Re: [rheumatic] Re:Thanks

2008-05-31 16:42:21

Monique Sauve <moniquesauve@...
thanks for the info. i find just avoiding gluten is not enough. i h ave
to avoid all cooked starches to get relief which is hard. i have RA and
took minocin 200 mg a day for 3 years and did well then got such bad
vertigo and fatigue i had to stop mino and RA came raging back. now am
scared to use drugs since i reacted so badly before. now trying to just
eat meat, fish, vegs, eggs, and good fats. very hard but it definitely
helps. i have met 1 with RA and two with AS who keep their dddddsymptoms
at bay just doing this.
monique

Book on Arthritis Relief

2008-05-31 13:23:29

I'd like to see a book that emphasizes the sufferer rather than the people
around them. Far too many arthritics feel worse when people around them don't
understand. Who gives a whit what anyone else thinks? What matters is for
us to take ownership of our disease. We are not helpless. We have the power
to educate ourselves. We have the ability to walk away from doctors that
aren't working for US. We have a great deal of say over the treatments we opt
for in many cases and we needn't blindly accept everything our doctors tell
us. We have the right, indeed, the obligation, to question our doctors
thoroughly. We have the right to get answers to the things we don't
understand. We
have SOME choice about how much stress we have in our lives (too many of us
fret over little nonsense, for example). We have the choice to emphasize the
positive (this is what I can still do, hooray) or the negative (this is what
I can't do anymore, poor me, boohoo). In other words, we are extremely
powerful in our war against the disease rather than meek little powerless
victims.
Eleanor Roosevelt once said that no one can make you feel inferior without
your consent and far too many arthritics grant consent. So I'd love to see a
book that empowers and inspires arthritics while simultaneously providing a
wealth of good information.
Kathy F.

Book on Arthritis Relief

2008-05-31 09:09:39

I've never seen a really good form or checklist or
workbook for documenting/tracking symptoms, side
effects, medications, complications, etc. etc. I've
seen some that are too complicated, others that are
too simplistic.
When I got the official diagnosis last spring, I
created one of my own that I use to track my meds, my
pain level, my symptoms, my activity level, my test
results and my weight. Sometimes I'll even include the
weather. It's not fancy, thorough or consissten, but
it's been interesting to look back over it and see how
things have changed since starting treatment.
Other things that may be useful:
- a way to document the family medical tree to see
where the autoimmune disease (and other inherited
conditions) may have come from. The family tree w/
five generations of autoimmune diseases helped my
Rheumy confirm the diagnosis.
- a way to explore/document pre-diagnosis symptoms. I
sat down one day and started listing all the illnesses
I've had over the years that are related, the year/age
I was when I had them, and anything I could remember
about diagnosis and treatment. (Based on these
memories, I can pinpoint my first flare of inverse P
at age 11, knees at age 12, regular P at 14,
costochondritis at age 15, and achilles tendon at age
16. I wasn't diagnosed until age 41). Every so often,
I'll remember something else, and I'll add it to the
list.
I hope this helps as you develop the book.
-- Allison
=====

Re: [PsoriaticArthritis] Lurker with a great start on ENBREL

2008-05-31 04:26:04

Hi Mark,
Thank you so much for sharing yours and your wife's experience with Enbrel. I
was so happy to hear of someone finding it such a success. I have been on the
2/25mg injections weekly now for 5 weeks and definately feel much better. I
wish your wife continued success and comfort...oh yes, she is very lucky to have
such a fine man for her husband, thumbs up to you!
Warm Regards from California, Annie

Re: [PsoriaticArthritis] Supplements and Sleeping - chair yoga

2008-05-30 21:57:46

I know about chair yoga from my teacher. She usually
spends 1/2 of one class (out of a 7-week cycle) using
the chair as a prop. I find that it is a little easier
than some of the traditional poses, but also stretches
the muscles in a slightly different way, too. I was a
wonderful change of pace when my hands and feet were
flaring up.
I haven't personally seen any of the following, but I
did a quick search on Amazon.com and found these:
- Chair Yoga (2001)
- Jodi Stolove's Chair Yoga (DVD)
- Jodi Stolove's Chair Yoga (2004) (VHS)
- Ageless Yoga: Joint Freedom Standing & Chair
Routines (VHS)
If anyone tries any of these, I'd love to hear what
you think. I'd like to find something for my mother to
try.
-- Allison
=====

Supplements and Sleeping - brain fog

2008-05-30 21:29:59

I don't know if it's being blonde (strawberry) or the
general package of meds (I don't take traz) or if my
reduced caffeine level is messing with my ADD -- but I
can't finish a thought or a task to save my life!
I can't remember to take my meds. I can't finish one
thing before starting another. I've got three
half-watched tv shows taking up space on my DVR that I
just can't seem to get back to. I've got three
paintings half-finished, and a digital painting that
just needs ONE MORE THING before I send the file to
the publisher... BUT I JUST CAN'T SEEM TO FINISH
ANYTHING.
Tonight, I left an empty pan on the stove burner set
to "high" and ended up wandering around the house with
a jar opener in my hand for several minutes -- until I
smelled the pan burning. I had four different tasks in
progress at the time. !!!
(That does it. I'm making a pot of REAL coffee
tomorrow morning.)
-- Allison
=====

Supplements and Sleeping - amitriptyline

2008-05-30 10:17:36

One of my docs Rx'd amitriptyline to me to take at
bedtime. His explanation: people in chronic pain don't
sleep well, and if they don't sleep well, they don't
heal, thus compounding the pain over time. The drug
worked very well for me while I was taking it.
I've since tried other things over the years,
including Ambien (love it, but don't want to take it
regularly) and now Zanaflex (works well for the most
part, but seems to be less effective over time).
My mother has fibro, but won't take the amitriptyline.
She says there are two reasons: 1) she doesn't want to
take an antidepressant (stupid reason, if you ask me)
and 2) she makes a couple of trips to the bathroom
during the night, and she's afraid that if she's
getting a good night's sleep, she'll have an
"accident" (I can buy that reasoning). So she
continues to suffer and sleep poorly...
-- Allison
=====

Achilles tendonitis

2008-05-30 03:24:33

Maureen,
I have had terrible trouble with my achilles tendons and swelling of the bursa
under my ankle bones. My Rheumatologist told me to NEVER let anyone inject them
because it greatly increases the risk of rupturing your achilles tendon which is
a very painful and time consuming process to fix.
Rae

Re: [rheumatic] SLE??

2008-05-30 02:04:19

Hi, I have a positive ANA at 1:640 and with anti centromere antibodies...and a
positive Anti CCP, my RF was positive, albeit, a low positve...My C4 complement
was high, altho my local rheumy did not comment on this...
However, I have had a rash on my right arm, by my wrist for the past 10
years...no one seems to know what this is...I would suggest, IMO a test for
Lupus, the anti DSDNA...my backeast longtime rheumy, DR. Whitman, orders this
periodically...and it has always come back neg...he seems to feel I believe that
the Anti DSDNA is indicative of Lupus.......
PLUS, Delores and Cooky if you see this post...your books will be mailed
Thurs...they are ready to go, just been swamped...AC went out, etc...etc...and
we are getting ready for our DRs trip...but they are ready and will be mailed
before we leave!
Hope this helps, Debbie in Cincinnati

Re: mobic

2008-05-29 16:42:47

Hi Carol,
I have been on Mobic for a couple of years and it seems to do a good
job and I don't know of any side affects, for my anyways. Celebrex
worked for a couple of years and then stopped working, Vioxx never
really did any good and that is when I went on Mobic.
Good Luck
Dick

Lurker with a great start on ENBREL

2008-05-29 14:36:53

I have been lurking for several months. My wife (now 38) has had psoriatic
arthritis (some say its rheumatoid, others have said psoriatic) since the
birth of our first daughter in 1991. Over the past few years we drifted away
from treatments as nothing really seemed to work, and she was in a period where
the joint damage was near remission, despite frequent flares of pain and
inflammation. However over the past year she started getting worse very
quickly. Her wrists were the most painful, were quite swollen, with limited
flexibility.
This is when I joined this group, as I wanted to here some first hand news
about ENBREL. The positive feedback I saw here convinced us to give it a try.
We hooked up with a great doctor. Ten days ago she had her first injection
at the office. The next day she was virtually pain free. Going up and down
the steps with ease as opposed to one step at a time. Her wrists did not
hurt. Three days in, I noticed that the inflammation on her wrists was
SUBSTANTIALLY less, if not totally gone. This past Wednesday I gave her a
second
injection (it was much easier than I had anticipated for me to give, and her
only complaint is a burn of the ENBREL going in). She does not appear to have
any side affects other than perhaps a headache after the first shot. No rash
at injection sight.
I don't want to jinx her success, so I cautiously report that we pinch
ourselves daily over our good fortune to find this med, we hope we have found
our
long sought after miracle. After so much pain, my wife is somewhat scared to
get overly optimistic -- but so far ENBREL has been miraculous.
To those of you who have shared your success with ENBREL, I thank you, as it
encouraged us to try.
Mark

SLE??

2008-05-28 22:28:28

I have been diagnosed with RA based on a high anit-ccp level. My RF
has always been negative. I have been having some facial rashes that
are itchy and kind of burn a little. I saw my rheumy and he did
additional bllod tests. All came back negative except a C4
complement. He said this was often seen in lupus, but didn't know what
to tell me with all the other tests negative. Does anyone know if a C4
can be low in RA? My ANA is a low positive at 1:160. I'm really
stressed that I have lupus too. Is minocin good for lupus? Please
help as I'm really stressed about the C4. Thanks to everyone.

