taking A/P theory now.
My Polymeria is almost gone, my Raynaud's is history,
my R/A is under control My skin is soft & smooth. I have no signs & symptoms,
lost 32lbs in weight.
Live is worth living now thanks to A/P theory.
My Rheumy would not give me A/P theory, as she believed that it does not work,
so I printed off all the stories from the group and took them to my GP,
who after listening to me, and telling me herself, that Rheum's do not know
everything.
So I gave the Rheumy the sack, and threw, her toxic drug in the loo.
My GP gave me the minomycin.
So I am living proof this treatment works.
It takes a couple months to get into your system, so be patience as it does work
Feel free to email me, if you need anymore advice.
Regards
Gwen
From Perth

Re: [PsoriaticArthritis] Not such a personal question

2008-10-24 07:34:35

hi, I have had this issue since May in my right ring finger. It is "kinked" if
you will and I cannot straighten it. The joint is swollen up like a grape and
nothing helps, even steroid injections do nothing. I have been referred to a
hand surgeon for "correction".
Julienne
aimrich28 <aimrich@...
I have what I assume is thumb tendonitis on my left hand and it's
really been acting up lately. I've noticed lately that the knuckle
of the thumb on the side away from the palm, where the thumb
attaches to the hand, is swollen with prominent veins. The worst
part is that the skin has been burning and itching for a while now.
It gets worse when I use the thumb, such as when I'm typing or
holding something. Luckily, it's my left hand and I'm right handed.
I've dealt with pain in the base of my thumb for years now, but this
swelling higher up and the darn itching are new. Does this sound
like tendonitis or arthritis affecting the thumb knuckle? Is it
something I should have my doctor check or is it just par for the
course? Thanks for any help.

Results for those with systemic lupus?

2008-10-23 18:38:54

Hi again -
I would love to hear ABT results for anyone out there with SLE in particular.
I'm not sure if this is the forum for that sort of thing, since I just
recently joined the group. If not, I would love to know where I might read
about
ABT treatment for SLE in particular.
Txs for any help you can give me! I am so thankful for this group already -
Jan
Email: JaniceEsher@...

Thirsty all the time-dry mouth?

2008-10-23 18:16:36

An extremely common disease called Sjogrens Syndrome is present in many who
have arthritis or other autoimmune diseases like lupus.
It's major symptoms are dry eyes, mouth, vagina (if you have one!),
body aches and pain and a slew of other sometimes complex symptoms.
I will attempt to hyperlink the Sjogrens Syndrome Foundation below.
After reading up on it, if you feel you have it, I HIGHLY RECOMMEND
their newsletter aptly called "Moistureseekers".
Michelle S
Group Founder

Re: [rheumatic] Chris

2008-10-23 09:54:57

Hi Leonie,
We've never had a doctor's name given to us for Canberra. That doesn't
mean there aren't any doctors doing the therapy in Canberra, just that
we don't know about them. It might be worth taking the Physicians'
Protocol and the FAQ from rheumatic.org to one of your local doctors
and asking for the therapy.
Chris.

Re: [PsoriaticArthritis] Still wondering PA worse during PMS?

2008-10-23 07:56:55

Sorry, I didn't respond initially as I really can't
tell you how it affects me. I had a hysterectomy on
9/17/01, approximately a year before I was diagnosed.
And although I'd had PA symptoms for years prior, I
really don't recall.
warm blessings, jane

RE: [rheumatic] Re Dr s in DC

2008-10-22 17:28:00

Gabe Mirkin, MD
301 942 7900
10901 Conneticut Ave, #100,
Kensington, MD 20895
_____

Still wondering PA worse during PMS?

2008-10-22 13:09:29

Just thought I'd share something funny. You know, us women sure can
digress. I know firsthand myself and now this group has confirmed
it for me. A little while back, I posted a question about PMS
affecting PA. I was excited to see that when I logged into get my
messages, there were several messages in the thread. Come to find
out though, only the first person responded to my question. The next
person in the thread got started up on a whole new topic that had
nothing to do with my question or the response the person was
responding to. The rest of the messages in the thread then centered
around something totally different than what I asked. It's no
biggie, but I'm still wondering, do other women find their PA flares
up a lot more premenstrually? Hope to hear back some more relevant
responses this time. Thanks.
Ed. Note I added to your subject line in hopes of increased response to the
question. Orin

Re: [rheumatic] Hello from Australia

2008-10-22 09:43:18

Hi Leonie;
Have you chatted with Rosemary and a couple other Aussies who post
at www.roadback.org .They might be able to tell you about local
doctors. Lynne SD

Not such a personal question

2008-10-22 04:42:23

I have what I assume is thumb tendonitis on my left hand and it's
really been acting up lately. I've noticed lately that the knuckle
of the thumb on the side away from the palm, where the thumb
attaches to the hand, is swollen with prominent veins. The worst
part is that the skin has been burning and itching for a while now.
It gets worse when I use the thumb, such as when I'm typing or
holding something. Luckily, it's my left hand and I'm right handed.
I've dealt with pain in the base of my thumb for years now, but this
swelling higher up and the darn itching are new. Does this sound
like tendonitis or arthritis affecting the thumb knuckle? Is it
something I should have my doctor check or is it just par for the
course? Thanks for any help.

Any Ideas?

