Re: [PsoriaticArthritis] Re:Back Pain

2008-04-30 22:23:39

In a message dated 1/5/2005 4:25:42 PM Eastern Standard Time, NITTYG@...
writes:
This time the pain is not on one side or the other like before. It is right
in the center just below my waistline. Any movement, getting dressed,
walking
etc. hurts like the dickens. Pain medication only helps a little bit.
Hi Barb,
That is right where I have my worst pain pain. I see a chiropractor every
other week and get a weekly half hour therapuetic massage in his office and
it helps a great deal. I have to pay out of pocket for the massage but to me
it is worth it. It costs $25.00 for the half hour. Have your tried any
therapy?
Janet

Re: Pats Remicade update

2008-04-30 21:43:16

Hi Karen,
Well it has been a week since my first treatment and it didn't have
any effect yet. My psorisis is getting worse. I go for my next
infusion next week so I will pray that the second dose gives me a
better outcome. I do have a bad cough and shortness of breath. But I
don't know if it is related. my Husband has bad bronchitis right now.
I might go see MD tomorrow to make sure I don't have something also.
I have been using breathing treatments to open my airways. I want to
make sure I don't have an infection since my infusion is next week.
Gentle hugs
Pat

Re: Karen: GI bleeds with mobic (mobicox, etc)

2008-04-30 10:14:45

Karen: I'd been on mobic for about 10 months (along with Prilosec) before
I had the GI bleed. Which may or may not have been related. I'm trying to
stay off such medications until I find some people who have been on it for
a reasonable long time. Good luck to you and hope it continues well.
Jim
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Re: [PsoriaticArthritis] INVITATION TO PARTICIPATE IN PSORIATIC ARTHRITIS INTERVIEW $100.00 TO YOU

2008-04-30 02:40:13

MY NAME IS : KAREN M. BORRELLI
MY AGE IS: 38
MY PHONE # IS: 727-697-0161
I AM CURRENTLY TAKING METHOTREXATE FOR PSORIATIC ARTHRITIS AS WELL AS RELAFEN
AND NEURONTIN.
I HAVE TRIED ARTHROTEC, VIOXX, CELEBREX, NAPROXIN, AND OTHER NON-BIOLOGICS IN
THE PAST.
I BELIEVE I AM QUALIFIED FOR YOUR STUDY AND VERY VERY INTERESTED IN THE CASH
INSENTIVE. AND TO HELP YOU. THANK YOU VERY MUCH.
KAREN BORRELLI
rollinpics@... wrote:
INVITATION TO PARTICIPATE
Dear Psoriatic Arthritis Patient:
RCG Research is conducting Phone interviews with patients diagnosed with
Psoriatic Arthritis.
In this study we are speaking with people about their experiences with
Psoriatic Arthritis,
We are especially interested in speaking with patients taking the non-
biologics : Methotrexate, Rheumatrex, Azulfidine & Plaquenil. ( but others may
qualify too)
This is a 60 minute Phone Interview.
Each Participant receives $100.00
Dates: January 10-14 , January 24-27
All Participants need to be able to be online and on the phone at the same
time.
We will be showing them visual material and would like their
feedback/opinion on it.
Please email:
Name
Age
phone
What Rx Medications CURRENTLY taking for PSA:
Medications in Past:
We willl contact you shortly.
Thanks so much!
Yale Russcol
Coordinator PSA Study
877-433-4093 ( toll free)
email: rollinpics@...

Dick dull needles

2008-04-30 00:39:01

Hi Dick,
I have just ordered my second batch of Enbrel and while doing so I asked about
the needles on the 50mg injections (I will start premeasured next month and go
off the 25mg 2xweekly). The pharmacist I spoke to told me that the enbrel in
the 50 mg vial is a little "thicker" then the 25mg and might require a tiny bit
larger needle, she is researching it for me and will let me know. My last two
injections of 25mg had very dull needles...ouch, hate that! Anyway, if I get
any good information I will pass it on. Happy Days to ya,
Annie

Sinus Infection/Salt Water

2008-04-29 16:08:00

Rosanne wrote: Now I'm seeing a new ENT and he took me off the Zytec-D ( it was
drying me out too much) and put me on Flonaise and plain Zytec. And
I 'm to clean out my sinuses daily with a Salt water wash , that
doesn't seem to do squat, so I don't always do it.
Sorry Rosanne, but I strongly disagree that the salt water was will not do
anything. If you do it every day, you will notice a huge improvement. It does
not happen over night, but I have done it every morning for ten years and swear
by it. Wish I had done it before I had the two surgeries!! Keep at it. It
really does work. Linda in Poulsbo, Wa..

Re: [PsoriaticArthritis] New Remicade Warning

2008-04-29 11:11:18

In a message dated 1/6/05 1:40:50 AM Central Standard Time,
spur522000@... writes:
With allthe problems arising from arthritis drugs we all need to keep
up to date on it.
Steve R.
I heard a bit of good news related to this sort of thing. There is a plan to
be submitted to congress that hopefully will bring about some controls on
class action lawsuits. I think without the threat of multi-billion dollar
lawsuits looming that drug companies wont be so quick to yank a product off the
market that for some is worth assuming significant risks.
If you have fears as I do that all the drugs that have been so useful in the
treatment of P and PA are being targeted and may be removed from the market
then I plead for you to spend 1 hour to send a letter to each of your elected
representatives in Washington D.C. to tell them what you think. Do you really
want to face PA with Tylenol and Ben Gay? Orin

Re: nails and tendons

2008-04-29 06:01:43

Anne I have had the same problems in the past and still some with my
nails. I got to the point that I had 5 toe nails removed because
they kept coming off and or got so brittle and the rest were getting
real thick and white or yellow. My finger nails would also fall off
and then come back all yellow and would also be real brittle (looked
like I chewed them all the time). I have had the tendons in my
palms bothering me for the last 10 years.
Since starting Enbrel both have gotten better. The nails are back
to normal color and are not thick anymore. They are still a bit
brittle but look much better and can be trimmed with real nail
clippers. And the tendons in my palms are not near as bad as
before. Still sore, but not as bad.
All my other meds I had been on for years and no changes, until I
started the Enbrel. So I am sure it was the Enbrel that is helping.
Good luck.
Dick

Dr in West Coast and Benicar

2008-04-28 20:05:39

Hello Monique again. Thanks for the correction on the Benicar dose. Are you on
M/P?
If so, how long and how are you doing on it? Do you have S/D & R/A like I do.
I'm in remission after 18 months of Minocin, but now plan to start the M/P in
Sept. or Oct. when the sun is not so high or so hot and the day's are shorter.
You live on the west coast and I live in NYC. I'm searching for an M/P
knowledgable doc here, but fear I may have to go to my PCP who is the most open
of all the specialists I've had to deal with. Got any suggestions?
Monique Sauve <moniquesauve@...
correction it is 3-4 40 mg benicar per day for MP not 6.
monique

Re: INVITATION TO PARTICIPATE IN PSORIATIC ARTHRITIS INTERVIEW $100.00 TO YOU

2008-04-28 19:41:25

Is anyone going to participate in this? Has anyone done these types
of interviews? I would like to do it but don't want to get wrapped
up in a scam and divulge info to people who might take advantage.
Rollin, can you give the group more information about your
organization, websites to go to etc?