Re: 1st Humira Injection

2008-05-28 21:12:55

dear shari,
i get gold injections in my backside every week and the pain you
described with your humira injection is identical to what i feel as
well. on a pain scale of 0 to 10, it's a 10.... and yes, the burn
lasts a good five minutes. what i have found helps for me is to lie
down on my stomach and force myself to stay as limp and relaxed as
possible when the injection is given. i also have the dr. give it
to me as slowly as possible. others have suggested freezing the
area with a bag of frozen peas for about 15 minutes before
injection. i haven't tried that yet - the thought of taking a bag
of frozen veggies to the dr.'s office makes me giggle - but i might
try it one of these days.
agree with your thoughs on meds and more meds... sometimes i feel
like we are on a merry-go-round that won't stop. i just try to keep
positive and tell myself it will get better.
take care shari,
karen

Re: [rheumatic] info from Dr. Franco

2008-05-28 11:23:31

Hi Sandy ! I read your email about going to Dr. Franco in Riverside. My wife is
also going to him. We travel from Mesa, Arizona once a month. She has been
diagnosed with MCTD with polymyositis prevailing. She also tested positive for
Lyme Disease at Igenex. Maybe we could share notes on the treatment protocol.
My wife is 68 and contracted MCTD a little over a year ago. He is treating her
with a decreasing amount of Prednisone and increasing amount of Imuran. She is
also taking 200mg of Minocin daily. She seems to be getting better, her raynouds
is 75 % better, and she has more energy. She is taking 2 other antibiotic for
her lyme infection. If you think this will be usefull to you, email us and we
will compare. Thanks Phil

Re:Thanks

2008-05-28 09:51:40

michelle
that's great you are doing better. what dietary changes have you made?
monique

Re: [PsoriaticArthritis] 1st Humira Injection

2008-05-28 03:17:20

Shari,
Congratulations on your first shot. I hope Humira works for you. It has
helped me greatly. In the beginning, the shot was a horror for me, too. I
found that by: (1) Letting the Humira come to almost room temperature, (2)
freezing the injection site by using a box of frozen peas (or corn) before
injecting (3) injecting VERY slowly, I mean VERY VERY slowly, the combination
of
these three things has made the shot very tolerable, indeed.
Good luck.
Kathy F.
I had my first Humira injection today. The nurse at the doctors
office did it. It burned so bad as the med went in, I never felt that
kind of burning before. It lasted for about 5 minutes after the
injection. The nurse wants me to go back in 2 weeks and do the second
shot with her. Then I guess I am on my own. My doctor took blood work
this week, I still have a lot of inflamation in my body. She did
increase the steroids, but only for a week, then we will decrease
them. She wants to ween me off them ASAP because it has caused my
sugar to be very high. So, now I have to start meds for my sugar. She
thinks my sugar will be normal once off the steroids. She is holding
off on the Methotrexate for now, wants to wait to see how the Humira
works. I still am very overwhelmed and starting to get a little
depressed. It seems that the side effects of the meds leads you to
need more meds.
Shari

Supplements and Sleeping - For Becky

2008-05-27 21:34:37

oh my gosh thank you Karen ...... as I am blonde also .... so that's why i'm
forgetting things. lol
Shar

1st Humira Injection

2008-05-27 15:01:49

I had my first Humira injection today. The nurse at the doctors
office did it. It burned so bad as the med went in, I never felt that
kind of burning before. It lasted for about 5 minutes after the
injection. The nurse wants me to go back in 2 weeks and do the second
shot with her. Then I guess I am on my own. My doctor took blood work
this week, I still have a lot of inflamation in my body. She did
increase the steroids, but only for a week, then we will decrease
them. She wants to ween me off them ASAP because it has caused my
sugar to be very high. So, now I have to start meds for my sugar. She
thinks my sugar will be normal once off the steroids. She is holding
off on the Methotrexate for now, wants to wait to see how the Humira
works. I still am very overwhelmed and starting to get a little
depressed. It seems that the side effects of the meds leads you to
need more meds.
Shari

Meds and infections

2008-05-27 11:40:42

I had two back to back root canals done.The pain of that took back seat to
the PA pain. One of my teeth was infected so
had to start on a week of antibiotics. Found out that I was not supposed
to take MTX or arava while on antibiotic plus go off the enbrel until the
infection cleared. Since I have
mitral valve prolapse I have to go on antibiotics everytime I have
dental work. So we are talking over a month now that I will not able to
take the meds. I have my temp. crowns on now so I have another two weeks
to go. Ugh, wonderful! So I guess I what I am asking is how long do you
stay off the meds after your last pill of antibiotic?
Thanks,
Joy

Re: -Achilles Tendon

2008-05-27 04:51:28

Hi Maureen,
I have achillies tendonitis as well. between the tendonitis and PA I
have bone loss in my ankle.
I am on steroids and that seems to help the tendonotis as well as th
PA. I also went to PT last year and that helped as well, but not as
well as the steroids. One exercise that my PT told me about is doing
the alphabet with my feet. I put a pillow under my shines and I write
the letters A-Z with my feet up in the air. It streches out the
tendon. I do this every morning and it seems to help. I also ice my
ankles every night. My Othopedist said feels the surgery is too
risky. I know it is very painfull, good luck
-Shari

Re:Improve Motion and Regain the Use of Your Arm Again

2008-05-26 21:46:49

Hi all,
For what it is worth - A few years ago I awoke with a 'frozen shoulder'. Not
knowing what to do about it, I did a google search and found a website that
informed me that I should increase my Vitamin B12 and also to take glucosamine
sulphate. I purchased a bottle of Enzymatic Therapy's GS500 and within a few
days of taking this I was able to use my arm again although in a limited fashion
- no movement above shoulder height. But two weeks into using the supplement
and giving myself 1cc of B12, my shoulder returned to normal and has been fine
ever since. Unfortunately I did not print out the article I read this
infomation on and a few months later my computer crashed and I lost the
reference. I have been trying to locate it since then, but am assuming now that
it is no longer on the internet. I hope this will help others as it helped me.
Carol_DM

RE: [PsoriaticArthritis] from Fran to Karen (Idaho).

2008-05-26 16:39:08

Dear Karen, thanks for thinking of me. I do think my back is letting up a
little, but a lot depends on the time of day you actually ask me that
question.lol. I saw my rheumy today who put me on Voltarn, which I hope,
helps my back some as well as the PA. He was glad I'm down to 11mg on the
predinsone, that's the lowest since I started this darn drug 3 years ago. I
'll be thrilled to get off of it for good. I just hope I can take the
inflammation in the mean time. Thanks again for taking the time to email
me. It means a lot. Love, Fran.
--Original Message-----
From: Karen Reed [mailto:kjreed0929@...]
Sent: Thursday, January 13, 2005 3:04 PM

Re: [PsoriaticArthritis] For Karen

2008-05-26 15:01:06

Hi Karen,
Seems we have a lot in common ~ and I will absolutely hug my bro ~ and tell him
how much he means to me. Although we are very different (he being outgoing and
almost obnoxious and me being very shy), we have always been there for each
other. All this said, I am very sorry to hear about your brother ~ our lives
here on this planet are very short and with that I attempt to find the good and
beautiful in each day (often I fail, but often I succeed) and loved ones are at
the top!!
Oh, and my Dad's name is Harry ~ so we have the Kar, Ker, Har thing too.... :)
I of course don't let my mom off until she comes up with my actual name, and
sometimes she'll reply with "you know who I'm talking to, I'm looking right at
you..."
Best wishes,
Karen (Idaho)

Pain tips for Susan

2008-05-26 02:38:35

Thanks Fran for the pain tips ~ I hadn't read them before!! A good thing to
share with those we love ~ and love us!!
:)
Warm Wishes,
Karen (Idaho)

Re:Digest Number 4073

2008-05-25 22:43:09

Discussion on the use of long term low dosage of antibiotics for the treatment
of auto-immune diseases such as Scleroderma, LupRe: After a knee replacement
Hi I have had both knees replaced between 40 and 45 and yes they are painful but
in my opinion the pain, even though it lasts between 3 and 6 months it has been
far better than the pain and inability to get around. It is now 2 years since my
last and it is the first time in 9 years that I have been able to return to work
and work involves stairs. I must say a pool for hydrotherapy and an excellent
physio made my journey much better.
Hope this helps.
Feel free to email me.
Regards
Julie
Townsville Queensland Australia

Supplements and Sleeping - For Becky

2008-05-25 13:16:43

I've been on it for awhile not also, and my memory stinks. I just chalked
it up to all the meds I take. My worse problem is names. But I now write
everything down rather then relying on my memory. Dick thanks for the
heads up. I'll talk to my Rheumatologist about it.
Becky
_____
From: Shar Sackett [mailto:sharsackett@...]
Sent: Friday, January 14, 2005 11:04 AM

Re: [PsoriaticArthritis] Yoga...

2008-05-25 07:10:01

Hi Janet,
Just a little more information on yoga...
Often yoga used with a chair or numerous props is called "Restorative Yoga" ~
the goal is to use props (such as chairs, blocks, bolsters, blankets, etc.) so
you are never in a position that strains or hurts. A friend of mine used to say
after this type of yoga class, that her body felt like she had just had a
massage...
If you've never done yoga, I do think it is very helpful to work with a teacher
or instructor first ~ being careful to explain to them all the health issues you
face and they can help you set up a practice that won't hurt you... That said,
if that is not possible, videos and books are a great help.
I found a wonderful book: The Woman's Book of Yoga and Heath, by Linda Sparrowe
which outlines different poses for different health issues. There is a long
segment which is solely restorative yoga poses (and remember you should never
push, go only as far into the pose as is comfortable and if you are not able to
do a pose, just skip it). There are also routines for caring for your back,
osteoporosis, improved digestion, etc...
Warm Wishes,
Karen (Idaho)