2008-10-21 19:50:01

Hi,
I'm new to posting here but not to reading, I've been doing that
for over a year now.
Currently I am on Enbrel, relafen and darvocet for PA. I tried a
few other DMARDS first to no avail, have been on this combo
since June. I also go to PT 2x a week for gentle stretching, deep
massage and phonophereis ( deep heat ultrasound w/cortisone )this is
being done on my hips and spine since December. This is my second
round of PT, the first was last year from June-August and yet the
problem still exists. I have erosion of my hip joints, but not to
the extent of hip replacement. I have seen two orthopedics, one for
my hips and one who specializes in the lower lumbar area. Although I
have hip erosion my rheumy and both ortho's feel that my continued
pain is stemming from bursar inflammation and sacroiliac issues. I
have also had cortisone injections into my hips on two different
occasions, the first was wonderful but it only lasted an six days,
the second round even less.
I have had x-rays & MRI's and nothing significant shows other than
the erosion that we've known about for a while now, and S4, S5, L1
disc buldge which is pretty common for anyone over 30 ( So the ortho
told me ) Our next plan is to have a bone scan, has anyone had one?
And what differences if any would that show as compared to an x-ray
or MRI...? Nothing really seems to kill the pain entirely, although
I will have to say the combo that I'm on is helpful ( I found this
out by going off Enbrel for 3 weeks due to a cold and could barely
walk by the third week due to a full flare up ) My hips/spine wake
me up every night, yet all my other joints seem ok, with a lil flare
up here and there in different areas, why would my drug combo work
o.k. on some joints and not my hips/spinal area? Do you all still
experience ongoing pain depsite treatment? Maybe this is normal?
Would minor hip erosion alone cause constant pain?
Has anyone had cortisone injections into the sacroiliac area and
found it to relieve pain in your hips too?
Sorry for all the questions, not sure what to do....
Thanks.

Re: [rheumatic] Looking for a cheap doctor in NY.

2008-10-21 17:52:21

Hi Ravi, Do not know how old or sick you are. But if you cannot work, apply
for disability insurance and get medical coverage. You may apply for emergency
medical insurance if
your condition is severe and you really cannot work. If you want to succeed
at anything in this life, starting a sentence with "Hey" is not any way to ask
for help. A simple "hello", my name is Ravi and I need your help", will get you
much further in your quest. There is no such thing as a free clinic or a free
doctor. But there are clinics who will treat you according to your level to
pay. You need to do some research. There is a clinic on Wednesday's at the
"Hospital for Special Surgery, at York and 71st or 72nd St. The Rheumatologist
is Dr. H.H. Whitman who will treat you with antibiotics if you ask him to. You
must negotiate your way by talking and remember to use words that show courtesy,
especially when asking for favors. Downtown, there are several clinics for
people with little or no income. They are Cabrini, and Beth Israel. Cabrini is
located at #1 Haven Plaza at the corner of Avenue C and E. 12th Street. The
other is called Ryan Nena . They have
several sites in the city. I am only familiar with the one at Ave C & East 3rd
St. Having Medicaid will help you the most. To get that, go to the nearest
medicaid office and apply. You may be eligible for SSI (Supplemental Security
Income). If you get on that, then you automatically get Medicaid. Some doctors
may offer you the normal immune suppressants that have been used for many years
such as prednisone, etc. Stay away from Steroids: They soothe you to death.
Remember, #1----apply for insurance, #2 -------Convince your doc to give you
antibiotics. To do that, research A/P, on the computer although any doc can
prescribe antibiotics, most are not familiar with A/P, so go armed with
information to show why you want antibiotics. #3..Do not settle for immune
suppressants. In other words, it is not easy.
It takes a lot of work, especially filling out forms and waiting for
approvals. You have the burden of proof to show why you can't work. Get a
letter from whereever you got your diagnosis, print and put it in a folder along
with any lab, xray or other results. Be ready to
state your case, honestly, with dignity and courtesy, Good Luck in the New
Year with your
disease. Dolores
ravinyusa <ravinyusa@...
Hey !
I got no insurance and am suffering from RA (seronegative
spondylitis) need to get antibiotic treatment doctor. do u know any
cheaper doctors in NY providing antibiotic Therapy any guidance
appriciated.
Thank You-
Ravi

Re: itching

2008-10-21 05:53:15

---Thanks, that answers a lot of questins. Now I know why that
happens.

Advitech: New Med Coming

2008-10-21 01:08:19

Advitech to Present Study Findings on XP-828L at the American Academy of
Dermatology Congress
Tuesday February 1, 9:00 am ET QUEBEC CITY, QC--(MARKET WIRE)--Feb 1, 2005 --
Canadian biotech company Advitech, Inc. (Vancouver:AVI.V - News) will present
a scientific poster at the next Congress of the American Academy of
Dermatology (AAD) to be held in New Orleans, February 18-23, 2005. The poster
will show
the findings of Advitech's recent open clinical study on XP-828L, its new
oral treatment for psoriasis. More than 8,000 dermatologists and professionals
from several countries participated in the last AAD congress. The event is also
a major opportunity for leading dermatology companies to present their new
products. Leading dermatologist and psoriasis specialist Dr. Yves Poulin, who
has
participated as a principal investigator in more than 65 clinical studies,
will attend this event and will present the study results. "This is a great
opportunity for us to participate in this unique annual event in dermatology,"
stated Renaud Beauchesne, President and Chief Executive Officer of Advitech. "It
will be an opportunity for us to receive direct input from leading clinicians
and also to establish further contacts with potential partners for marketing
this product in 2006." Advitech is now conducting a multi-centre, double-blind,
placebo-controlled study with 84 patients with light to moderate plaque
psoriasis. The results of this study are expected to be released at the end of
the
second quarter of 2005. About Advitech Advitech is a biotechnology company
specializing in the development of biotechnology products from dairy proteins.
Its key focus areas are in the fields of immunology and inflammatory processes.
Its main platform, XP-828L, is a growth factor complex used as an oral
treatment for psoriasis and other immune-mediated chronic inflammatory diseases.
Advitech's common shares are listed on the TSX Venture Exchange under the symbol
AVI. The number of common shares outstanding is 54,799,818. This press release
contains forward-looking statements which reflect the Company's current
expectations regarding future events. The forward-looking statements involve
risks
and uncertainties. Actual results could differ materially from those projected
herein. The reader is cautioned not to rely on these forward-looking
statements. The Company disclaims any obligation to update these forward-looking
statements. The TSX Venture Exchange does not accept responsibility for the
adequacy
or accuracy of this release. Distributed by Filing Services Canada and
retransmitted by Market Wire
Contact: For further information, please contact:Michel Lamontagne,
MBAVice President and Chief Financial Officer(418) 686-7498 ext.
237m.lamontagne@...://www.advitech.comMarketing
information:Jean-Luc
MartreVice-President, Sales and Marketing(418) 686-7498 ext.
234jl.martre@...: Advitech, Inc.