Re: [rheumatic] OT: Snip - Please

2008-04-28 10:19:06

<http://www.albion.com/netiquette/
Thanks, Geoff.
The Wikipedia netiquette page is also good
http://en.wikipedia.org/wiki/Netiquette
Do you still take the digest? Or are you on regular subscription now?
--
Jean

Re: [rheumatic] Re:Dolores

2008-04-28 01:33:11

Hi Monique, I just answered your other e-mail about the trimming. If you read
my answer to Esther, you would know that I don't have problems with yeast at
all. I have a problem with motility and a hiatal hernia. But I appreciate the
info on yeast and will save it in case I ever do get a yeast infection. Thank
you, Dolores
Monique Sauve <moniquesauve@...

Re: [rheumatic] trimming messages when replying

2008-04-28 01:18:11

Hi Monique, You don't have to scroll unless it is a subject you are really
interested in. Some I delete and some I scroll. We have the choice and I think
for the ones that want more information, the info should be left on there. I
just got a long one and it really hit home. Not only am I saving it, but I'm
going out to buy some more ink so I can print it. You can't put these diseases
into a test tube and help everybody. Then some people psychologically need to
express themselves as a carthartic measure of cleaning up their emotions instead
of bottling them up. Since this is a medical information station, it should be
viewed as that and that only. Private matters between private people should be
on another site. But public medical info belongs to all who want to read it.
Who knows, thru one of these e-mails we may have a breakthrough and learn what
causes these diseases and hopefully learn how to cure them. This is for
mankind. Think globally. Have a great day!
Dolores
Monique Sauve <moniquesauve@...
messages when replying? for those of us that get
digest versions it is frustrating to have to scroll thru very long
messages of stuff that has been already posted.
thanks very much
monique

Re:Dolores

2008-04-27 14:40:24

hi esther

trimming messages when replying

2008-04-27 14:26:31

can people trim their messages when replying? for those of us that get
digest versions it is frustrating to have to scroll thru very long
messages of stuff that has been already posted.
thanks very much
monique

Re: [PsoriaticArthritis] Question for the ladies only.

2008-04-27 01:09:45

Hi Monica. I don't have p but my pa always went into remission during my
pregnancies. A rheumy told me that that is what happens with pa and it added to
proof that I had pa.
Try contacting La Leche League. They are breastfeeding experts and seem to
know answers to any breastfeeding complication.
Good luck with the new arrival.
Nancy

New Foundation Forming

2008-04-27 00:06:12

This is a new foundation being formed to help anybody dealing with
any illness. I think it's a noble cause and I think there are many
here that could offer help and hope, even if it's just suggesting a
great link.
Thank you,
Wendy in Oklahoma

Re: [PsoriaticArthritis] Giving Remission a Chance

2008-04-26 17:35:35

Good Luck Robert!!
I tried the same thing this past fall and unfortunately it didn't work, but I
think I wasn't as smart as you and went off both MTX and Remicade at the same
time!! I flared right after Thanksgiving (about 4 months after my last
treatments of MTX and Remicade), but now since I've gone back on, am doing fine
in my main flare areas...
I hope to try again ~ if I'm lucky ~ in 6 months or so...
Keep us posted and my fingers and toes are crossed!!
Karen (Idaho)

Paraffin wax update

2008-04-26 09:19:00

Hi all,
Well I had a chance to check out Walmart's Paraffin wax bath. It's a
Dr Scholl's and it cost $38.95 plus tax. I would have bought it on
the spot but it seemed rather small , it only held 4 lbs of wax
compared to the model on the web site that held 6 lbs , I think.
Also it said on the package , that the opening to put your feet in
is large enough to place a ladies 91/2 shoe size , I'm an 8 to
81/2 (up from 7-1/2 before Ra/pa days). But my husband is of course
a man's size 9 , which I'm fairly certain is larger than a woman's
same size.
And since I want him to be able to use it too.(He has very dry
cracked hands and dry feet.) I'm not sure it will be big enough for
him too.
So I'm holding off til I get a chance to shop around a little more.
We live an hour's drive from "anything" .
Thanks Orin for the suggestion of using an electric roaster, if I
had one I may have tried that , if I wasn't using it for anything
else. But if had one I used alot , I don't think I would want to tie
up the roaster with wax, b/c once you get wax melted in something,
it would be too messy to clean up and use for something else , ugh.
And as someone posted , the temperature has to be just right . When
I first put my feet in the one at the massagers, it felt way too hot
but she said it would not burn me, which it didn't . But if I had
been experimenting with temperature at home I would not have known
it would have been safe at that temperature , and I would have
thought that it was waaaay too hot.
Also Orin, as far as your shoulder goes, from what I have been
reading on the therabathpro web site , you can do other larger parts
of your body , like your knees and face , using a natural bristel
paint brush. You paint several coats of hot wax on the area, cover
the area with plastic wrap and a towel , all to hold in the heat.
I would think you could do a shoulder or back, although you probably
could use a little help from someone , if it was hard to reach.
I don't have any objection to buying a more expensive one ,if that
is what I have to do. But I hate buying top of the line , and then
b/c of the inconvience or my plain laziness (RA/PA fatique) I only
use it a couple of times and it gathers dust in the corner.
I wish I could find the earlier discussion on the board ,on the
Paraffin wax , I had first typed that in to see if it would come
up , but nothing did.
Thanks every one , will keep you posted , if I find one , and how
well it works.
take care,
Rosanne

Pulsating irrigation for sinuses

2008-04-26 07:39:02

Hi all,
After posting that last message about chronic sinus infections. I
went back to read the post , I believe Brian posted . It gave a web
site by dr. grossan. This was a very interesting read.
I actually have his book "The sinus cure " which I have been reading
but not finished. I must look at it closer.
Any how I'm convinced I need a pulsating irrigation tip for my
waterpik. But the site for ordering it showed it sells for $22.50
Euro dollars and $38.00 for shipping and handling . Anyone know
where I can get it in the States?
I really feel "fixing " my sinuses is going to be the only way I
can stay on either Humira or Enbrel.
Thanks for your help.
Take care,
Rosanne

Dr in West Coast and Benicar

2008-04-25 16:59:47

Thanks for the list of the complete uses for Benicar in M/P. I knew there was
more, but couldn't remember at the moment as I was involved with the Scleroderma
walkathon and had not had any decent sleep in days. I stand corrected. Dolores
Monique Sauve <moniquesauve@...
more than lower your bp. that is what it was
originally intended for and usually rx'd for but on MP it lowers your
1-25 D levels and allows your immune system to function more effectively
so the antibs can really get at all those bugs and it also has a
protective anti-inflamm. effect. hope i got that right. have only been
on MP a month. see this for exact info.:
http://www.marshallprotocol.com/forum2/
monique