PSORIATIC ARTHRITIS NEWSLETTER NO. 80

2008-05-25 05:55:19

PSORIATIC ARTHRITIS NEWS AND VIEWS
VOLUME- 5 ISSUE- 01
January 15, 2005
PSORIATIC ARTHRITIS MEDICAL NEWS
TOP TEN NEWS STORIES OF 2004
FDA Orders Review of Celebrex, Bextra & Aleve
Drugs For US By Way Of Canada?
Loosening the Belt on Flu Vaccine
FDA Knew Antidepressant Danger to Kids
Experts: PSA Test Still Valuable for Prostate Cancer Screening
Breast Cancer, Now Which Drug?
Christopher Reeve & Spinal Cord Injury
The "Skinny" On Weight Loss Plans
Update on Cholesterol Guidelines
Latest Rabies Death From Transplant
Vioxx, Celebrex Furor Tops Health News for '04
Imported drugs, flu vaccine shortage were other big issues this year
Dec. 30 By E.J. Mundell HealthDay Reporter (HealthDayNews)
For years, Americans turned to the blockbuster drugs Vioxx and Celebrex for
relief from chronic pain. But as 2004 ends, Vioxx is no longer on the market
and the future of Celebrex remains unclear.
The tattered reputation of the cox-2 inhibitor class of analgesics not only
left millions without their preferred method of pain relief, it also prompted
criticism of the role -- even the integrity -- of the U.S. Food and Drug
Administration, making the drug debacle the year's top health news story.
Other stories vied for that top spot, however -- this fall's flu vaccine
shortage, an impassioned election-year debate over stem cell research, and new
warnings from the FDA on heightened suicide risks in children taking
antidepressants.
Here are the Top 10 health stories for 2004, as determined by HealthDay
editors:
Vioxx, Celebrex Lose Their Luster. The billion-dollar blockbuster drug Vioxx
fell first, with maker Merck & Co. withdrawing it from the market in
September after data linked long-term use of the medication with increased
cardiovascular risk. Earlier this month, similar findings surfaced regarding
Pfizer's
Celebrex, although that drug remains on pharmacy shelves. Cardiovascular
concerns have also put the spotlight on a popular over-the-counter cox-1
inhibitor, Aleve. The FDA ordered a review of trial data on Celebrex and a
third
cox-2, Bextra, while battling its critics. Those include agency "whistleblower"
Dr. David Graham, who claimed the FDA pressured him to downplay results of a
study reviewing the safety of Vioxx.
More Americans "Import" Drugs From Canada. The Bush administration this week
said the importation of cheaper prescription drugs from Canada would offer
U.S. consumers little, if any, cost savings. Consumers may not be listening,
however -- experts estimate that Americans this year spent more than $1.4
billion on drugs from foreign pharmacies. And in August, Illinois Governor Rod
Blagojevich led what amounted to a states-rights rebellion, announcing plans to
grant citizens online access to pharmacies in the United Kingdom and Canada,
even as President Bush expressed doubts about the safety of foreign drugs.
U.S. Flu Vaccine Supply Falls Short. In early October, federal health
officials announced that the nation's supply of flu vaccine had been slashed by
nearly half after a key manufacturer detected bacterial contamination in this
year's batch. State and federal officials scrambled to make up the difference,
securing additional -- but not nearly enough -- vaccines from other sources.
In the meantime, distribution of available vaccine remains restricted to
those aged 50 and older, small children, pregnant women, and those with chronic
health conditions.
Antidepressants' Link to Child Suicide Prompts Warning. After a series of
emotional public hearings in Washington, D.C., the FDA in October followed the
advice of two advisory committees and slapped a tough "black box" warning on
antidepressants such as Prozac and Zoloft, warning doctors to watch for signs
of suicidal behavior in pediatric patients. FDA commissioner Dr. Lester
Crawford stressed, however, that the drugs also provide "significant benefit"
to
many depressed children.
Pioneer Researcher Casts Doubt on PSA Test. It's been a health-care staple
for older men for years -- the annual PSA blood test, used to detect prostate
cancer. But in May, Dr. Thomas Stamey, the researcher who first identified
the screen, said 20 years of data suggest the test "is no longer finding
significant cancers." Other experts believe the test is still useful in
detecting
early malignancies, and the American Cancer Society continues to recommend PSA
screening for men over 50.
Good News, Bad News For Breast Cancer. Women battling breast cancer had some
reason to cheer in '04: Researchers found the drug Arimidex (anastrazole) to
be significantly more effective than the "gold standard" medication,
tamoxifen, at keeping breast cancer survivors cancer-free over the long term.
On the
down side, new research found that hormone replacement therapy -- already
blamed for raising risks for breast cancer -- might also make tumors harder to
detect on mammogram.
Reagans, Reeve Re-Energize Stem Cell Debate. Microscopic embryonic stem
cells became powerful players in the 2004 election cycle, with Nancy Reagan and
Ron Reagan Jr. breaking ranks with the Republican Party to issue impassioned
pleas for their use in research into Alzheimer's and other illnesses. Weeks
before his death in October, actor Christopher Reeve appeared alongside
Democratic presidential nominee John Kerry, asking for similar action. In
California, at least, Reeve and the Reagans got their wish: Voters there said
"yes" to
a ballot earmarking $3 billion in state funds for embryonic stem cell
research.
Low-Carb Craze Crumbles. It has been a long, pasta-free run, but America's
fixation with low-carbohydrate regimens may finally be past its peak. In
February, nearly one in 10 (9.1 percent) of all Americans said they shunned
carbs
on a regular basis. But in a poll taken just before Christmas, that
percentage had dropped by nearly half, to just 4.9 percent. And a study
released this
month found that of the nation's 10 most popular diet regimens, only Weight
Watchers keeps the pounds off over the long term.
Cholesterol Busters Get A Boost. In July, the nation's leading consortium of
experts on cholesterol control issued new guidelines recommending that
patients use even higher doses of statin medications such as Lipitor or
Pravachol,
to help lower levels of vessel-clogging fats. The recommendations also
encourage healthy diet and exercise -- especially timely, with U.S. health
officials this year labeling obesity as one of the country's major killers.
Tougher Transplant Rules After Rabies Deaths. This summer, doctors at Baylor
University Medical, Dallas, announced that four transplant patients had died
from rabies after receiving organs and tissues from a donor infected with
the disease. The Texas deaths prompted officials at the FDA to tighten rules
governing "good tissue practice." The new guidelines should help reduce
contamination and improve the labeling and distribution of transplant
materials.
© 1996-2004 MedicineNet, Inc. All rights reserved. Copyright and Legal
Disclaimer.
***********************************************************
ARTHRITIS OVERVIEW - HOW THE JOINT WORKS - HOW ARTHRITIS AFFECTS THE JOINTS
- Reviewed by Harvard Medical School
We all have mornings when we wake up a bit stiff. We all know the achy
feeling that comes from working too hard in the garden, sitting too long at the
computer or sleeping in an awkward position. And, from time to time, we have all
suffered pain because we've lifted a heavy object in a slightly wrong way.
Even a particularly ferocious sneeze can cause a twinge of discomfort. But
arthritis goes far beyond these occasional aches and pains.
The condition that we commonly refer to as arthritis includes a number of
diseases that result in inflammation, pain and stiffness, primarily in the
joints and connective tissues. Connective tissues are the supporting structures
for joints, such as muscles, cartilage, ligaments and tendons. In many cases,
these diseases affect other parts of the body as well. Arthritic disorders may
be are chronic, but some, such as gout, are intermittent. The conditions
that are truly inflammatory (that is, with actual joint inflammation present)
cause warmth and swelling, whereas others are degenerative, in which cartilage
lining the joint wears out and the amount of inflammation is minor.
How The Joint Works
The ends of bones meet at the joint, where they are cushioned by cartilage,
a layer of smooth pliable tissue. Around many of the larger joints, such as
the knee, hip and shoulder, there is a pad-like sac or cavity called the
bursa, which is lined with cells similar to those lining the joint. In addition
to
acting as a buffer to reduce friction between the muscle, tendon tissue and
bone, this inner lining produces a fluid, synovial fluid, that keeps the
joints lubricated and provides nutrients. Ligaments connect and support bones
to
keep them in proper alignment, whereas tendons connect muscles to bones.
Joints move when a muscle on one side of a joint contracts and pulls on the
tendons that attach to a bone on the other side of the joint.
How Arthritis Affects The Joints
The word arthritis means joint inflammation. Inflammation, a natural part of
the body's response to injury and infection, is a complex process that
produces swelling, pain, warmth and redness. But inflammation is not only a
response to injury, it may perpetuate injury as well. Significant problems
arise
when inflammation is persistent, intense or recurrent or spreads to other areas
of the body.
Joints and the surrounding areas become inflamed for a number of reasons,
including trauma, disease, infection or merely wear and tear, which naturally
occurs over time. Many forms of arthritis are thought to result from the
uncontrolled inflammation of an autoimmune disease, in which the body's defense
mechanism malfunctions and attacks its own tissues. At other times, the joint
area becomes inflamed and tender for no apparent reason.
When joints become arthritic, swelling causes stiffness, rigidity and tissue
damage. Pain, which is the body's signal that something is wrong, occurs as
the joint is moved to the brink of its own limits. As mobility decreases, the
muscles surrounding the joint also weaken, allowing for further injury to the
joint. Over time, the cartilage breaks down, the bone erodes and the joints
become misshapen. It is this process, regardless of the source, that may
develop in the worst forms of arthritis.
There are more than 100 different types of arthritis, and each has its own
characteristic symptoms and its own course. In addition, the way in which the
disease progresses varies from individual to individual. If you suffer from an
arthritic condition, you will most likely experience pain and limited
movement at the involved sites. In chronic forms of arthritis, there may be
times
when the disease is active (flares) and times when it is inactive (remission).
Depending on the specific condition and how severe it is, arthritis can
interfere with even the most ordinary activities, such as walking, dressing or
bathing. In the most inflammatory types of arthritis, such as rheumatoid
arthritis, pain and stiffness are more severe in the morning or on certain days.
Sometimes symptoms disappear completely for considerable stretches of time,
only to flare up again later.
Reviewed by Harvard Medical School
******************************************************
NSAID PAIN DRUGS INJURE SMALL INTESTINE