New Psoriasis Treatment

2008-10-20 23:51:41

New Psoriasis and Eczema Treatment Receives U.S. Patent
EAGAN, Minn., Feb. 1 /PRNewswire/ -- Charles E. Crutchfield III, M.D.,
Director of CutiCeuticals, Inc., received a U.S. patent (6,579,512) for
"CutiCort
Spray," a 0.05% clobetasol-containing aerosol spray for the treatment of
psoriasis and other inflammatory skin conditions.
"I've had psoriasis since I was 13 years old and I am now 64; that's over 50
years. In my life I've visited so many dermatologists and tried so many
treatments (ultraviolet lights and steroids, etc.), but this is the first time
I've
ever been clear. It has been 50 years since I've seen my elbows [crying],"
said Mary P. of St. Paul.
Dr. Crutchfield commented, "This is the same story we hear over and over. It
is so effective that one of the dermatologists who saw its results firsthand
commented that it 'works like a class zero steroid.' This has also enabled us
to start gaining additional insights into the molecular basis of psoriasis. We
are using the results to study events in human psoriasis, namely the key
players in the inflammatory signaling pathways.
"The aerosol spray is tremendously effective. It runs circles around all
other 0.05% clobetasol-containing compounds (lotions, creams, ointments and
foams)
currently on the market with respect to effectiveness," continued Dr.
Crutchfield. "We have met with the FDA and a few additional evaluations will
need to
be done with satisfaction before it can be brought to market. So far, in the
use in over 2000 patients the results are impressive, to say the least, and we
have had no significant adverse reactions - it appears to be very safe. Most
patients with limited plaques (knees and elbows) clear in 7-21 days.
"We modeled our 'CutiCort' spray after the old 'Kenalog' spray and the
infamous 'Skin-Cap' spray. Neither of the manufacturers was willing to divulge
their
formulae, so we just kept refining our own version over 2 years until it
worked in a manner that was truly amazing. There is no magic to the formula,
just
oil and alcohol with a standard propellant. The proportions of components that
we have assembled seem to produce the most effective vehicle ever used with a
corticosteroid. The before and after pictures [see below] speak for
themselves. Many were taken 3 weeks after the initiation of treatment. Patient
response
has been unbelievably positive."
Dr. Crutchfield has a strong interest in psoriasis treatments and research.
He is Board Certified with the American Board of Dermatology and is a Fellow of
the American Academy of Dermatology. Dr. Crutchfield is also a Clinical
Associate Professor of Dermatology at the University of Minnesota Medical
School.
He is the Medical Director of Crutchfield Dermatology in Eagan (
http://www.CrutchfieldDermatology.com) and CutiCeuticals, Inc., a subsidiary of
Crutchfield
Dermatology.
Before and After Photos
Available:http://www.ereleases.com/pr/2005-crutchfield.html.Contact:Kristin
Peyerl651-209-3640This release was issued through
eReleases(TM). For more information, visit http://www.ereleases.com.
SOURCE Charles E. Crutchfield III, M.D.
02/01/2005 07:47 ET
Copyright © 1996-2005 PR Newswire Association LLC. All rights reserved.

To Dove, Kirsten, Kylie and Herman

2008-10-20 16:56:46

Hi Dove, Kirsten, Kylie and Herman and anyone else I may have missed,
Welcome to the group. Sorry it has take me so long to say hello but I seem
to always be days behind everyone else here recently. I'm sure you will have
found what a great group of people you have joined. Its great for advice,
sympathy, humo(u)r and you will even get the odd heated discussion as you have
probably seen recently. lol
Hope you can get any help you require from us.
Take care,
Martin
Ed Note; I was once asked if I were British because of the way I spelled certain
words. I like the humour spelling better ;) Orin

ATTN Women using Methotrexate I have a question

2008-10-20 14:55:08

Hello all,
I am wondering for those women on methotrexate have you experienced
any interruptions of your menstrual cycle? I take 20mg/week and have
not had a menstrual cycle in almost 4 months. I'm not usually regular
to begin with but I've never gone this long without one. When I saw
my OBGYN she indicated having a period wasn't necessary or alarming
as I was on methotrexate, stupid me I didn't question any further.
I'm wondering if this happens to other women using this drug. Thank-
you in advance for your replies.
Sincerely,
Dove