RE: [PsoriaticArthritis] Shingles Ouch

2008-04-25 16:41:27

Dear Lori,
I really understand what you are talking aboutwhen something else goes
wrong and you feel like you are just holding your head above water as it is.
Luckily, Ive never had shingles, but my daughter developed them once when
she was twelve years old. Im told this is really unusual for a child to
even get shingles and they were really worried that her immune system was
shutting down. Personally, looking back, we had just moved to a new school,
new home, she had lost her grandparents who lived next door to us at the
time, and I think l that stress is really what set her off. Once she got
comfortable with the new place and all the changes she had gone through the
shingles went away. She had also had a severe case of chicken pox when she
was a child, so bad that she even lost her toenailsso Ive often wondered
if that had something to do with it as well. One other thing she did was
watch funny movies for days on end. She stayed away from anything sad or
stressful and I could hear her laughing in the bedroom even though it
actually hurt her to even laugh. I really think she beat all her problems
this way as crazy as that sounds. Laughter is good medicine though and I do
believe it helps to laugh regardless what makes you happy.
I recently hurt my lower back and just found out I have a large bone spur
which is pressing on a nerve root, and 6 bulging discs as well as other
problems on my spinal column. Ive also got the same problem in my cervical
spine and it causes my hands to go numb and feel like they are burning and
on fire most of the time. So far Ive only found some comfort from taking
Arava, but all of the other major PA drugs have made me sick with many side
effects. So when something else major pops up, it is almost too much to
face especially when pain is involved. This time it happened two days
before Christmas and I was so down and frustrated. The pain is just now
starting to get better and yesterday I had an epidural injection into the
nerve root that has been causing all the problems. Im hoping this is help
ease the pain since Ive not been able to walk since this began.
One thing Ive learned about being ill for so many years is you have to keep
up your sense of hope. I really believe that hope actually helps heal you
and without it life becomes intolerable. One great book I read was by Dr.
Groopman, called The Anatomy of Hope, who is a cancer doctor who has
written about how hope helped his terminally ill patients and it gives them
the strength to endure and even flourish at times. I got my copy on
amazon.com and it was under $12 I think. I know a book about dying people
should be depressing and the last thing you should read if you are getting
depressed, but it has the opposite effect, at least it did on me. One other
thing I try to do is visualize myself healthy and happy at least once a day.
It sounds silly but it helps. Just seeing myself well seems to give me a
sense of well-being and hope again. I dont know if Ill ever get over this
disease and if I do, I have many more to overcome since PA is only one of my
problems. One thing I know for sure is it cant hurt you to be positive and
can only help you in the long run. I dont mean this to sound like Im a
Pollyanna or something, but if you get a chance to read the book maybe it
will help pick you up somehow.
We are all so different, but hope is universal and do all you can to hold on
to it. Its hard to find it sometimes but it is still there. Write me
anytime and Ill be thinking positive thoughts and sending them your way.
This group is a great place to let it all out and so many of us feel like
you do or have felt that way in the past. Everyday is a struggle, but Ive
found its impossible without hope. Take care. Love, Fran

Re: [PsoriaticArthritis] nails and tendons

2008-04-25 09:07:32

Hi Ann
I am 58 too. I have had symptoms for a long time but was just diagnosed a
little over a year ago.
Fortunately my toenails are normal, but I have had a lot of fingernail
involvement. At my last visit at the doctor, I showed her that my nails were
attached to the nail bed for the first time in over 20 years. Neither one of us
could believe it. I also have a lot of tendon involvement, mostly in my knees
and the Achilles tendon. Therapy has helped to get it under control, but it
still always there. Right now my back is worse than anything else.
I am only on Azulfidene 3 tables twice a day, Bextra, Skelaxin twice a day,
and Flexeril at night.
Maybe some physical therapy could help you? Worth checking into.
Barb

Re: [PsoriaticArthritis] INVITATION TO PARTICIPATE IN PSORIATIC ARTHRITIS IN...

2008-04-25 08:29:26

My name is Michele Cioffi
I am 38 years old
732 521 5497
I am taking MTX and Embrel injections.
I was taking Remicade up to about a year ago until it stopped working.

Finally I have some answers!

2008-04-25 02:35:19

Dear Group,
Well after two weeks of unrelenting pain, I finally have some answers. My
hip is actually fine, which is a relief and I don't' have any signs of
avascular necrosis. All of my pain in my leg, thigh, hip and back are
coming from many problems with my lumbar discs. So far the Mri shows I have
spondylosis, many osteophytes, kyphosis (what ever that is), 6 bulging discs
(which I think covers about all of my lumbar area), a large protrusion
pressing on a nerve root (which has caused the thigh and leg pain that came
on so suddenly two weeks ago), facet joint disease, and lumbar disc disease.
Now I wonder why my back hurts.lol. Seriously though it could be much
worse. I guess what sort of surprised me is no one will say this is from
the PA. I just figure it has to be because all of this developed almost
over night. Well in the past 4 years I guess, but still that seems pretty
fast for just general aging arthritis. If anything I think the PA must have
speeded up the whole process.
The good news is my pain doctor gave me an epidural injection into the nerve
root and he thinks it will make a big difference with my pain level. He is
also really positive that he can help me with some of the other pains that
all these problems are causing. I know the epidurals I had in my cervical
spine, where I have a large bone spur causing my left hand to go numb and
ache didn't help too much, but I feel really positive about this one.
Possibly because my pain has already decreased since the injection and I'm
praying that the decrease isn't just in my mind.
I was curious since I seem to be a magnet for bone spurs if anyone has any
idea what really causes them. Or is there anything we can take to slow down
their growth or hopefully stop them from developing? As far as I know, I
have one in my right jaw, my right knee, all those in my cervical and lumbar
area and several on my hands and even one on my face near my eye socket.
Luckily, you cant' tell it's there, but I can feel it and it aches like
crazy sometimes.
I can't thank you all enough for all the supportative prayers, emails, and
love you have sent my way. They kept me going when times got bad and my
will power was low. I don't' know if anyone else has this going on in their
back, but I remember Dick saying he was having problems. Did you ever get a
MRI on your back Dick? I hope you have found some relief by now. I'm going
to rest for the next 3 days and you know me that' won't be easy if I start
to feel better, but I know the doctor said I need to rest the area until the
injection has really started to work.
Thanks again for everyone's help and support. I just love this group.
Love, Fran

nails and tendons

2008-04-24 15:14:37

I am a new member age 58. I have had arthritis symptoms since my
early twenties. For the past 7 years my fingernails and toenails have
been very bad. I keep losing my big toe nails and the other nails are
mishapen. Also, I have inflamed tendons on my plams - Dr. says maybe
early dupuytren's. Does anyone else have these symptoms and if so,
how are they being treated. I have been on Plaquenil and Clinoril for
five years and my arthrits symptoms are improved, but not gone.
Thanks, Anne

Re: Paraffin wax bath

2008-04-24 11:35:43

I have one that I bought for my Grandmother who has RA (I too have
RA). I am always a little leary about getting something that
is "bottom of the line".
I usually like to get one in the middle. Like I mentioned, I
purchased one a few years ago for my Gma and I believe it cost
around $150. Remember prices have come down a bit. So, this was
probably a middle of the road piece back then. It still works
wonderfully. Unfortunately, I cannot remember the brand.
Hope this helps...at least a little. :-) I usually don't check

Good Foods/Bad Foods and RA

2008-04-24 06:27:33

Robert,
While it is wise to look for a food connection, keep in mind that it is the
nature of the disease to wax and wane. There are most likely various
factors involved, stress being another major one.
Take care,
Ute

New Remicade Warning

2008-04-23 23:43:27

Hi all,
I do not take Remicade but Iknow a lot of folks do. I got this
article from webmd.
http://my.webmd.com/content/article/98/104980.htm
With allthe problems arising from arthritis drugs we all need to keep
up to date on it.
Steve R.