Among Daily Users of Aspirin-Like Drugs, 71% Have Small Intestine Injury
Jan. 5, 2005 -- More than 70% of people who take daily doses of aspirin and
similar drugs, sustain small bowel injuries, a new study shows.
But don't throw your pain pills or baby aspirin out the window. Most of
these injuries are small -- and it's not at all clear whether they mean trouble.
On the other hand, some of these injuries may be serious.
The drugs are called "traditional" NSAIDs to distinguish them from the newer
NSAIDs known as Cox-2 inhibitors. There are around 20 traditional NSAIDs,
including aspirin, ibuprofen (Advil and Motrin), naproxen (Aleve), indomethacin
(Indocin), and piroxicam (Feldene).
The findings come from a study led by David Y. Graham, MD, head of
gastroenterology at Michael DeBakey Medical Center, and professor of medicine at
Baylor College of Medicine in Houston. Graham and colleagues used a tiny new
"pill
camera" to look inside the small intestines of 21 men and women who used
NSAIDs every day and 20 people who did not use the drugs. None of the people in
the study had any symptoms of small intestine problems.
They found that 71% of the traditional NSAID users had some damage to their
small intestines, compared with 10% of the nonusers. Five of the traditional
NSAID users had large erosions or ulcers -- a problem not seen in any of the
nonusers. The findings appear in the January 2005 issue of Clinical
Gastroenterology and Hepatology.
"Our study looked only at asymptomatic people, so we couldn't say anything
about the meaning of the damage," Graham tells WebMD. "The fact is, there is
damage that does extend down into the bowel. Mostly these are little erosions
that will heal without any problem. But some patients had big lesions. One
would expect that the size and number of lesions would be important, but we
have
not yet shown this. The number of ulcers was small."
Meaning of Small Intestine Injuries Not Clear
Graham notes that his study was too small to show whether the traditional
NSAID injuries would ever cause problems. However, the findings do indicate
many cases of unexplained blood loss and other symptoms may be due to long-term
use of traditional NSAIDs.
"What does this mean? It can't mean nothing," Graham says. "But we may find
out these [unexplained symptoms] are not due to the kinds of injuries we see
here."
Graham's study doesn't prove that the small intestine injuries linked to
traditional NSAIDs cause clinical problems, says James M. Scheiman, MD,
professor of gastroenterology at the University of Michigan.
"Traditional NSAIDs do damage the small intestine," Scheiman tells WebMD.
"We have known that taking these drugs injures the gut. The question is, what
does it mean? It is likely that those with the most damage as seen by this pill
camera will get symptoms. It is possible; it is fairly likely, but we
actually don't know that yet."
Scheiman notes that small intestine injury linked to traditional NSAIDs
isn't as dramatic as the stomach bleeding seen in a small proportion of those
who
take the drugs. Indeed, Graham notes that traditional NSAIDs cause problems
in a small but significant percentage of people. However, that has to be
balanced against the great good that they do.
"People take these drugs because they get such benefits," Graham says.
"Before we had them, if you had pain, you had pain. Now people with chronic
arthritis pain can walk and go back to work."
Graham argues that some traditional NSAIDs are much safer than others.
"Feldene is always leading the list of NSAIDs linked to problems," he says.
"The less-dangerous ones are ibuprofen or naproxen. But NSAIDs are remarkable
for their ability to cause damage. Some shouldn't even be on the market. Now
we can do studies to find which ones we should eliminate."
Scheiman echoes Graham's warning. "People shouldn't use NSAIDs willy nilly,"
Scheiman says. "One of my areas of concern is the widespread use of aspirin.
A lot of the patients in the Graham study were just on low-dose aspirin."
SOURCES: Graham, D.Y. Clinical Gastroenterology and Hepatology, January
2005; vol 3. David Y. Graham, MD, head, gastroenterology, Michael DeBakey
Medical
Center and professor of medicine, Baylor College of Medicine, Houston. James
M. Scheiman, MD, professor of gastroenterology, University of Michigan, Ann
Arbor. WebMD- All Rights Reserved
***********************************************
EXPENSIVE MEDS BEST FOR RHEUMATOID ARTHRITIS?
High-Priced Remicade Shows Promise in Newly Diagnosed Patients, Study Shows
By Miranda Hitti WebMD Medical News Reviewed By Brunilda Nazario, MD
Jan. 10, 2005 -- Newly diagnosed rheumatoid arthritis (RA) patients may get
the most benefit from effective but high-priced medications, a British study
shows.
An autoimmune disease, RA is a leading cause of disability. It involves
inflammation of joints and surrounding tissues. Over time, rheumatoid arthritis
can destroy joints' cartilage, ligaments, tendons, and bone. In some cases, it
can also damage the body's organs.
Drugs are available to treat rheumatoid arthritis. But some of the newest,
most effective medications are costly. In fact, they're so expensive that it's
not practical for most patients to take them for a lifetime. Remicade's
annual tab is $12,000 for an average of eight treatments, according to the
National Psoriasis Foundation.
That weighed on the mind of British researcher Mark Quinn, MBChB, MRCP. He
worked with colleagues from England's Leeds General Infirmary to look for ways
to reap the drugs' benefits without going broke. Their study appears in the
January issue of Arthritis & Rheumatism.
Quinn focused on two drugs: methotrexate and Remicade. Since there is no
cure for rheumatoid arthritis the goal is to treat the disease early to prevent
disabling pain and permanent damage to joints.
Methotrexate is the mainstay of rheumatoid arthritis treatment. Originally
prescribed as a cancer chemotherapy drug, methotrexate is used in lower doses
to attack the overactive immune system cells that damage joints in RA.
Remicade is a newer drug and tames the inflammation associated with RA by
targeting a protein called tumor necrosis factor. Remicade is usually taken with
methotrexate. Both methotrexate and Remicade can slow progression of RA.
Remicade and the similar drug Enbrel have also had success against other
inflammatory conditions including Crohn's disease, ankylosing spondylitis,
psoriasis, and psoriatic arthritis, say the researchers.
The study was small, with 20 newly diagnosed rheumatoid arthritis patients.
They were about 52 years old, with symptoms present for less than a year
before the study began.
All participants received methotrexate. In addition, half took Remicade
along with methotrexate. The remaining participants received a placebo instead
of
Remicade. They were not aware if they were receiving Remicade or a placebo.
Participants took their drugs for a year.
After a year, everyone had improved to some degree. MRI scans showed a
significant reduction in joint problems.
But relief came faster, lasted longer, and improved life more for the
Remicade group. Their MRI scans showed no new signs of joint erosion after a
year.
They also had greater gains in function and quality of life, starting at 14
weeks and lasting throughout the study.
Treatment with Remicade resulted in a rapid decrease of the blood
inflammatory marker C-reactive protein (CRP), which indicates decreased
inflammation
and less potential for joint damage.
Those improvements didn't vanish overnight. Function and quality-of-life
improvements lasted a year after the patients had stopped taking the drugs.
That surprised the researchers. Previous studies showed that rheumatoid
arthritis quickly reared back up when patients stopped taking drugs like
Remicade, they say.
Larger studies are already underway to double-check the results. While the
findings need confirming, they indicate that early treatment with Remicade and
other similar drugs may be the best option.
SOURCES: Quinn, M. Arthritis & Rheumatism, January 2005; vol 52: pp 27-35.
National Psoriasis Foundation, "Remicade." WebMD Medical Reference from
Healthwise: "Rheumatoid Arthritis." WebMD Medical Reference from Healthwise:
"Rheumatoid Arthritis -- Medications." News release, John Wiley & Sons, Inc.
**************************************************
NEW REMICADE WARNING
Arthritis, Crohn's Disease Drug Linked to Rare but Deadly Liver Failure
By Daniel DeNoon WebMD Medical News Reviewed By Michael Smith, MD
Dec. 23, 2004 -- Remicade is linked to rare but sometimes deadly liver
reactions, drug maker Centocor and the FDA announced Wednesday.
Remicade is approved to treat rheumatoid arthritis and Crohn's disease.
In a "Dear Healthcare Professional" letter, Centocor is warning doctors that
patients treated with Remicade have developed acute liver failure and other
liver problems, including jaundice.
Some patients died or required liver transplants to save their lives. The
liver reactions occurred two weeks to more than a year after Remicade treatment.
Lab tests for abnormal liver enzymes -- a standard test for liver trouble --
did not always predict these liver reactions.
These events appear to be quite rare. They've been reported in 3 patients
before Remicade approval, and in 35 patients worldwide since the drug has been
approved. In that time, some 576,000 patients have been treated with Remicade.
Remicade works by suppressing the immune system. That's helpful to patients
whose overactive immune reactions underlie their rheumatoid arthritis, Crohn's
disease, or ankylosing spondylitis. But it can also be a problem. Remicade
treatment has been previously linked to serious infections including
tuberculosis. Some of these infections have been fatal.
The Centocor letter also notes that a warning about risk of pneumonia has
been added to the Remicade label.
Liver Failure Symptoms
Patients taking Remicade should be aware of symptoms of liver damage or
failure, which include:
Nausea
Loss of appetite
Fatigue
Diarrhea
Jaundice
SOURCES: FDA. WebMD Medical Reference in collaboration with The Cleveland
Clinic: Liver Failure.
*************************************************
ANTIBIOTIC RESISTANT SUPERBUG ON THE RISE
More super bug infections seen in ER patients NEW YORK (Reuters Health)
Among patients treated at urban public hospital emergency rooms for skin and
soft-tissue infections, more and more often the cause appears to be the
antibiotic-resistant 'super bug' known as MRSA, new research shows.
MRSA -- methicillin resistant Staphylococcus aureus -- is not killed by
penicillin-type drugs, so these kinds of antibiotics can no longer be considered
standard treatment for wounds and abscesses, Dr. Bradley W. Frazee and
colleagues suggest in the Annals of Emergency Medicine.
Frazee's team at Alameda County Medical Center in Oakland, California,
obtained cultures from 137 patients who came to their emergency department with
such infections.
Staph aureus was identified in 119 infection sites, and the bacterium was
the methicillin-resistant type in 75 percent of cases, the authors report.
Overall, MRSA was present in 51 percent of infection site cultures.
However, the bug could be knocked out by other types of antibiotics -- for
example, 100 percent of the specimens were susceptible to vancomycin and 94
percent were susceptible to clindamycin.
So, these antibiotics may be a more appropriate first choice for treating
skin and soft tissue infections, if MRSA is common in the region, Frazee and his