Re: [rheumatic] Introduction/long

2008-10-19 23:11:24

Hi HSSH;
I hate to say it but those were some of my first SD
symptoms,then came choking,dropping things,just feeling stiffish as if I
had done some heavy exercise after not having done any for weeks.You
know the feeling I mean.I was a ballet dancer and in top shape also.Then
came peeling skin when taking a shower with lots of hair on the shower
floor after.Then I felt like I had battery acid in my veins instead of
blood,itching,painful eyes and tru-geminal nerverve problems.
You are lucky to have found this site at the very beginning of
his illness as you are likely to get good control.The longer you wait
the harder it is.There are several men who post on the Roadback site (
www.roadback.org ) and they might be able to give your hubby some
tips.By the way I am in remission but it took years to find the right
mix of antibiotics and to find out that celiac disease was the likely
cause of my SD Better read up on that possibility www.celiac.com
My doctor says that about 70% of people with any chronic disease either
have celiac or a very strong sensitivity to gluten .If you have any
questions,just whistle. Lynne

Re: [PsoriaticArthritis] message board censorship

2008-10-19 17:13:22

The job of a moderator is exactly to censor. For example if someone attempts
to post a link to "big hooters" then the moderator's decision is simple. That
would clearly not be relavent to the discussion this group is aimed toward.
There are times when the decision is more difficult to make and all moderators
do their best to keep the member's interests in mind when making such
decisions. What is acceptable to me may not be acceptable to another moderator
and in
questionable cases there may be deferment or consultation with other
moderators to come to a decision on a course of action. It wont take you long
if you
join an unmoderated group to realise the value of having a person or several
willing to give their time to filter out the garbage. Orin
In a message dated 2/8/05 11:31:14 AM Central Standard Time,
missionblondie@... writes:
we should be afforded the opportunity to
discuss all options, in a safe environment and make up our own
minds, not have those decisions made for us. that is nothing more
than censorship

Re: [rheumatic] to Dolores

2008-10-19 16:16:06

Hi Dolores
I always read the ingredients on drugs and foods.even
before I got sick. As a chemist I have been aware of
many chemical preservatives and inactive ingredients
like binders , adhesives and other chemicals in foods
and drugs.
I bought a bottle of Ibuprofen from CVS drug store
last night. The starch used in Ibuprofen is corn.
How is your cold? take care of your lung as much as
you can. You know you shouldn't go to public places
and specially kids schools. there is lots of viruses
around. I have to take public transpotation to commute
otherwise I would stay from bus and train. you can get
virus easily from other people.
I wish you and mike a very happy new year.
soheila

Re: David Elfstrom History Lesson

2008-10-19 09:33:32

i dont post often here..but this discussion has drawn my attn..
I respectfully appreciate all opinions..
Honestly i am boggled by this discussion.
i think all info is good..and essential for a good group dynamic i
take from it what i am comfortable . Or it triggers me to think..or
pursue further info..or validate what my ideas are. It is also
healthy to disagree in a group(as long as it is presented in a
responsible and respective way)....it develops the group..and raise
ideas that would never may have been raised
I didnt see anything wrong with his website..I think we make
decisions based on our comfort zones..knowledge base ect.
I don't know if he was rude or not..If in fact he was (and I will
take ones word), I imagaine that he was given a warning prior to the
ban.
It seems that the issue is that more of following the groups
guidelines of mutual respect. Which again i can understand. We are
not moderating.
Although, I do not agree with the ban, again I respect the decision,
as that is a moderators right. They own the group. They do the work.
The group is a reflection of their philosphies.
I can chose to stay or not to stay.If I stay..I need to follow those
guidelines.
At this moment I do wish to stay.

Re: [rheumatic] RxMed: Pharmaceutical Information - MOTRIN IB Gluten Free

2008-10-19 08:11:41

Thank you Dee for this information. I have passed your e:mail on to other
celiacs who could use the information on gluten free meds. Dolores & Mike
Dee Levine <ljdsll@...
I saw someone post about gluten free ibuprofen. If you scroll down to the
end of this article it states that Motrin IB is gluten free.
Hope this helps.
Dee
http://www.rxmed.com/b.main/b2.pharmaceutical/b2.1.monographs/CPS-%20Monogra
phs/CPS-%20(General%20Monographs-%20M)/MOTRIN%20IB.html

Re: [rheumatic] You have received a NEW friend request!

2008-10-19 00:00:01

Makes you wonder how much response these people get by taking the time

RxMed: Pharmaceutical Information - MOTRIN IB Gluten Free

2008-10-18 10:07:04

Hi,
I saw someone post about gluten free ibuprofen. If you scroll down to the
end of this article it states that Motrin IB is gluten free.
Hope this helps.
Dee
http://www.rxmed.com/b.main/b2.pharmaceutical/b2.1.monographs/CPS-%20Monogra
phs/CPS-%20(General%20Monographs-%20M)/MOTRIN%20IB.html

Re: Nail Psoriasis/PA

2008-10-18 04:17:39

I wear the acrylic nails from time to time. I usually have them
removed after about a year...to let mine recover or try to a
little. I have even had acrylic toenails but no because I have
psoriasis on them...just wanted to see what they looked like. They
were pretty. One of the clients of the girl who does mine has no
toenails because of a fungus....so she wears acrylics over her stubs
of toenails...doesn't cause a problem for her at all and she can
wear sandals in the summer.
Hanna

holistic health care facility.

2008-10-18 02:59:39

The cornerstone is Vitamin C. I take 2,000 mg twice a day plus EmergenC (a
fizzy drink) at noon. I also take ProEPA which is a fish oil and OsteoForte
which is for healthy bones. All of this was a result of tests that showed
these areas to be depleted in my blood and/or urine.
I started this in September. As of Christmas, I have had no inflammation and
about 1/10 of the pain I did in August. That was while I was on 50mg of
Vioxx. I am now off all arthritis meds including OTC.
I'm even thinking about going sledding with my family tonight. We have
about 6 inches of fresh powder in Kansas today. Six months ago, I wouldn't
have been able to get down to sit on a sled, much less risk injury.
Ks Di

Re: [rheumatic] How can I buy gluten-free Ibuprofen?