Good Foods/Bad Foods and RA

2008-04-23 11:32:25

Hi Mousey,
Your description on food problems is intriguing since my wife is
battling RA.
She has been on AP (Minocin, Metronidazole and Zithromax) for nearly two
years and has it under reasonable control ( bloodwork all normal) but
once every
two to three months she gets a flare (swelling of hands and increased
nodules on
back of hand and near wrist) and she does not know what causes it. Food is a
likely factor.
My question: when you get a reaction to food what exactly are your
symptoms ?
Thanks for your answer.
Good Luck,
Robert and Marianne

Thank you, Julie!

2008-04-23 04:52:52

Thanks for speaking up. I think there are many of us on this list
who agree with you - we're just not always as "vocal" as others. I
don't believe this is a place to express political views but some
people seem to take every opportunity to push their agendas.
Personally I can't see how anyone could stand up for Michael Moore.
I guess it takes all types .. *LOL*
Please don't leave the list! Some good things come across here and
you soon learn which people to ignore.
Melanie
Love my country, limitations and all!

Re: [PsoriaticArthritis] remicade for Karen

2008-04-23 01:20:27

Hi Karen,
I think if you look in the archives from just a few weeks ago you will find some
very good comments and suggestions for beginning the Remicade treatments ~ as
well as current posts by Allison and Pat...
Mine are included in the past and this is probably a broken record for many on
the list, but for me, Remicade has been my miracle drug. I have had minor side
effects (extreme tiredness the day after ~ sometimes), but it very quickly gave
me back my freedom and mobility. Without it my right foot, leg and knee swell
to the point where no motion is possible ~ and thus no driving or walking
without crutches, etc... It also helps the with the psorisis and the pain in my
fingers and hips, but these were not as dibilitating for me... The only pain it
seems not to completely erase is back pain, both in my lower back and shoulder
blades ~ and I'm wondering if this is something different than PA ~ but massage
and acupuncture do help somewhat.
Anyway, I don't mind at all the IV part ~ after the initial round of treatments,
it's once every 6 (my schedule) to 8 (more common) weeks. I take the time for
myself, to read, rest, or chat ~ but it's quiet and for me, after the first
visit, not very stressful... And best of all, I can walk!!
Good Luck...
Karen

Remicade Observation

2008-04-22 22:23:40

Observation for Pat and others starting treatment --
It has been 13 days since my first treatment, and I've
noticed a significant reduction in the general,
diffuse, achy pain and fatigue. A coworker mentioned
yesterday that I LOOKED like I felt better...
However, I now notice a sharper, more focused pain in
the affected joints. For all I know, it could have
been there all along and masked by the more diffuse
pain. Mornings are easier to manage, although I still
do the early morning arthritis shuffle. Climbing
stairs is also a little easier.
My second dose will be administered tomorrow, weather
permitting (...the ice storm cometh to Kansas
City....)
Pat, how are YOU feeling?
-- Allison
=====

Good Foods/Bad Foods and RA

2008-04-22 11:37:22

Hi Dolores;
I think I sent you the address of U.S. Bio Tek.They did my Igg and
Ige test for food sensitivities and hit the problem right on the
head(can you use that expression in English?) I was tested for 96 foods
and yeast.Avoiding them does wonders and doc says that in a couple of
years I can bring them back into my diet as long as I do it slowly.No
wonder you have problems with Chinese food,it is almost always loaded
with MSG. You have to make your own.This is nasty stuff.no one in my
family can tolorate it and we all have different symptoms.For me it is
numness in the head.and worse in the temple area.Feel like the dentist
has frozen every tooth...and my brain also. Lynne G.

INVITATION TO PARTICIPATE IN PSORIATIC ARTHRITIS INTERVIEW $100.00 TO YOU

2008-04-22 10:20:05

INVITATION TO PARTICIPATE
Dear Psoriatic Arthritis Patient:
RCG Research is conducting Phone interviews with patients diagnosed with
Psoriatic Arthritis.
In this study we are speaking with people about their experiences with
Psoriatic Arthritis,
We are especially interested in speaking with patients taking the non-
biologics : Methotrexate, Rheumatrex, Azulfidine & Plaquenil. ( but others may
qualify too)
This is a 60 minute Phone Interview.
Each Participant receives $100.00
Dates: January 10-14 , January 24-27
All Participants need to be able to be online and on the phone at the same
time.
We will be showing them visual material and would like their
feedback/opinion on it.
Please email:
Name
Age
phone
What Rx Medications CURRENTLY taking for PSA:
Medications in Past:
We willl contact you shortly.
Thanks so much!
Yale Russcol
Coordinator PSA Study
877-433-4093 ( toll free)
email: rollinpics@...

Re: [rheumatic] a good one

2008-04-21 22:04:37

Thanks for sending, that was funny! thank U! Supervisors that don't have bosses
that work directly with them pretty much come and go as they please. They don't
abide by the same rules as little peons like me. That does not make them good
role models. LOL.
MRSROSE2000@... wrote:
Tom was in his early 50's, retired and started a second career.
However, he just couldn't seem to get to work on time. Every day, 5, 10, 15
minutes late. But he was a good worker, real sharp, so the Boss was in a
quandary about how to deal with it. Finally, one day he called him into the
office for a talk.
"Tom, I have to tell you, I like your work ethic, you do a bang-up job, but
your being late so often is quite bothersome.'
"Yes, I know Boss, and I am working on it."
"Well good, you are a team player. That's what I like to hear. It's odd
though, you're coming in late. I know you're retired from the Air Force. What
did
they say if you came in late there?"
They said, "Good morning, General."
************************************** See what's free at http://www.aol.com.

Re: [PsoriaticArthritis] Hello, I am a new member

2008-04-21 21:12:37

I am glad I now have a place to let some of
Hi Rick, welcome to the group. I'm so glad you've
found us as it sure sounds like you've been through a
lot with this crazy disease.
warm blessings, jane

Re: [rheumatic] Dr in West Coast and Benicar

2008-04-21 18:28:30

What is Benicar? I thought that was not an antibiotic? What exactly do most
people here take as part of the Marshall protocol? Are there any docs on the
west coast patients here have had success with? Thanks!