colleagues advise. SOURCE: Annals of Emergency Medicine
Copyright © 2004 Reuters Limited. All rights reserved. © 1996-2004
MedicineNet, Inc. All rights reserved.
****************************************************
FDA APPROVES NEW DRUG FOR SEVERE PAIN - WASHINGTON (AP)
The government approved a drug Tuesday that offers a new way of fighting
severe pain -- an option for patients who no longer benefit from morphine and
other traditional pain medications.
It's the first in a new class of drugs that selectively blocks the nerve
channels responsible for transmitting pain signals. It will be marketed as
Prialt and should be available by the end of January.
"When you've taken all the kinds of pain medication that there is and you
still have pain, that is a very frightening situation," said Dr. Lars Ekman,
president of research and development for the drug's Ireland-based manufacturer,
Elan. "When you have that kind of pain, there is nowhere to go."
The drug is part of a new class known as N-type calcium channel blockers. It
is known chemically as ziconotide.
Morphine is the standard treatment for severe pain from cancer, AIDS,
amputations and other significant illnesses, but its effects eventually wear off
and the dosage must be increased. At some point, many patients switch from
taking medication by mouth or by injection to a microinfusion pump implanted
under the skin that delivers drugs directly into the fluid surrounding the
spinal
cord.
Ekman said about 35,000 to 50,000 Americans have these pumps now. The Food
and Drug Administration approved Prialt for patients who are already using
these pumps but not getting effective relief from them or who cannot tolerate
the
available treatments.
This is the first new drug in 20 years to treat pain using such a pump.
Prialt has been studied in patients with cancer, AIDS and other chronic
pain, such as back pain. More than 1,200 patients took part in three clinical
trials.
There are side effects, and the FDA was including a "black box" warning --
the government's strongest warning short of a ban. Side effects may include
dizziness, drowsiness and altered mental status, with patients confused at
times.
Despite the side effects, the drug was approved because there are no other
options for these patients and the benefits outweighed the risks, said Dr.
Robert Meyer, director of the FDA's Office of Drug Evaluation II.
"Because this is such an important patient population where they have such
pain and they have so few options we felt this drug does offer some real
gains," he said.
Patients with a history of psychoses should not receive it, and all others
should be monitored for signs of cognitive impairment, he said.
The idea for the drug came from a snail called the Conus magus that lives in
the South Pacific, which paralyzes its victims with venom after capturing
them, the company said. Researchers set out learning how to develop a drug based
on this venom and eventually copied the amino acid sequence. Elan would not
say how much it plans to charge for the drug. Copyright 2004 The Associated
Press. All rights reserved.
***********************************************
50 & OLDER, GET MOVING - EXERCISE CUTS HEART, DIABETES RISK FACTORS
Program reduces incidence of metabolic syndrome By Ed Edelson - Healthday
News
Regular exercise can reduce the incidence of a deadly combination of risk
factors for heart disease and diabetes in middle-aged and older people.
A six-month program of aerobic exercise and weightlifting lowered the rate
of this combination, called metabolic syndrome, by 41 percent in 104 people
aged 55 to 75, according to a report in the January issue of the American
Journal of Preventive Medicine.
Metabolic syndrome is defined as having three or more of six major risk
factors for cardiovascular disease: obesity, high blood cholesterol levels, high
blood pressure, high blood sugar readings, a tendency to form blood clots, and
high blood levels of C-reactive protein, a marker of inflammation.
When the study began, 43 percent of participants had metabolic syndrome,
although none had cardiovascular disease. Half were simply given a booklet that
encouraged increased activity such as walking, while the others were assigned
to a program of supervised exercises, three 60-minute sessions each week.
"We followed the guidelines of the American College of Sports Medicine,"
said study leader Kerry Stewart, a professor of medicine at Johns Hopkins
University School of Medicine. "It was a combination of aerobic exercises such
as
walking, swimming and jogging, as well as weightlifting."
After six months, there were no new cases of metabolic syndrome in the
exercise group, and nine of them no longer had the syndrome. While the syndrome
was no longer present in eight of the people in the sedentary group who had it
at the start, four new cases were diagnosed in that group.
While tests showed substantial improvement in fitness, such as peak oxygen
uptake, "the changes in disease risk factors with exercise training were more
closely related to reductions in body fat, particularly in abdominal fat, and
increases in muscle tissue," Stewart said.
The kind of exercise program in the study can easily be done by anyone
without supervision, he said. "You can do brisk walking or bicycling on your
own,"
he said. "You can also work with things like hand-held weights at home."
The weightlifting part of the program had participants in a 20-minute
session in which they did two sets of 12 to 15 lifts each, with weights tailored
to
individual ability.
"They did resistance exercises, which we now recommend for everyone," said
Dr. Gerald Fletcher, a cardiologist at the Mayo Clinic in Jacksonville, Fla.,
and a spokesman for the American Heart Association. "Weightlifting, carefully
done, is something we recommend more and more along with aerobic exercises."
But "carefully" is the keynote, especially for older and sedentary people,
Fletcher said, because of the possibility of injury to unused muscles. Exercise
programs are best when tailored to an individual's abilities, he said.
"Initially, it might be better to have someone teach you how to exercise,"
Fletcher said. "Getting a trainer might be worth it, or getting someone to give
you a personalized exercise program."
SOURCES: Kerry Stewart, Ed.D., professor, medicine, Johns Hopkins University
School of Medicine, Baltimore; Gerald Fletcher, M.D., cardiologist, Mayo
Clinic, Jacksonville, Fla.; January 2005 American Journal of Preventive
Medicine
© 1996-2004 MedicineNet, Inc. All rights reserved
************************************************
44% OF AMERICANS TAKE PRESCRIPTION DRUGS
CDC report says rates have increased over the past 16 years
WASHINGTON - More than four in 10 Americans take at least one prescription
drug and one-in-six takes at least three, the government reported Thursday.
âAmericans are taking medicines that lower cholesterol and reduce the threat
of heart disease, that help lift people out of debilitating depressions, and
that keep diabetes in check,â Health and Human Services Secretary Tommy G.
Thompson said in a statement.
The annual report on Americansâ health found that just over 44 percent of
all Americans take at least one prescription drug, and 16.5 percent take at
least three.
Those rates were up from 39 percent and 12 percent between 1988 and 1994,
the Centers for Disease Control and Prevention reported.
The report, âHealth, United States 2004,â presents the latest data
collected by the CDC, the National Center for Health Statistics and dozens of
other
Federal health agencies, academic and professional health associations, and
international health organizations.
Americansâ life expectancy increased to 77.3 years in 2002, a record. And
deaths from heart disease, cancer and stroke â the nationâs three leading
killers â are all down 1 percent to 3 percent, the analysis said.
Health spending up 9 percent
The study also found that spending on health climbed 9.3 percent in 2002 to
$1.6 trillion.
Prescription drugs, which make up about one-tenth of the total medical bill,
were the fastest growing expenditure. The price of drugs rose 5 percent, but
wider use of medicines pushed total expenditures up 15.3 percent in 2002.
Drug expenditures have risen at least 15 percent every year since 1998.
The report said prescription drug use was increasing among people of all
ages, and use increases with age.
Nearly half of all women were taking prescription drugs â 49 percent â
compared to 39 percent of men.
Usage peaked at 84 percent for people aged 65 and over, with the top rate at
89 percent for black women over 65.
Even for people under age 18, however, nearly one-fourth â 24.1 percent â
were taking at least one prescription medication. The rate rose to 34.7 percent
between age 18 and 44; for those ages 45 to 64, it was 62.1 percent. © 2004
The Associated Press. All rights reserved.
************************************************
POSSIBLE MARKER FOR OSTEOARTHRITIS FOUND
High levels of hyaluronic acid pointed to joint trouble
Jan. 11 (HealthDayNews) -- Scientists have identified a possible biomarker
to predict osteoarthritis (OA), says a study in the January issue of Arthritis
& Rheumatism.
The study of blood samples from 753 white and black American men and women
found a strong association between high levels of hyaluronic acid and severe
knee and hip arthritis. Hyaluronic acid is a component of connective tissue
that's widely distributed throughout the body and plays an important role in
joint function.
Researchers from the University of North Carolina at Chapel Hill and Duke
University Medical Center found that hyaluronic acid levels were higher in
people with more severe OA and with OA in more than one joint.
The study found no independent links between high hyaluronic acid levels and
other health problems seen in the OA patients, such as high blood pressure,
diabetes, cancer, chronic pulmonary disease, or persistent liver, kidney,
prostate or bladder conditions.
Gout was the only condition that showed a sustained independent association
with elevated hyaluronic acid (HA) levels. Like osteoarthritis, gout causes
joint inflammation and damage.
"The results of this study suggest that serum HA measurements are useful for
assessing overall OA load. The lack of independent associations of serum HA
levels with several comorbid conditions commonly associated with OA further
supports its promise in the study of OA," study co-author Dr. Alan L. Elliott,
of the Thurston Arthritis Research Center at the University of North Carolina
at Chapel Hill, said in a prepared statement.
It's hoped that early identification and intervention can improve outcomes
for people with OA, a common cause of pain and disability among older
Americans. Knee OA affects up to 6 percent of older Americans and hip OA
affects about
another 3 percent.
Robert Preidt - SOURCE: John Wiley & Sons Inc., news release, Jan. 7, 2004
Copyright © 2005 ScoutNews LLC.
**********************************************
Welcome to 2005 and the 5th year of our newsletter. This year has started
with a great deal of confusion and uncertainty about many of the drugs we take.
As new developments become known, I will publish any and all findings in the
newsletter. The FDA and its Arthritis Advisory Committee is scheduled to
meet February 16-17 to review all NSAIDS, Cox-2âs, etc.
Good Health to All,
Jack Nicholas
Newsletter Editor
_Cornishpro@..._ (mailto:Cornishpro@...)
Issue 2005-01 01/15/05