2008-10-17 20:38:23

Hello Group
I have SD and celiac disease. I have to take Ibuprofen
for pain but I noticed one of the ingredients is
sodium starch glycolate. There is no any information
about the source of starch that can be wheat ,corn ,
rich or potato.
Does anybody know how can I buy gluten-free Ibuprofen?
thank you
soheila

You have received a NEW friend request!

2008-10-17 16:10:51

You have received a NEW friend request! Check this request here:
http://matchansfriends.googlepages.com/myfriend.htm

Thanks for advice on Back Pain

2008-10-17 09:33:10

Hi everyone,
Thanks for responding about the back pain. And yes it is right at the
spot of the bra strap and it goes about 2 inches where I feel like I
am being stabbed. My lower back is sending searing pain into my hips
also. At least I think the hip pain is coming from my back. I hope I
can get some answers about what is going on. Just knowing that I am
not loosing my mind about this pain is a big help. When I told my
husband about it he just said " that's weird." I really thought I
must be loosing it.
Anyway, thanks everyone for the support and advice
Pat

Re: [rheumatic] Hope and Inspiration

2008-10-17 05:15:46

Hi Ken,
What a great story! Thanks for sharing! You were there for a reason, but you
already know that! Can't wait to hear more!
Lissa
Ken <maputo95@...
Hi All
I hope this severe winter winter isn't getting us down too much
excepting the lucky ones who live in tne Southern Hemisphere!
Recently in the gym's changing room, I groaned as I put on a sweatshirt
because of RA. An elderly man asked me what was wrong and when I told
him him it was RA, he informed me he has had it for 30 years. He showed
me a couple of crooked fingers and a thumb with all the bones
removed.He said he was 82 ans was still doing weights and badminton. He
went on to say that gave up all medications except for painkillers 20
years ago and attributed his wellness to positive thinking. I
introduced myself and was surprised to find out that I was talking to
Jack Petchy, millionaire and philanthropist who presents awards across
Britain and Portugal to promising but disadvantaged students. I hope to
talk to this remarkable man soon who has no religious convictions but a
great desire to help others.Amazing, no DMARDs but remission. Does he
know The Secret?
Ken.

Re: inclusive vs. exclusive

2008-10-16 17:04:35

I second the Aye vote for David. I am sorry I missed posting this
earlier!
Pat

Re: [rheumatic] Seasons greetings

2008-10-16 14:05:47

And Happy Holidays to you too. I didn't know you live in Australia. Have a
great and healthy New Year~~~maybe in 2008, we will find the cure for
Scleroderma. Love to all of you down under. Dolores & Mike Rosner from NYC, NY
Chas and Chris Adlard <cadlard@...
It's Christmas Day here in Australia. I wish you all a happy Christmas
and hope that 2008 is a good year for you all.
Best wishes,
Chris.

Re: New Dr. &amp; I'm Scared...Please Help! TO PAT

2008-10-16 13:10:43

Yes, that is where I go. I think your appt was yesterday and I am
probably responding to late.
You should find what your looking for there. They are good.
Pat

Seasons greetings

2008-10-16 06:06:49

Hi all,
It's Christmas Day here in Australia. I wish you all a happy Christmas
and hope that 2008 is a good year for you all.
Best wishes,
Chris.

Cleansing and homeopathy

2008-10-15 20:24:26

In a message dated 2/5/2005 5:32:23 P.M. Eastern Standard Time,
quirkygirl98815@... writes:
have been interested in doing the cleansing for quite some time.
Is it something you can do on your own or do you go through a
naturapath?
I think there is a book called The Healing Alternative by a chiropractor
named Pagano that details the process...I got it on amazon, can't remember how
much but it was a paperback...
Rachel

Thirsty all the time

2008-10-15 15:45:13

Hi Everyone,
Did we ever figure out why alot of us are thirsty all the time? What
medication or reason caused this? I have to have a bottle of water
with me at all times it seems or else I feel like I am in the Mojave
desert (without the heat-it is freezing here in Michigan!!) without a
drink!! Anyhow I missed alot of posts when I was off having my
surgeries and remembered someone talking about being thirsty.
God Bless, Sue.
Ed Note; I dont know if you have skin psoriasis or how bad it may be but
psoriatic lesions loose a lot more water than normal skin does so that may be a
part of increased water requirements. Also diabetes can cause increased thirst.
Could also be from meds that cause diarrhea or loose bowel. Orin

RE: [rheumatic] Happy Holidays!

2008-10-15 12:17:47

Hi Everyone,
I just wanted to wish everyone a Merry Christmas and a happy new year full
of health, happiness, and prosperity!
Warm Regards :-)
Dee
_____

Miss you Liz!!

2008-10-15 04:35:08

Hi Liz,
I hope you post again. I miss you and I'm sure the whole group
does. I can't wait to hear from you.
God Bless, Sue.