Re: [PsoriaticArthritis] Long term Remicade use - questions

2008-04-21 10:01:05

Hi Jeannie,
Just a quick note to say I am sorry the Remicade seems less effective and you
are flaring badly... I have heard this can happen, but have no real information
to pass along. I am certain many others on the list will though...
Good Luck,
Karen (idaho)

Re: [PsoriaticArthritis] Paraffin wax bath

2008-04-21 02:43:51

Rosane, I have the cheaper one, don't know the brand. I got it at Costco. I
love it and it works just as well as the one that my pedicurist uses. Mine is
currently gathering dust because I feel it is is really only practical if you
keep it plugged in and I don't have a place to put it where it is not in the
way. A larger counter in either of the upstairs bathrooms would help. It is a
little messy right around where you set it, you can expect drips, etc. but I
would urge you to get the cheaper one and enjoy the benefits. I also get thick
heels and I love pedicures. I went to a new place this last time and she used
the metal stuff that drywallers use to smooth their seams. It worked very well
to get rid of the thick stuff and not nearly as traumatic as the razor approach.
Anyway, good luck with your feet and your decision to go for the less expensive
waser. Cheri

Shingles Ouch

2008-04-20 20:09:38

Hi All,
Well I have had shingles since before Christmas and it is truly a
painful illness. Apparently, because my immune system is supressed
from MTX and Enbrel And Stress and Just living with a Chronic Ilness
and because I am getting older .... or maybe from none of the above
and just some fluke, I developed this form of re-activated chicken
pox, otherwise known as shingles. I've been on large doses of
vicodan and motrin which has also caused problem with my health.
Now, because I've been ill for so long, my PA and P are breaking
through my otherwise excellent fortress created by my meds.
I hope I'm making sense. The whole thing is depressing and I don't
know where any of this will lead me was it has run it's course. My
doctor hopes it will only be a couple more weeks of pain for me and
that everything else will turn back around for the good. So, I am
glad that they did not take me off the enbrel or the MTX, as I
believe that would only make things worse.
With all the pain I'm in New Years Day seemed pretty sad and I even
had to question whether this was just getting to be the beginning of
the end for me. I'm sure when I feel better I'll have more hope.
Also, because I'm already compromised, I'm told I have a greater
chance of getting PHN, which is the chronic neuraligic pain left over
from shingles.. so gee.
Sorry to whine again. I'm lucky to have good doctors and friends and
family to help me through.
lori

RE: [PsoriaticArthritis] Sinus Infections

2008-04-20 15:19:09

Hi Allison,
I never really thought about it before, but it seems throughout my adult life, I
have always had something going on with my sinuses ~ often with the discolored
stuff and a slight sore throat, but most of the time it comes and goes
independent of any medication... Since I've been on the MTX and Remicade, I
keep fearing that it will turn into a full blown case, but it hasn't or doesn't
~ and it also doesn't seem to be contagious... I've sort of just figured it
isn't an infection (despite the "colored" stuff)...
Hmmmm....
Happy New Year All...
Karen (idaho)

Good Foods/Bad Foods and RA

2008-04-20 13:00:19

Hi Mousey, What terrific advice and giving the reasons is really helpful. My
gastroenterologist gave me an Rx for Reglan, but I hate to get hooked on another
prescription drug. It seems like it's always time to swallow some pills. What
is a prebiotic? I take acidophillus. That's a probiotic! When is the best
time to take that? I cannot eat yogurt as I am lactose intolerant. When a
recipe asks for milk, I use Lactaid, which is a lactose free milk. Doesn't
taste as good, but only use it to make cream soups and mac/cheese. Funny,
cheeses don't run thru me like milk. Do you have any idea why I can tolerate
cheese and yet not be able to have milk? I like Italian food, so I do use
mozzarella, parmesan and ricotta. I mix ricotta with spinach, add garlic and
some parmesan and my husband makes these wonderful crepe shells, which I stuff
with the cheese/spinach mix and they are wonderful. I can also eat cottage
cheese & pineapple. I don't lack for dairy, that's for
sure. Lately, it seems that all chinese food has been causing problems. Since
you seem to know so much about leaky gut, how is it that even though I eliminate
certain foods from my diet, other foods pop up to cause problems. Then I
eliminate those and it changes again. Some things I eat are fine and then some
things I've always eaten now give me problems. It's an ever changing
regimen.I've always eaten Chinese food. I mean who doesn't in NY with a Chinese
take out on every block? The last three times, I got sick. My doc just gives
me prescriptions like prevacid, reglan and protonix which I really don't want to
take. That justs quiets down the problem. I'd rather eliminate the cause. I
was diagnosed with S/D & R/A in 2005 and and just went into remission recently
after being on Minocin 100mg twice a day for 18 months. BTW, what are the side
effects of taking Minocin? I know about Lupus-induced Minocin, but are there
more? If so, I don't think I have
experienced any. I also have never had a herx, that I know of. I spent most of
2005 and 2006 bedridden, but now I am back to full speed after spending the
entire winter visiting my daughter in the Caribbean. Yes, I came back with a
very dark tan even tho' I put lots of sun screen, wore hats, etc. We rented a
car and with the sun coming thru the windshield, I still tanned. I thought the
glass was protecting me. Not so. I want to go on the Marshall starting in Sept
and will have to put up dark drapes as my windows face east and the morning sun
is very bright. One last question. Is a garlic clove the whole bulb that is as
big as a fist or is the small piece you can pull off considered a clove. I
can't imagine eating 5 fistfuls of garlic! Do you have to eat them raw? I have
had them baked and they take on a sweet flavor which is easier to get down. I
use a lot of garlic powder when I cook, but I understand it is not the same.
What about garlic pills as a
substitute? Help me out here. My gut is my biggest problem and my gastro doc
is not helping with his scripts, which I don't want to take. My last endoscopy
was a year ago and showed that I had some inflammation. They did that while I
was under an anesthetic in the hospital because I have heart arrythmia's and
they were worse then. They seem to have subsided now as did most of my other
complaints. But the gut is persistent. I seemed to have problems with my gut
since childhood. Always had bouts of diarrhea and vomiting especially when I
went on vacation somewhere. And always it was called a temporary virus or flu
or just traveler's sickness. I am 70 now and was diagnosed in 2005 with S/D
when I came down with pulmonary fibrosis became anemic and so fatigued that I
could barely walk. Lost 40 lbs. suddenly. Although my problems really started
in 1986 when they said I came down with the new yuppie disease (CFID's). It was
controversial and debatable. It was also
called Mononucleosis. I did test positive a year later for cytomegalo virus
and the Epstein Barr virus after running on and off again fever for a year. A
doc finally gave me acyclovir and I felt a bit better. Ended up with an
enlarged fatty liver, which took about 8 years to get back to normal. It is
still a fatty liver and during that time I got Diabetes type 2 and started
having heart disease due to an increase of plaque in the coronary arteries and
heart aarythmia's. Had 3 angioplasties with rotoblader and balloon, no stent
because I also developed an aneurysm. A cardiac ablation cured the atrial
fibrulation. I haven't ever been the same since. Now that I am in a supposed
state of remission, I want to go into the M/P to get rid of the rest of the
micoplasamas still lurking. But I have trouble trying to convince the docs.
They want me on steroids and Meth and I'm refusing. Doxy, in a pet store?
Really! How do you know what strength to purchase? Your e-mail
was very informative. Thank you Mousey. Dolores
Mouse Tit <mousetit123@...
foods that seemed most likely to cause inflammatory responses, but found that my
own list was not the same. I think it totally depends on your situation and just
what sort of defect or bug is causing the "leaky gut"....could be that if it is
caused by candida, there is a stronger reaction to certain types of foods, etc.
For me, problem foods included any sort of tomatoes, corn (popcorn was much
worse than cooked corn, for whatever reason), chocolate (that was painful!), all
pork products, zucchini, eggplant, peanuts, peanut butter, and others that I
just don't remember. But some that were on the list that everyone says tend to
cause flare-ups....wheat and wheat gluten products, sugar, did not have any
effect. So you have to do things by trial-and-error, keeping a precise list of
everything you eat, and noting any flareups that occur within a few hours of
eating. After a couple months you can really hone in on the foods that offend
your system.
By the way, saw my rheumatologist yesterday. Because there are several side
effects that come from long term minocycline use, and because I seem to have the
flare-ups under control now, he recommended switching to Doxycycline, 100mg once
a day. It is cheaper (you can buy it at Pet Supply places online for about $10
per bottle of 100 capsules....). He noted that if I get a flare-up, to increase
to Doxy twice a day, and see if it can squelch the problem. If Doxy does not
work, we can go back to Minocycline. I had a slight reaction of a swelling in
some finger joints which I am 90% sure was due to the Minocycline, when I was
taking it twice a day (100mg x 3)...but when I dropped down to once a day, that
swelling receded. Interesting, but I can easily tell the difference between that
swelling and the RA swelling...totally different feel in the joints...the RA is
excruciatingly painful, the other is just bothersome.
I will be seeing him again in Sept, and we will do another complete set of blood
tests, and see if the RA levels have dropped. By then it would have been 9
months.
I still have to solve the gut problem. Until that normalizes, I am just stopping
the reaction to the cause of the problem. Taking prebiotics, probiotics, garlic,
yoghurt with all sorts of good guy bacteria....but I need to get more
aggressive, as that is just barely keeping things semi normal. I think I will
try another course of garlic ....eating 5 cloves per day for a week, if I can
take it. Then start with the wormwood capsules, and other herbal anti-microbial
stuff. When the gut is normal again, then I know this other problem will
disappear.
Lots of great books out there....get them and read them....take what you can
from each.
Good luck...
mousey