Supplements and Sleeping - For Becky

2008-05-24 18:45:22

Okay, so I know this isn't a very helpful e-mail, but when I read your
experience with trazadone I had to laugh out loud ~ because while I've never
taken that drug ~ the description of getting up and forgetting why or where I
was headed, has always happened to me...
I guess mine is due to me being blonde ~ well, Strawberry blonde...
:)
Karen (Idaho)

Re: Pain tips for Susan

2008-05-24 15:52:46

--- Thank you Fran, this is an imformative list. I will post it in

mobic

2008-05-24 04:44:03

Hi Everyone,
I was wondering if anyone here was taking Mobic?
Results and such..My first visit to the rheumy was Wed.
Still going through test and no results as yet..Wish me luck!
Carol McKenzie

Supplements and Sleeping - For Becky

2008-05-24 03:02:54

Oh my God, Dick. I've been on Trzadone for about 6 years. I also have short
term memory loss. Are you sure the trazadone causes that?
Thanks, Shar

Re: [rheumatic] After a knee replacement

2008-05-24 00:58:15

Monique,
I also only know older people who had knee replacement. From them I learned
that knee replacements are a lot more painful and take longer to to recover
from than hip replacements. Physical therapy is a must, even through the
pain, for a good outcome. Looking back, people say it was worth it,
although I have a friend who's mom (in her 80's) decided to rather confine
herself to a wheelchair than go through physical therapy. I wish doctors
were more up front with letting people know what they are in for regarding
recovery. Yes, there are individual differences and nobody can predict how
an individual person will respond, but patients should have an idea what to
expect. Not knowing makes things worse, because you don't know if you are
on track, or if something is going wrong. Anxiety about that does not
promote healing either. I have a friend who ask the surgeon what he would
be able to do soon after neck surgery. The surgeon told him he could do
anything he felt like doing. So my friend went ahead and consented to the
surgery and was laid up for a year....not feeling up to doing much of
anything because of the pain! He felt betrayed.
I would recommend you get as much information about your condition. I find
nurses much more helpful than doctors. Your physical therapist may be more
forthcoming, too. Physical therapists deal with recovery more than doctors
who are more focused on the procedure than it's aftermath. Make sure you
get pain meds you need so see you through and line up support for daily
life for a while. Healing can't be rushed.
Take care,
Ute

Re: Finally I have some answers!

2008-05-23 19:05:29

Hi,
in response to your question, i can't say why bone spurs develop,
but in recent research i found the following information from
www.arthritis.ca (the canadian arthritis society website). under
the section for psoriatic arthritis the following is stated on this
site:
"the other common features of psoriatic arthritis include tendonitis
(swelling of the tendons) and enthesitis (pain and swelling at
sights where tendons and ligaments attach to the bone). Common
examples of these conditions are heel spurs, tennis elbow and
tendonitis of the Achilles tendon (cord at back of the heel)."
i hope this helps.
take care, karen

Re: [rheumatic] Tetracycline versus Minocycline

2008-05-23 08:15:01

Kamram, Minocycline is a derivative of the Tetracycline type of drugs.
Tetracycline must be given more often than Minocycline or Doxycycline another
drug
that came from the Tetracycline family. Carol Fisch, Adjunct Professor Emeritus
of Laboratory Science,
Researcher, Medical Laboratory Advisor for Tick Born illness testing and
education to others regarding Tick Born illness.
Well, versed in Microbiology, Immunology and Parasitology with an excellent
understanding of Cell Wall Deficient Organisms (CWD) . I give information and
learn from others every day.
In a message dated 7/8/07 1:45:29 PM Eastern Daylight Time,
kamran.jamshidi@... writes:
Hi all
I have a question about "tetracycline"I
In sweden, it seems that there is no minocin or minocycline among the
available anitibiotics, but only tetracycline.
Is there any advantage or disadvantage in taking that in comparison with
minocon/minocyclineI
Appreciate a knwolegdable advise.
Kamran

Pain tips for Susan

2008-05-23 06:26:09

Dear Susan, You made up my mind for me on the pain tips. I have been
hesitating posting them since I worry that people will get tired of seeing
them, but I think there are so many new people all the time, it wont hurt
to post them and people can always just skip reading them if they have
already seen them. I hope these help your situation. Its hard enough to
deal with all we do without having to fight our family along the way. Make
sure they see them. I posted mine on the refrigerator and everyone saw them
that way. I hope this helps some and let me know if I can help you in any
way. Love, Fran
1. People with chronic pain seem unreliable (we can't count on
ourselves). When feeling better we promise things (and mean it);
when in serious pain, we may not even show up. Pain people need
the "rubber time" (flexible) found in South Pacific countries and
many aboriginal cultures.
2. An action or situation may result in pain several hours later, or
even the next day. Delayed pain is confusing to people who have
never experienced it.
3. Pain can inhibit listening and other communication skills. It's
like having someone shouting at you, or trying to talk with a fire
alarm going off in the room. The effect of pain on the mind can seem
like attention deficit disorder. So you may have to repeat a
request, or write things down for a person with chronic pain. Don't
take it personally, or think that they are stupid.
4. The senses can overload while in pain. For example, noises that
wouldn't normally bother you may seem too loud or glaring.
5. Patience may seem short. We can't wait in a long line; can't wait
for a long, drawn out conversation.
6. Don't always ask "How are you?" unless you are genuinely prepared
to listen - it just points attention inward.
7. Pain can sometimes trigger psychological disabilities (usually
very temporary). When in pain, a small task, like hanging out the
laundry, can seem like a huge wall, too high to climb over. An hour
later the same job may be quite okay. It is sane to be depressed
occasionally when you hurt.
8. Pain can come on fairly quickly and unexpectedly. Pain sometimes
abates after a short rest. Chronic pain people appear to arrive and
fade unpredictably to others.
9. Knowing where a refuge is, such as a couch, a bed, or a
comfortable chair, is as important as knowing where a bathroom is. A
visit is much more enjoyable if the chronic pain person knows there
is a refuge if needed. A person with chronic pain may not want to go
somewhere that has no refuge (e.g. no place to sit or lie down).
10. Small acts of kindness can seem like huge acts of mercy to a
person in pain. Your offer of a pillow or a cup of tea can be a
really big thing to a person who is feeling temporarily helpless in
the face of encroaching pain.
11. Not all pain is easy to locate or describe. Sometimes there is a
body-wide feeling of discomfort, with hard to describe pains in the
entire back, or in both legs, but not in one particular spot you can
point to. Our vocabulary for pain is very limited, compared to the
body's ability to feel varieties of discomfort.
12. We may not have a good "reason" for the pain. Medical science is
still limited in its understanding of pain. Many people have pain
that is not yet classified by doctors as an officially
recognized "disease". That does not reduce the pain; it only reduces
our ability to give it a label, and to have you believe us.
* .

Enbrel, mtx and Infections

2008-05-23 01:19:12

HI - I was lucky enough to get to travel to relatives over the
holidays - taking my Enbrel and mtx along - but acquired an infection
about halfway through the visit. Getting back I stopped injections
and went on an antibiotic and 1 diflucan equivalent for a probable
case of cellulitis which presented itself in red lines, swelling, and
soreness in one breast (sorry fellows!) akin to years ago when I was
a nursing mother and had problems now and then. After the first day
things started to improve and I've finally gotten some energy back
this week. I now hear that I must wait 7 days after the final
antibiotic to start injections again. I suppose there is this
information in the archives, but I haven't followed this issue much
until now. Am worried that this will become a pattern of being on
and off the meds. Just thinking positively that I must continue to
try to be taking advantage of opportunities for exercise in the water
and so on and crossing my fingers.
Mary in WF

Re: [rheumatic] Minocin and Lupus?

2008-05-22 14:47:18

Hi all
I have a question about "tetracycline":
In sweden, it seems that there is no minocin or minocycline among the available
anitibiotics, but only tetracycline.
Is there any advantage or disadvantage in taking that in comparison with
minocon/minocycline?
Appreciate a knwolegdable advise.
Kamran

Re: Supplements and Sleeping - For Becky

2008-05-22 07:19:19

Hi Becky, I was on Trazadone for about 6 months before I really
noticed that my short term memory was being affected. I got off it
and went to Ambian for a couple of months but it wasn't really
helping that much so my Rheumatologist put me on Temazepam. Works
great but it is addictive like Ambian. If I forget to take it I lay
there all night tossing and turning.
Just wanted to let ya know of the side affect in case you start
having the same problem. I would get out of a chair and walk to the
other room and forget why I went in there?????? Not good! It got
to the point that by the time I got up, I couldn't remember whey??
Good luck with it
Dick

Re: [rheumatic] What was the specialized lab that does Lyme &amp; PCR disease testing?

2008-05-21 23:34:29

Thanks Dolores. Sorry! It was a lab that specialized in Lyme AND PCR testing.
Okay, so that's a P not a C. My bad. My understanding is that PCR tests
Myoplasmas, Lyme, Chlamydia Pneumonia (the respiratory infection not the std
one) etc...through PCR testing which is more accurate right? I have been tested
for Myoplasma and CP but not PCR method I dont think. What tests do people do
here for infections? I am trying to figure out which protocol to use...And what
is the name of the protocol where patients take mino, clydamidicin and flagyl? I
am debating between that one and the CAP, chlamydia pneuumonia because I tested
right on the border for C pneumoniae IgG Titer. They use Zithromax in place of
Clymidacin but also are on very different pulse. I get really confused though.
mike rosner <martysfolks2004@...
about Celiac? That starts with a "C". Lynne has celiac. Anything you want to
know about it, ask her. She's the expert on that. lynneandsantos@.... I
know there was another one on Lyme, but I don't follow it because as far as I
know I don't have Lyme disease, but she might know. Send her an e-mail. Dolores
Vicki <genuinelysweet2002@...
testing but I cant remember the name of it I think it began with a C & it was
something that we all need to get tested? Can't find that recent post.
Thanks!