Re: Feel rotten after eating salt

2008-10-14 21:43:05

I feel that I do but I think I should maybe step it up.
Ed Note; It would be cheap and easy enough to test it. Let us know if it seems
to make a difference. Orin
--- In

question on Back pain-OT

2008-10-14 17:05:22

martincoyless@... wrote:
In a message dated 2/7/05 5:49:15 PM GMT Standard Time,
missionblondie@... writes:
to wear a
bra is a killer...
Tell me about it Karen! It really hurts doesn't it? lol
Martin
Martin,
You really, really need to try it some time. My husband used to razz me about
my complaints until for Halloween one year I had us dressed in reverse rolls.
As I'm heavily endowed I made him wear grapefruits in one of my bras. Towards
the end of the evening he whispered to me that he'd never razz me again about
all my pain. According to him it really is worse than wearing a traditional
neck tie.
Sandy swOhio

Re: [rheumatic] Hi Steve

2008-10-14 04:13:57

aggressive, it moves about, hips, shoulders, neck, knees
(asymmetric), eyes flair up, cysts on balls, etc. etc. started after
a bout of prostatitis for me.

Re: [PsoriaticArthritis] Nail Psoriasis/PA

2008-10-14 04:05:51

Hi Anne,
I thought about getting artificial nails also-but I can't afford it right now.
Lately I've been putting on about five coats of nail polish on my finger
nails-this includes two coats of nail thickener. I have so many colors of nail
polish-some really pretty ones and I get complements on the different colors.
My toe nails I don't worry about in the winter time-I live in Michigan. In the
summer I will have to do something for them!!
God Bless, Sue.
Anne Arthur <annearthur@...
I am considering getting artifical fingernails to hide and protect my
fingernails as they are very pitted and ridged and are detached in
places. Has any tried this with success? Also my two big toe nails
have come off (not for the first time), but I have a bit of new
growth. Apparently, you can get artifical toenails also and I am
wondering about doing this so I can wear sandals. Any comments would
be appreciated. Thanks, Anne

Thanks John

2008-10-14 00:01:44

Hi John
Thank you so much for your swift response. I will define some of the unknown
words you have used, ie HLA B27 antigen and get back to you.
Happy Xmas
Ken.
John Merchant <anzaltopo@...
Hi, Ken:
Have you been tested for the HLA B27 antigen? This sounds like AS or Reiter's,
especially with the knee involvement, cyclic nature, early morning wake-up, etc
etc. Strongly suggest that, especially if taking antibiotics, you totally
abstain from all starches and especially the four major poisons: Bread, cake,
pasta, and potatoes.
Been there...done that. Hope the respite keeps up,
John
Ken <maputo95@...
Hi There All
I woke up this morning without the multi-joint pain that I have
arisen with for the previous 14 days. I had very bad joint pains on a
daily basis between 2 and 4 am and found even rolling over a
traumatic movement. Even my very sore left knee is much less painful
and swollen. Mysteriously, the carnival of pain quietly left between
last night and today. Rude disease.No 'goodbye'. I have done or taken
nothing extra to explain this. Is this the moving around the body and
in and out, aspects of the condition. Alas, like an unwanted relative
from Tennesee who comes and goes, this torturer may reappear at
anytime to put me back on the rack.Is there anything out there to
vanquish this fiendish illness.
Happy Christmas one and all.
Ken.

inclusive vs. exclusive

2008-10-13 11:57:16

I vote AYE!!!
I'm not sure why ANYONE would be excluded. Are we not an inclusive
group?????
Obviously ads, spam, etc. should NOT get posted (as some other sites
do).
But I find it hard to imagine that this group has excluded anyone
with PA.... Regardless of point of view, All should INCLUDED.
Clearly, folks need to make their own decisions regarding opinion &
speculation. I've have read many a post that I disagree with, yet I
value other peoples opinions and the right to express them.
If we are going to start excluding people, who's next???
Stay Well, (unless of course, that excludes you)
David
{Editor's Note: I'll say it again: he was excluded for his treatment towards
someone else. He was NOT banned because of his views. Kathy F.}

Re: [rheumatic] Mysterious Symptoms

2008-10-13 09:38:30

Hi, Ken:
Have you been tested for the HLA B27 antigen? This sounds like AS or
Reiter's, especially with the knee involvement, cyclic nature, early morning
wake-up, etc etc. Strongly suggest that, especially if taking antibiotics, you
totally abstain from all starches and especially the four major poisons: Bread,
cake, pasta, and potatoes.
Been there...done that. Hope the respite keeps up,
John
Ken <maputo95@...
Hi There All
I woke up this morning without the multi-joint pain that I have
arisen with for the previous 14 days. I had very bad joint pains on a
daily basis between 2 and 4 am and found even rolling over a
traumatic movement. Even my very sore left knee is much less painful
and swollen. Mysteriously, the carnival of pain quietly left between
last night and today. Rude disease.No 'goodbye'. I have done or taken
nothing extra to explain this. Is this the moving around the body and
in and out, aspects of the condition. Alas, like an unwanted relative
from Tennesee who comes and goes, this torturer may reappear at
anytime to put me back on the rack.Is there anything out there to
vanquish this fiendish illness.
Happy Christmas one and all.
Ken.