Question for the ladies only.

2008-04-20 07:00:26

First of all sorry I haven't been around for months,
but I'm happy to announce I'm in my eight month of
pregnancy and the arthritis gave me a break :). The
thing is, the psoriasis quite the opposite, has never
been worse. It used to be very mild, now is the real
deal...So my question for the ladies here that are
moms already is you were able to breastfeed having
psoriasis on the nipples ( I never thought it could
appear in such a place, but it did).
Thank you,
Monica

Re: [rheumatic] Dr in NJ

2008-04-20 03:50:18

Thank you Carol. You are the third person who has said good things about him.
I will try to get an appointment with him. Do you have a contact number to give
me so I can call on Monday? One lady says he sees patients in NY on Wednesdays.
I live in E. Village and that would be wonderful. Thank you, Dolores Rosner
Carol Esposito <myscarol@...
in NJ. Of all the rheumatologists I've seen
(and I've seen quite a few), he is the best. I've been seeing him for
about 10 years. I can't say I'm cured but at least I was able to return
to work part-time. He prescribes doxycycline for me (100 mgs, 3x's a
week) and also benicar (10 mgs per day). I don't know if he will
prescribe the Marshall Protocol, since I never asked him about it, but
when I asked for the benicar, he readily presribed it for me. He takes
my concerns seriously.
Carol E from NY

Re: Enbrel 50 mg

2008-04-19 14:32:07

I just contacted Enbrel for the second time on the needle subject.
Once before I went to the Rheumy for a new prescription and just a
few minuets ago because of concern the needles were bigger.
I was assured that the needles are the same as used on the 25's and
they have not been changed.
I do remember when I started Enbrel that the second batch I got had
some very dull needles and would not penetrate without hurting, that
could be what you are experiencing?
I am sending in my new prescription today so I hope the nurse was
correct with her information.
Dick

Re: Fwd: FW: I'm Just fine

2008-04-19 09:15:03

That poem did the trick, I'm falling apart but I'm fine for the shape
I'm in.
Thanks

Giving Remission a Chance

2008-04-19 04:42:14

Hi Everyone,
It was New Year's Day, 2002, that I woke up with a sore toe, which will
eventually become the sausage that made my PA diagnosis clear a few months
later. Nearly a year into my PA, after trying the usual MTX and NSAID's without
much luck, I started Remicade and have been symptom-free ever since.
A few months after starting Remicade, I dropped all anti-inflammatory and pain
meds, and two years after starting Remicade, I'm checking to see if I'm in
remission.
It's been over 10 weeks since my last Remicade and 9 days since my last 7.5mg of
MTX. So far, so good. In preparation, I tried 9 and 10 week intervals between
Remicade infusions all last year and my feet remained feeling good.
I hope to go drug-free for at least a while. Will keep you posted in a couple
more weeks.
-Robert

Re: [rheumatic] Bravo Julie

2008-04-19 00:41:51

My, my....lol . For lack of arguments we'll refuse debate.......

Sounds Heavenly. Wish I could go....

2008-04-18 16:16:37

I stumbled across this link this morning. It sounds
absolutely heavenly, but is sadly far beyond my reach:
-- Allison
=====

Re: [rheumatic] Refresh us, What was the question?

2008-04-18 11:48:39

Hi Vicki, What did you want to know. Somewhere in that hassle, we all got lost.
Thanks for putting us back on track. Dolores
Vicki <genuinelysweet2002@...
email with that subject line.
In any case, it doensn't matter, I commented already, I done with that thread
and seriously trying to get help here please.
No, I am NOT wise as far as treatment and that is all I am looking for on this
board. I am looking for answers and if you have any to the questions I posted
that would be useful.
I would much appreciate anybody's help. Thanks!
Vicki Shmicki.
If you in your obviously superior wisdom were paying attention you would know
that nowhere in my communication did I use the word riddance. Someone else put
that in a subject line and sent it without a message. Hope you have a nice day
also.Julie Williams

Re: Chronic Sinus?