Re: [PsoriaticArthritis] ear canal P

2008-05-21 20:03:40

Thank you Marilyn for that description, "cockroaches
dancing on your eardrums". I have had PA for at years
but I wasn't diagnoised until I broke out with P a
couple years ago. The past year I've had this
terrible thing going on in my ears that was about to
drive me crazy and when I've read some of the post I
was wondering if it could be P in my ears. Your
descriptions sure covers the sounds that I hear. This
disease causes enough madness. We don't need one more
thing to drive us to that point do we?
Mary

Re: [rheumatic] What was that web site address of that specialized lab that d...

2008-05-21 17:53:37

Did you mean Central Florida Research? The test they have is an antigen test,
which test for the organism itself. A physician or practitioner must order
the kit. Their web site is: _www.CentralFloridaResearch.com_
(http://www.CentralFloridaResearch.com) Carol
In a message dated 7/7/07 10:26:31 PM Eastern Daylight Time,
genuinelysweet2002@... writes:
And also there was some other testing but I cant remember the name of it I
think it began with a C & it was something that we all need to get tested? Can't
find that recent post.
Thanks!
************************************** See what's free at http://www.aol.com.

Re: [rheumatic] What was that web site address of that specialized lab that does Lyme disease testing?

2008-05-21 12:42:34

And also there was some other testing but I cant remember the name of it I think
it began with a C & it was something that we all need to get tested? Can't find
that recent post.
Thanks!

SLE Patients- I need your help soon!

2008-05-21 03:12:49

Hello, all- Thanks so much to all of you who already completed my
survey. If you have SLE, and have not yet filled it out, I would
truly appreciate your time. Please read the information below to find
out if you're eligible. I am hoping my study will contribute a much-
needed perspective to the body of research investigating psychosocial
aspects of SLE. Thanks again! - Jennifer
The Physician- Lupus Patient Relationship Survey
The purpose of this study is to investigate the relationship between
Lupus (Systemic Lupus Erythematosus) patients and their physicians.
In particular, the researchers are interested in how individuals'
general experience of relationships relates to their relationship
with their physician. Additional focal points include how this
medical relationship relates to issues such as how healthy patients
feel, their satisfaction with treatment, and their adherence to
treatment. It is hoped that the results of this study will reveal
information that will assist not only lupus patients, but all medical
patients in getting the critical care and attention they deserve from
their medical provider.
Criteria for patient eligibility include:
(a) Being between the ages of 21 and 60
(b) Receiving a diagnosis of Systemic Lupus Erythematosus (SLE) at
least 3 years ago
(c) Having seen the same physician three times in the last year
(d) Willingness to respond to survey questions regarding adherence to
their treatment regimen, overall satisfaction with treatment, their
own health-related quality of life, their relationship with their
physician, and other close relationships in their life.
Participation should take under 30 minutes and involves completing a
survey over the internet or by mail. All information will be
confidential. A donation of $1 will be given to a Lupus foundation
for every individual who participates.
To participate, please click on the link below (if you have trouble
opening the page, try copying and pasting the link into your web
browser):
http://www.surveymonkey.com/s.asp?u=231683246974
Or, if you have questions, please contact:
Jennifer at (310) 975-9258 or jbennett31@....

Re: premies, enbrel, new guy

2008-05-21 01:28:07

Hi,
In answer to the enbrel sites..., I have been pretty lucky so far with that
regard.--- I have
had no site reactions unless you count the time that I forgot to bleed the air
out of the
needle. That left a nice black and blue spot for a few days. My doctor got a
good laugh at
that when I told him about it.
With regard to the premie question there seems to be a pretty good number of us
that
were premies. You bring up a good point about your mother's health during
pregnancy.
My mom was exposed to measles when she was carrying me.
Sorry to welcome you to this group but welcome to the group. Its kind of like
stitch said in
the movie: "It's my family, its not perfect but I found it and it is mine". That
is how I feel
about this disease anyway. Here is to keeping a positive outlook and moving the
joints as
much as possible.
Tom in Anchorage with snow....

Re: [PsoriaticArthritis] -Achilles Tendon

2008-05-20 19:30:14

Has anyone out there had problems (tendonitis/bursitis) of their Achilles
Tendon?
I have had trouble with mine for over a year now. I tried to ignore it for
several months thinking it was just the PA acting up. When I finally
mentioned it to the Rheumy he thought it might not be just the PA and
injected it (REALLY painful). That worked about 3 days (about 1/2 my
vacation) When I went back he referred me to my orthopedist who also
injected it in the bursas behind the tendon. Also worked about 3 days and
when I went back he put it in a walking cast which I am STILL in. He
recommended a second opinion
but that doc who was an orthopedic specialist in the ankle. They both said
the same thing.
The only other option is surgery which apparently can be serious and takes
forever to recuperate from.
I can walk without pain without the cast, but it weighs about 15 pounds and
throws your hips our of joint because of the difference in height. That
limits walking much. I am going to a company that makes orthodics etc next
week hoping they can at least come up with something smaller (this one comes
up to my knee and I can't wear slacks) and lighter.
Anyone else out there have this kind of problem?
Maureen in Tenn.

For Sue in Michigan

2008-05-20 15:46:35

Has anyone heard from Sue? She was to have some hip work done the
first part of December. I was thinking about her and just wanted
her to know I hope she is doing real good. Please let us hear from
you soon. Elaine

Re: [rheumatic] Celiac Disease

2008-05-20 08:55:49

Hi Michelle;
A very high percentage of people with chronic disease have a gluten
problem.It took me over a year to clear it from my body.I did not know I
had CD and for years AP did nothing for me.After a year of avoiding
gluten I was a bit better.6 months after avoiding all foods with
vitaminD and sun I was in remission.You should sighn up for the weekly
news letter from celiac.com. Lynne G./SD
http://www.celiac.com/cgi-bin/webc.cgi/st_prod.html?p_prodid=1417&p_catid=&p_pri\
nt=y&sid=91hH9H1kUAE313v-06107615751.e1
<http://www.celiac.com/cgi-bin/webc.cgi/st_prod.html?p_prodid=1417&p_catid=&p_pr\
int=y&sid=91hH9H1kUAE313v-06107615751.e1

Re: Supplements and Sleeping - Need Advice

2008-05-19 22:38:15

I use melatonin every night. It works well for me. (it usually takes
10-18 mg for me, which is way more than the recommended dose)
cfsguy

RE: [rheumatic] My Rheumatalogist

2008-05-19 16:13:18

Get a complete copy of your medical records with this guy and find another
Dr. El
_____

Re: [rheumatic] Drs and such

2008-05-19 13:40:10

Dear Kathy, Fibromyagia is also part of the all these fibrotic, fheumatic
diseases. They are all caused by an overabundance of micoplasmas in the system
that start shutting off the Immune system. The cause is the same and the
treatment is the same. If you treat the cause, the pain and all the symptoms
will eventually go away. I'm sorry you're doctor is not open-minded enough to
monitor the A/P treatment. But, Doctors have been taught to practise CYA
medicine and some will not even attempt to think outside the box for fear that
if something goes wrong, they will be sued. If you don't know what CYA means!
It's"Cover Your Ass" medicine. I learned that in Nursing School. I'm glad you
found another doctor who will follow you during the Marshall Protocol. Go back
to your old doctor once you are successful and show her. That's what I did. In
the meantime, don't give her the satisfaction of keeping her informed. It is
for her benefit to learn about it on her own. Your
job is to get healthy. Get well and then show her. It won't take long. Good
Luck~~~~Dolores
Kathy <sunbriar@...
willing to do anything with AP or MP, but she is willing to look into it just so
that if Im doing it she is aware of what im doing. she seems encouraging for me
to go ahead to see the DR tommorrow about the MP even though she herself wont do
it. She also started talking about fibromyalgia and a new medicine I might try
for pain. I wonder if fibromygalgia is also something that AP/MP can take care
of? as of right now they say I have arthritis. Kathy

RE: [PsoriaticArthritis] Supplements and Sleeping - Need Advice

2008-05-18 22:06:28

Welcome Dave,
I take Trazadone for sleep. It is an antidepressant, rather than a
sleeping pill. My Rheumatologist said it would be less addictive and I
could stay on it for a longer period of time.
Becky
_____
From: sab6djs2000 [mailto:sab6djs2000@...]
Sent: Thursday, January 13, 2005 11:27 AM

RE: [rheumatic] HELP need DR advice

2008-05-18 20:22:28

For Kathy; my Primary care Dr. does not take any insurance, Medicare,
Medicaid, etc. I pay at the end of each visit and (if I remember/bother), I
submit the bills and sometimes I get a bit of money back from BCBS and
sometimes I don't. My Dr. spends at least an hour with me; two hours on an
initial/new patient visit; about an hour thereafter. So I hope that's some
comfort for you. El
_____

Re: Book on Arthritis Relief

2008-05-18 16:05:01

THanks Martin,
If anyone out there has any ideas of how to approach this subject, or
what you would like to get out of a book like this, or what WASN'T in
the books you've read, please reply. We are digging around to try
and put together something that might make a difference.
-Jess
portions of this message have been removed]

INVITATION TO PARTICIPATE IN PSORIATIC ARTHRITIS...

2008-05-18 09:28:27

In a message dated 1/11/2005 6:20:13 A.M. Eastern Standard Time,
bethfvp@... writes:
don't know about this particular study, but I participated in the same type
of thing last year. The interview took over an hour and seemed to be geared
to get PR type info for a drug company. I was supposed to get paid $50 and the
National Arthritis Foundation was supposed to get $50. I don't know about
the Foundation, but I never got the money. The experience left me feeling
pretty cynical.
I spoke to the woman and the phone and she told me I am not eligible because
I am not able to take biologics...I think they are looking for patients
willing to add a biologic to their DMARD...
Rachel

Re: [PsoriaticArthritis] for Helen

2008-05-18 06:12:53

Don't want to forget tomorrow (and I'm on PST)....
Happy Birthday!!
Best Wishes for a healthier 39th year...
Karen (Idaho)

Re: [PsoriaticArthritis] Anyone left Remicade and gone back later with results?