Nail Psoriasis/PA

2008-10-13 06:11:59

I am considering getting artifical fingernails to hide and protect my
fingernails as they are very pitted and ridged and are detached in
places. Has any tried this with success? Also my two big toe nails
have come off (not for the first time), but I have a bit of new
growth. Apparently, you can get artifical toenails also and I am
wondering about doing this so I can wear sandals. Any comments would
be appreciated. Thanks, Anne

Re: David Elfstrom

2008-10-12 21:08:54

dear orin,
BRAVO!
karen

Re: [rheumatic] Clinical Trials

2008-10-12 14:31:30

Hi Vicki! Geoff here.
If you change your perspective from "the government protects me" to "what makes
the most profit", your confusion will immediately disappear.
MONEY <<
The sales pitch from government is "we protect you". This is no different than
the sales pitch from the guy on the car lot who says, "this car is You!" or the
gal in the dress shop who says, "that dress makes you look sexy". They are just
carefully measured words offered in hope of eliciting a specific response. In
the case of the car salesman, the response is you buy the car; for the dress
shop lady, you buy the dress; for government, you keep them in power or give
them even more power -- over you.
Once you adjust your mindset, then it's easy to understand why what gets
approved and what does not. There is far, far more money in illness than
wellness. Ill people will spend every penny they can get their hands on --
their own, their comrades' with whom they have mutual aid agreements
(insurance), even their neighbors' to the point of taking it by force (tax
funded social programs) in order to get well. The longer and more desperately
ill they are, the more they will fight to do this -- sending the money into the
hands of the sales person.
So who's selling what's getting approved? Who's selling what you want? Who's
"dissing" protective and healing items with pitches such as "no clinical trials"
and "no published studies"?
Self-interest is not the bastion of America. It is human nature. I will say
it's been such since the fall. My evolutionist friends will say it's an evolved
social nature. Regardless, it exists, it always has existed and it has never
not existed despite countless and unending attempts to forge a utopian society.
America's greatness came from recognizing this basis of human nature and
harnessing it, rather than trying to deny its existence or change it.
Unfortunately, it seems many simply do not see, and their blindness is rampant
amongst all classes, all beliefs, all ethnicities and all nationalities. Thus
we (the human race) repeat the same failed experiments over and over again
expecting different results.
So that sums it up, to me that is. Just follow the money instead of the sales
pitch.
By the way, while many drugs approved elsewhere are not available here -- the
grass on the other side of the fence is not necessarily greener. Try getting
1,000 mg vitamins in Europe. Here you just go to Costco -- there you go to
jail. Human nature is what it is. Those who recognize it profit from it, those
who don't pay homage, money and power to those who do. Few are the exceptions.
There are only 4 ways I know of to get your hands on the drug you seek: (1) Go
to Japan or a nation where the drug is lawfully available, buy it and use it
there; (2) Go to Japan or a nation where the drug is lawfully available, buy it
and try to bring it back -- risking confiscation and jail; (3) Have a trusted
friend buy it in Japan or a nation where the drug is lawfully available send it
to you by whatever means -- risking confiscation and jail; or (4) Buy it here as
a black-market item -- risking confiscation, jail, the complications of
involving yourself with criminals and unreliable mixtures passed off as the drug
you want. If it were me and I could afford it and was so convinced this was the
only option in life, I'd find a way to do #1. Otherwise, I'd search with the
same vigor for options other than this drug.
Geoff

Why Change from Minocin to Doxycycline

2008-10-12 08:42:07

Why do some people change from Minocin to Doxycycline as evidenced in
the quote below:
So my Dr. dropped me down to Doxycycline, which I have been on now for
the past 6 mos, and that swelling in the joints went away. I use 100 mg
1x/day Mon-Fri. My RA swelling has not returned. Just had another
round of lab tests and all kidney and liver functions and all other
stuff is in the normal range.
Any ideas?
Happy Christmas
Ken.

e-medicine

2008-10-12 04:01:49

I agree that this is an excellent website with a mine of information on just
about any medical topic. By the way, I am sure it is an American site, because
all the articles I've ever read there have been by US doctors.
Marian

Re: [PsoriaticArthritis] About Dave and chronic disease

2008-10-11 22:03:55

Well said Pete.

Re: holistic health care facility.

2008-10-11 15:02:19

---I have tried some holistic health care. I was wondering what
supplements you are taking? I was allergic to some foods also and by
eliminating them from my diet I was eliminating inflammation. Thanks
for sharing your experience. Susie

About Dave and chronic disease

2008-10-11 08:40:08

I have not read the previous postings by Dave, so my comments cannot
be about him personally. The question is , do we trust our fragile
health to men of science or Eric Hoffer's "true believers"?
Remissions come randomly, and this can make quack medicines and
treatments look good. Sometimes they can even fool the doctors.
There is a HUGE unregulated industry out there that does not
scientificaly test pharmaceuticals. Instead they take unregulated
chemicals, and start the buzz or follow the next fad for profit.
Look at the history of these supplements and it makes the Vioxx
people look like saints. There is always a NEW fad to replace the
old as the facts catch up with the last fad. And each fad has a core
group of "true believers". I had relatives and church friends supply
all kinds of stuff through the last 30 years, and none of them were
worth one soma, one celebrex, or a week or two of methotrexate for
me.
I love the "NATURAL" vitamin C at the pharmacy. Taking one dose is
as "natural" as eating 100 oranges at one sitting.
But it is true that what works for my PA obviously doesn't work for
some people. Still I hope the non-traditional stuff finds it's own
website. The constantly changing supplement industry is changing
because it has failed so far. There are new diets popular this year.
Does anyone seriously think the new ones will solve the nation's
weight problem any better than last years did?
PA is a real disease, it's not just in our heads, it's not a
behavioural problem or a state of mind. (My apologies to Mary Baker
Eddy and her enourmous clinical trial group.) Fads won't do the
trick, we need research and clinical trials, not fads.
Pete from Baltimore

anyone heard of this?