2008-04-18 09:27:17

I'd never made a connection; but I've been getting sinus infections
several times a year for decades. Anytime I get "sick", it develops
into a sinus infection (green/yellow nasal discharge). Usually takes
a minimum of 2 courses of antibiotics to subside. My most recent
visit to my PMD was for this very reason. He suggsted I start doing
a hypertonic saline lavage (fancy words for nasal irrigatiion; I use
a water pik with a special tip. It squirts up one nostril, and runs
out the other, rinsing away a lot of junk. (Something similiar
actually "cured" my father of chronic sinus infections a few years
back!) Here's a link to a site about the equipment I use...
http://www.inmunotek.com/xItek3.html
Here are some other instructions about it...
http://www.fammed.wisc.edu/research/projects/nasalirrigationinstructio
ns.pdf
And here is a video:
http://www.fammed.wisc.edu/research/projects/irrigationdemo.mov
Later,
Brian

Re: [rheumatic] OT Stem Cells

2008-04-18 00:23:13

Hi Geoff, Well put. I like what you said. Dolores
Geoff <geoff@...
Gee, it seems a real hornet's nest has been stirred up. We haven't had one of
those for awhile -- but never is a good length of time to have another, i.e.,
they don't help anyone and should be taken private.
On the question of stem cells, our major disconnect in the political arena is
really one of PUBLIC IGNORANCE, not political ignorance nor lack of will not
desire to harm. There is a concerted effort afoot to make believe that the only
stem cell research of use is that wherein the cells are collected from dead
babies.
That is not true.
In point of fact, adults' stem cells are proving more valuable, more viable,
more available and more alterable than those collected from either dead babies
or spent placentas. It is a fascinating area of scientific research but hardly
one that NEEDS political champions. That is, from a medical perspective.
The only reason it has gained political traction is that it lends support to
abortion-on-demand and engineering-for-death. Obviously, for the uninformed,
this gives rise to some very heated discussions, both from the abortion
perspective and the healing one.
Since it is both unnecessary and of less benefit to use the stem cells of dead
babies and spent placentas, perhaps the real question to ask is not whether or
not one should support stem cell research, but why stem cell research has become
a divisive political football and who stands to profit, both in power and money,
from it being one.
When you answer the question of profit, then you will know the real issue at
hand. I guarantee: it is not stem cell research per se.
Regards,
Geoff
Acts 2:39

Chronic sinus problems

2008-04-17 21:05:56

To Beth , Allison, & Cheri,
I've always had some sinus problems , but when I started taking MTX
and Enbrel and then later Humeria, my sinus problems have really
kicked in.
The sinus migraines since starting Humeria in late August have been
overwhelming, sometimes daily. Also I had one long sinus infection
in Nov. , that I had to take antibiotics for . And had to go off of
the meds b/c of that.
Now I'm seeing a new ENT and he took me off the Zytec-D ( it was
drying me out too much) and put me on Flonaise and plain Zytec. And
I 'm to clean out my sinuses daily with a Salt water wash , that
doesn't seem to do squat, so I don't always do it.
I just had a cat scan of my sinuses and will be doing the follow-up
with the ENT who ordered it , Jan. 10 . But I know there will be
nothing showing from the cat scan, I had one done several years
ago , and there was "nothing".
I thought I had read on the medicine information flyer for Enbrel
and Humeria that sinus infections or the worsening of sinus
infections are a side effect, but I can't seem to find it now for
some reason.
Any one else remember reading that?
Thanks,
Rosanne

Re: [rheumatic] Sjogren's &amp; Antibiotic therapy

2008-04-17 06:58:23

Has anyone here used this protocol successfully for Sjogren's? Also, what is the
treatment regime most here follow? I would really appreciate a response to this.
Thanks!

Paraffin wax bath

2008-04-17 05:55:51

Hi all,
I recently had a paraffin wax treatment at a massage therapist
salon. She did my feet and hands and then massaged them. Wow ,it
felt wonderful.
My fingers are always hurting from RA/PA , and my skin on my heels
of my feet are cracked . My hands are very dry too.
I'm convince that I would benefit from having my own paraffin wax
bath , but they vary sooo much in price . Some one said they only
cost around $25- $35 at Walmart , But the really good brand ,
therabath pro is around $189. Although I found it on sale at a web
site for $ 136.
I'd like to buy the cheaper one now, and if I find that I faithfully
have use for it and it goes bad then I'll invest in a more expensive
one. I don't want to buy the expensive one only for it to gather
dust b/c it's too much trouble to use. (Been there, done that.)
My question is does the less expensive give as much satisfaction in
performance as the higher priced one ? I know cheaper one, probably
won't last as long. But as long as it does the job , I'd be happy.
Any one have a wax bath for RA/PA? Which brand?
Thanks,
Rosane

Re: [rheumatic] Bravo Shmravo

2008-04-16 21:15:54

We are not bashing the U.S. but stating the facts about the administrations
stance, the pharmaceutical companies, medical professionals and so forth. This
obviously does not ecompass the entire country and its citizens. Thank you and
have a nice day.
Susan Mitchell <mitchell.ok@...
expressing my beliefs on bashing the good ole USA.
If anyone hates America this much, they need to move out. I too, enjoy
and love the info given on our diseases and I would appreciate no more
political statements. Believe me...I could debate anyone about
politics....but not here.
Susan Mitchell

Re: Alternative treatment advice wanted

2008-04-16 20:48:01

Hi Debi, and all,
And I would like to take your prompt to tell the whole group about my
recent success with the tomato diet!
For those who haven't read my posts earlier: I have had moderate PA for
several years, affecting about 6 or 7 joints and two or three tendons,
and treating it with a DMARD (chloroquine) and a NSAID (first
indomethacin, later meloxicam). That controlled most of the joint
symptoms, but not the tendonitis, and the chloroquine severely worsened
my scalp psoriasis, which in turn was treated, but far from controlled,
with a combination of calcipotriol and coal tar.
Well. After reading this forum for a long time, and searching info
everywhere else, I decided to give a try to the "no nightshade diet". I
decided this because I found many independent anecdotes about various
degrees of success, and also because I could try it easily: I don't like
eggplant, I can easily live without potatoes, so the only thing I would
miss would be the tomatoes. I do like them and ate a lot of them. I
decided to try it for some time, and see if there is any effect.
Two weeks after starting the diet, I felt well enough to stop taking the
chloroquine. I stopped it, and after about two weeks the scalp psoriasis
slowly started to improve, again proving that chloroquine DOES worsen
it, even if my rheumy insists that it can't do that... I waited another
two weeks, because the chloroquine takes long (even much longer than
that) to stop its beneficial effect on PA. To my great joy, the PA kept
improving, through the date when I expected the chloroquine to really
stop having any residual effect.
Then I got really bold, and stopped the continuous use of the NSAID.
When I felt some stiffness in the morning, I took a pill, if not, I didn't.
And now, roughly three months after banning tomatoes and their siblings,
I haven't taken any pill during the last three weeks, have NO joint
pain, almost no tendonitis (one tendon has a little left), and the scalp
psoriasis is nearly controlled by calcipotriol alone, without using tar!
To make that clear: From four medications (including one with severe
side effects and two with significant ones) down to one (which has
almost no side effects), joint problems essentially down to zero,
tendonitis down to one tenth of what it was, scalp psoriasis down to
maybe 1/4 of its previous activity!
Now comes the fine print: I have no guarantee at all that the diet is
really causing this improvement. P and PA are known to go through cycles
of exacerbation and remission, and it might be just coincidence that I
got a partial remission from P, and my first ever remission from PA,
just now. It's also possible that the placebo effect is at play, but
then there must be a mighty strong link between the mind and the
joints... Anyway, I do think that the diet is involved in the improvement.
I will continue living tomato-less, potato-less, eggplant-less,
pill-less and painless, as long as this lasts! I hope it will last long.
If anything develops around it, I will let you know.
Cheers,
Manfred.