2008-05-17 23:58:45

Hi Nancy,
Wow, I am so sorry to hear about all the happenings in your life ~ and your
health! It seems sometimes when we think things can't get much worse, they do
and there never seems to be an explanation or a justification... All I can say
is, I am sorry and I hope very soon, things turn around as they inevitably do...
On a note about the employer, I wonder why they would cover the Remicade and not
the Enbrel? Isn't the Remicade all in all, more expensive? Do they realize
this? It seems sometimes the only way to "win" is to show them why THEY would
benefit from you switching ~ not why YOU would (which of course is so sad)... I
was lucky to work for a place that went out of it's way to help an employee with
medical costs, even if the insurance company wouldn't pay...
Good Luck,
Karen (Idaho)

Re: [PsoriaticArthritis] for Fran...

2008-05-17 20:39:09

Hey Fran,
You're always so busy giving support to everyone else....
In the midst of all that, I wanted to say how happy I am that some of the back
pain is finally easing up a bit ~ hope the trend continues!
Warm Wishes,
Karen (Idaho)

Supplements and Sleeping - Need Advice

2008-05-17 10:32:58

Hi All,
My names Dave and i live in South Wales (uk)and I've just logged on
to this list to see if anyone has any remedys for improving sleeping
because its becoming a problem for me. 1st off i've got the spinal
version of PA and my doctor put me on various NSAID's which i could
not sleep on and did my stomach no good either and also i did not
want to rely on them. I tried various supplements, MSM, glucosamine,
in tablet form which had no effect then i found syn-flex and MSM
crystals which have been amazing to be honest and my supplement
cupboard seems to be growing by the week. But i still cannot sleep
while taking them. Does everybody have this problem?
Also does anybody know of any good exercise videos for people with
arthritis as i've tried tai chi and even that causes my PA to flare
up.
Thanks Again
Dave

Thanks Janet

2008-05-17 01:12:40

Dear Janet
Thanks for writing me. I think it just shows what a great group we are and
everyone has heard about us. It is hard to answer all of them and I've just
given that up. I try to respond to the people who have
something I know something about and hope everyone does the same. Hopefully
no one is ignored or forgotten. I'm sorry to hear the Enbrel isn't working.
At least you haven't had any side effects, but I understand your
frustration. How long does your doctor want you to use it?
My back is getting a little better. I've noticed a lot of my pain has let
up some, but the numbness is still there. At times it seems to go all the
way to my foot, which I guess isn't uncommon for lumbar disorders. What is
frustrating is how quickly the pain can come on, and yet it takes ages for
it to go away. I see my rheumy tomorrow and he isn't even away I've had
this much trouble. I'm close to giving up on him, but hate the idea of
searching for a new doctor.
Hope you improve soon Janet and get some relief as well. I've noticed with
the fibro fog that it does come and go. Try not to worry about it too much
because I think it's worse then.lol. Take care, Love, Fran

bone graft

2008-05-16 17:49:00

Hi Karen
Thanks for the support. I will know in about 4 weeks. Pain level almost
non-existant this morning. Wish I could say that about the rest of me.
Will keep you posted.
Barb

Re: [PsoriaticArthritis] Starting Enbrel...Need Advise

2008-05-16 16:11:41

Vicky,
I have been on enbrel for 4 plus years. It has really revitalized me and
helped my arthritis greatly. I was on methetrexate before and had a great deal
of fatigue. If anything my energy level is higher than it has ever been since
I have had this disease.
Take care,
John

Re: [rheumatic] Dr. Whitman

2008-05-16 15:37:54

Me too, I cannot locate it. I wanted to also check out his website. Thank you!
"rbarna dejazzd.com" <rbarna@...
be kind enough to post Dr. Whitman's address/phone number again. I went to look
for the e-mail that had the info and found that I had deleted it. Plan on
calling for an appointment, figure I won't get in until the fall......
Thanks everyone! I don't post much, but do read most of what comes through and
have learned so much from everyone!
Roni
-----

Re: [rheumatic] Digest Number 4065

2008-05-16 05:43:55

Discussion on the use of long term low dosage of antibiotics for the treatment
of auto-immune diseases such as Scleroderma, Lup"I have had dogs for 30 + years.
My very first dog had lupus, my second dog had RH. Now 30 years later I had a
litter with three dogs with DM. Now Im sick... a neighbor is very sick"
Years ago there was some discussion on this list about cross-species infection.
A number of members reported getting a rheumatic disease after exposure from
pets, and a few vice versa.

Mycoplasma]

2008-05-15 23:35:34

Hi All,this might clarify things a bit. Lynne G./SD

Starting Enbrel...Need Advise

2008-05-15 12:19:35

I will be starting enbrel this week or maybe early next week...Can
anyone tell me common side effect they experienced early on...Has
enbrel helped? Does it make you tired? Depressed? Those are 2
things I dont need more of if you know what I mean...I read on one
of the messages that someone on remicade took theirs on Friday to
get rested up on the weekend...Does enbrel do this also?
I would really appreciate any advise anyone could tell me....
Thank you in advance,
Vickey

Anyone left Remicade and gone back later with results?

2008-05-15 11:36:50

Hello,
I only get to read posts once in awhile. -
I've been on mtx for about 20 years and am currently @ 8 per week. I did
remicade infusions for 4 1/2 years with basically good success the first 3 1/2
years. I urged the rheumy to increase the # of vials but he refused as he
didn't want to compromise my immune system so we went to 6 week intervals rather
than 8 week. It didn't help. Then last spring I started Enbrel injections
twice a week. I feel I did get more relief from the Enbrel and doing the
injections did not bother me.
I've been having much trouble with my hip since last summer but put off any
complaining as I was taking care of my mother in law - she was 90 and we moved
to her home for her last 4 months to take care of her and thought maybe it was
from doing some of the hands-on care that last month. She passed away in Aug
and by Sept I was back at the rheumy. I had bone scan, bone density, x-ray and
labs...........other than inflamation he chose to try PT for awhile before
starting pain injections. The PT does help but is not the cure all and I
continue to have much pain in my pelvic, hip and lower back on my right side. I
have very few nights of complete sleep, often awakened several times due to pain
when I move positions.
I know that the rheumy often wonders if stress in my life isn't part of my
problem. I had just finished clearing my mother in laws home when my parents
whom we put into a facility in May had huge decreasing health issues and they
both passed away last month. Yes, they passed on within 34 hours of each other
after 64 years of marriage.
Now to top things off right, my employer (I still work full time in the IS
department) has refused to cover Enbrel. Yes, they can do this :-( I checked
the cost and it is $1,300 per month to pay full cost. Needless to say, I won't
be on this after my supply runs out.
I believe that I will be forced to return to remicade but wonder what my chances
are if it will once again give me relief. I have always been very optomistic
about this disease. It is a very difficult disease to deal with, explain to
anyone who doesn't have it.
If you read this far............you are super! Thanks for any thoughts,
suggestions or comments.
Nancy
Only 57 years of age with 8 years till Medicare

Re: [PsoriaticArthritis] That youthful glow...

2008-05-14 23:44:38

Hi again Allison,
Yes, I use the Retin-A-lotion for acne... I am blessed with this as well ~ in
fact I thought I read somewhere that adult acne (the kind you are speaking of)
is related or can be related to PA... I have fought this ever since my 20's
(didn't have it as a teenager) and it leaves nasty scars, retin-a-lotion does
help fight the acne. It happens to also work on wrinkle lines, but the reason
she gave it to you was to help prevent the acne...
A note, it is very drying and if you do use it, there are some tricks to
minimize the dryness. First off, I do think the gel is a higher concentration
than the lotion, but I usually apply the retin A to the areas I am prone to acne
(for me, entire chin area up to cheeks, especially on the right side). If that
seems to strong, I will mix it a little with oil free lotion OR put in on for 20
minutes and then wash it off... I also only use it when I seem to be having a
more difficult time with the acne.
Another thing that helps my acne and my joints is a steam baths. I am lucky
enough to have one in my home, but they are very common at health clubs, etc...
I try to sit in one for ten minutes or so several times a week. This not only
helps my skin, but feels wonderful on my achy back!!
Best Wishes,
Karen (Idaho)

Re: [rheumatic] pets etc

2008-05-14 22:02:54

Hi Kathy;
Vets are much more informed than doctors about micoplasma
problems.It might not hurt to print out an AP protocol and bring it with
you next time you go.My vet is all for such things including
alternatives for cancer.Since we know Dr g.Nicholson ,his family and the
dog caught Gulf War Symdrome from his daughter who was a nurse there,you
might want to print his protocol.The whole family is well now but the
dog did not make it.I do not know if he tried AP on it.I know he is
very willing to talk to doctors and maybe he would to a vet.Personally I
am almost sure it is contagious since we are relatively sure micoplasma
were deliberately spread a few decades ago when the "cold war" panic was
raging. Lynne

Re: [PsoriaticArthritis] I need a nap...

2008-05-14 14:06:49

Hi Allison,
For me, after the initial cycle where you're getting treatments fairly often, I
notice that often I am completely exhausted the day after or even the next two
days afterward, but then return to normal (which is still way more sleep than I
used to need ~ in part I think because I do not sleep soundly through the
night). Acupuncture has helped with this (sleeping better through the night),
but not the after-effects of Remicade. I am trying to take my treatments on a
Friday ~ so then I have the weekend to catch up on my sleep. For me, those two
days can literally mean staying on the couch and sleeping all day ~ and some
treatments are better or worse than others, I can't figure out a pattern.
The bottom line for me is, every 6 to 8 weeks, I can handle a day or two of rest
for the incredible pay off.
I hope the tiredness eases up!!

Re: [PsoriaticArthritis] for barb

2008-05-14 04:08:11

Fingers are crossed on the success of the bone graft!! :)
Karen (Idaho)

Re: [PsoriaticArthritis] <a href="/group/PsoriaticArthritis/post?postID=UB_9e0f6kAqULQSBo5HKvieJUmL1kii84d-d89eaPofnZk9H23HVx3V1CMbub7tZxtWOAA">NIYYTG@...</a>

2008-05-13 23:06:15

Hi Martin
Thanks for the good wishes. The surgery went well and not as painful as the
PA. It only hurts when I talk (my husband is loving it--lol) or when I try to
eat.