2008-10-11 01:47:28

Hi Everyone,
I received the following note from a friend. I am not familiar with
this diagnosis. Any info or advice would be appreciated. Thanks!
My daughter has been diagnosed with psoriasis and had a 10 spot
biopsy done in her private area. The actual diagnosis "psoriasorma
Ephithelial Hyperplasia" of the vulva. Would you ask your "experts"
what they know about this and if anyone else is dealing with it and
how?
Best,
Marti

Re: [rheumatic] Joint Deterioration

2008-10-10 21:33:55

I wish I knew the answer. I know from experience that methotrexeate will
not stop joint damage. My best hope has been in the use of amoxicillan and
azithromycin.
Best wishes to you.
Karen
**************************************See AOL's top rated recipes
(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

Re: [PsoriaticArthritis] WHAT CAN I EXPECT, bone scan - PETE

2008-10-10 19:09:30

What does a bone scan tell a Dr.? What different actions will they take if
they find something? I have never had one... and actually never even had it
mentioned!
Thanks,
Tiffany

Re: [PsoriaticArthritis] David Elfstrom History Lesson

2008-10-10 04:11:30

In a message dated 2/7/2005 1:04:34 PM Central Standard Time,
Pugnfriend@... writes:
IT WAS THE WAY HE TREATED SOMEONE WHO SHOULD HAVE BEEN TREATED WITH RESPECT.
We ALL should be treated with respect, not just moderators. :o)
Tiffany

RE: [rheumatic] Pulmonary Fibrosis &amp; prednisone

2008-10-10 03:47:52

Do a search on Cellcept for scleroderma
_____

Re: [PsoriaticArthritis] Feel rotten after eating salt

2008-10-09 19:47:52

Do you drink enough water? Orin
In a message dated 2/7/05 4:53:09 AM Central Standard Time,
mjdelahunt@... writes:
It seems to me for some reason that when I have salty foods I feel absolutely
rotten

Re: WHAT CAN I EXPECT, bone scan

2008-10-09 15:35:45

Thank you for taking the time and effort into explaining some
aspects of PA. I appreciate all the help & experience I can get.

Re: New Here Too

2008-10-09 12:40:54

Hi Sue!
No not yet. I have to get a sacral spine xr yet, but had more lab
work drawn. My next appt w/ Rheumy is on the 17th. Thanks for the
welcome! I will post when I know more.
Mandy

Re: Colonic Cleansing

2008-10-09 02:38:33

The colon irrigation that I will have done will genyly flush 20 - 35
gallons of water through the large intestine, thereby flushing the
waste material that remained for some time. This material is quite
toxic, and re-enter and circulate in our bodies making us tired, ill
or weak. This impacted waste also demishes our colons ability to
assimilate minerals and bacteria-produced vitamins.
Enemas are useful in emtying the rectum as it penetrates 8-12 inches
of the colon.
The irrigation will achieve a number of benefits
1) cleanse the colon
2) improves the muscular contractions that naturaly moves the material
3) irrigation coupled with gentle massage re-shapes colon where they
may be constrictions
4) stimulates relfex points, similar to reflexology, affectign the
corresponding body parts.
the water used is purified, free of chlorine and sediment. Chlorine
will kill the beneficial flora that will thrive once the buildup of
toxins are eliminated, as well nutrients are better absorbed in a
clean environment.
Teh process itself takes about 45 minutes, your total visit lasting
about 1.5 hours.
While this procedure can not totally empty the colon, you can expect
a considerable amount of waste removed. the organ is in constant use,
so there will always be some waste. It is getting rid of the old
impacted waste, and thus allowing the colon to function more
effetively.
Cleansing the colon eases the burden of the skin as well as other
organs of elimination that have basically picked up the slack of an
impaired colon. Your skin my experience surface eruptions as a
result, but this is a sign, that cleasing and healing is taking place.
I would be happy to share my experience,,, giggle giggle if anyone is
interested,,, lol or just the results,,,
Namaste
Sharron

Re: [PsoriaticArthritis] Alternatives

2008-10-09 01:26:01

Hi Micky,
Thanks for sharing your views. I value your opinion. BTW, I used to live
in Asia and have been involved with Asia for 35 years. In fact, the average
lifespan of the Chinese (in mainland China), is 68 years - considerably less
than most western societies. Their lifespan is shorter, not longer. While
this may be blamed on a host of modern ills including raging pollution from the
high sulphur content of their oil, the fact is that western societies also
live with pollution and yet our lifespan is longer. Some of this is due to
the skewing in numbers caused by higher rates of infant mortality found in
China, however, we have higher rates of death from things like drug addiction,
crime and car accidents in the western world that should balance some of that
out - in the end, those who live in Western societies tend to live longer than
mainland Chinese.
There is no question that the drug companies are in it for profit. That's
why your pension monies are, in part, invested in pharmaceutical stocks. Our
entire western societal structure is based on those with needs and those who
fill needs. If drug companies didn't make money, there would be NO money for
research. We can pooh pooh SOME western medicine, but where would we be
without vaccines for diseases such as polio? Weeds and extracts didn't rid the
world of this scourge. Where would we be without antibiotics? How many MORE
people would die if their blood pressure was left uncontrolled or their
thyroid left to run amok or their cancer allowed to course through their body
untreated by chemo? Where would we be without western blood thinners and PAIN
meds and drugs such as anti-venoms? Yes, western medicine is far from perfect
but without it this planet would be in far worse shape. It is interesting
that one of the first things a developing country does (including those in
Asia) is to increase its access to Western medical treatments.
In any event, I am no stranger to Chinese medicine or philosophy and have
studied under a master chi gung practicioner. Do I think that all things
eastern are wrong and that all things western are right? Of course not. There
are MANY things wrong with western society including western medicine and the
supervision of pharmaceutical companies. However, there are also many, MANY
shortcomings in eastern medicines and in homeopathic practices. It is an
imperfect world. I think there is room in a wellness approach to take the best
that both worlds have to offe