Re: other alternatives

2008-04-16 12:07:53

I'd have to agree on that about the MTX...actually all of it is
frightening to mebut I ave always HATED taking any kind of medication
and now I'm on about 8. But I got the impression that the majority of
people are on ALL the same meds PLUS the Enbrel. If I am wrong then
that is great. I feel like I just keep adding. And also yes I'm
taking the folic acid too. I just forgot to mention it. Also, a blood
pressure med. One reason I am waiting on the Enbrel is cos I don't
know how much I'll have to pay myself and not sure I can afford it. I
carry my own insurance as I am self-employed.
thanks for the info
Tami

Question re chat room

2008-04-16 08:53:36

As there never seems to be anyone in the group chat room, may be that
I just do not catch anyone with the UK/US time difference. I have
been chatting a couple of times a week(when I am up late and can't
sleep) in the chat room at arthritisinsight.com, due to visitors over
the Christmas period using my computer room as a bedroom, I have only
been trying to chat for the past 2 days, I keep getting an unknowm
host error 500 message. My question is, does anyone else go to the
arthritis insight site, if so can you access it, maybe the site has a
problem or it is my browser or isp ( listen to me, you would think I
knew what I was talking about lol). I have had problems with my
firewall - have to disaable it to open anything, have not got a clue
what to do - but no someone who does and will be seeing them later in
the week.
But for now would like help if finding out what has happened to
arthritisinsight.com, I am missing my chats with some nice people in
the US and Australia
Thanks
Margaret

*******INDEX FOR PSORIATIC ARTHRITIS NEWSLETTERS-2004*************

2008-04-16 01:08:56

PSORIATIC ARTHRITIS NEWS AND VIEWS
VOLUME- 4 ISSUE- 21
December 31, 2004
NEWSLETTER INDEX
The Newsletter Index can be helpful to those of you who may be new to the
group, or for those who may wish to review specific articles published during
2004.
You have two choices to access all the newsletters from 2004.
First, go to our website at _http://www.wpunj.edu/pa_
(http://www.wpunj.edu/pa) created and edited by list member Robert Harris. The
Psoriatic Arthritis
Support webpage is generously hosted by the William Paterson University of
New Jersey. On the left side of the page, click on PA News & Views. Since March
of 2004, newsletters are available using the pdf format.

Re: [rheumatic] Sjogren's, Debbie, AP therapy etc...

2008-04-15 14:37:43

THanks for the support Debbie. Is Debbie Gibson your real name? I was such a fan
of hers in Jr. High. Tee hee.
May I ask what your illness is and how was it you got involved in the movie?
And what made them choose one patient over another? This is very interesting.
I have not been on this board a while. So now that I am here....I have not
begun AP therapy yet. I worry about doing it a year, risking the side effects &
risks yet not getting better. I don't know which antibiotic(s) to use, some have
even added anti virals to the mix. So confusing.
One board uses a chlamydia pneumonia protocol: Mino, Zith and Flagyl. But I
did not test positive for cpn nor myoplasmas. Although on one test I was = to
the minimim amount needed to be positive.
Anyway, few people on the boards suffer from Sjogren's and I am super
miserable. I wish I could find others who got better with long term antibiotics,
then I wouldn't think twice about trying them since life is so hard now. Anyone
out there with this disease?
I appreciate any advice. In the meantime I leave you with funny cartoon. It's
mostly funny if people are familiar with Beavis and Butthead.
Vicki says: No Bush+No Dick= STR (stem cell research)=cures for
diseases=quality of life for us.

Re: Long term Remicade use - questions

2008-04-15 13:09:29

Hi Jeannie,
Isn't that a bummer? the same thing happened to me after a year and
a half on remicade. I was able to stretch it's effectiveness out by
doubling the dose and going in every 6 weks instead of every 8
weeks. A friend's Rheumn told her that only about 20% of people can
sustain good results on remicade without the added MTX. I hope they
can make some adjustments that will help you.
I am currently taking enbrel but do not have as startling results on
it as I did on remicade.
best of Luck to you,
Marti

Re: [PsoriaticArthritis] first doctor's appt.

2008-04-15 05:50:15

Shar, I don't know if you have PA, only your doc can say for sure, but it sounds
like you may. If that is the case I hope you find meds that help quickly to
prevent future damage. Please keep us posted on the results of the appointment.
You are not alone. Cheri

Re: [rheumatic] Hey Julie Williams==&gt; good riddence

2008-04-14 18:50:39

WTF? How rude can you be? What a way to support your fellow sufferer Ms.
Williams. This is not a political board but since you opened up that can of
worms...
First off, this is how you spell: RIDDANCE. I learned it in ummmm....2nd
grade. This is the type of spelling mistake you would find from your ignorant
leader, Bush, no doubt.
I don't know what you are sick from but it is common sense that Bush's
continuous VETO's for stem cell research doesn't exactly help you or any of us.
Saving lives shouldn't even be an issue. But I feel that trying to talk to
people who are brainwashed is pretty useless. It's pretty dang sad.
MICHAEL MOORE ROCKS! Absolute genius. Totally courageous man. I look forward
to seeing the movie :) HE actually cares about the health of Americans.
Dolores/Mike, you are very knowledgeable and I appreciate your sharing such
valuable information for us to read. Thank you!!!
PLEASE feel free to "quietly" unsubscribe. But please...do it "quietly" as you
say, no drama necessary.
Have a great night hun!
ionstanciu <ionstanciu@...

Re: starting Remicade (as Digest Number 2707)

2008-04-14 13:00:47

Hi Karen,
Yes, I started remicade on 12/30. I have had no reaction to it, and
the day after felt a little better energy wise. Since then the pain
and swelling has not gone away. I also have fibro, so I am not sure
whether the pain is more from that and the fact that I am only
sleeping 4 hours a night. My knee which was very painful does not
hurt as bad, but my hips are still painful as well as hands, back
and ribs. It is hard for me to say if it is helping yet, but I figure
it takes time. Hope this helps
Pat
--

Re:Back Pain

2008-04-14 08:30:17

Happy New Year Everyone
My back was doing so good after the radio frequency ablation and the last 3
days it hurts like never before.
This time the pain is not on one side or the other like before. It is right
in the center just below my waistline. Any movement, getting dressed, walking
etc. hurts like the dickens. Pain medication only helps a little bit.
I think I just needed to vent. I am so afraid this PA is getting worse and
attacking my back. My next appointment is not until the end of March. I think
I might try to get in earlier.
Thanks for listening everyone.
Barb

Re: OT a wheelchair for Fran

2008-04-13 22:56:25

sandy, thanks so much for the smile. Happy New Year.

Alternative treatment advice wanted

2008-04-13 18:13:23

I would like to hear from anyone either by post or privately who has
advice on alternative treatments available. THANKS ~Debi

Re:OT - What Does Make You Sick?

2008-04-13 11:35:14

"Junji Takano is a Japanese health researcher and has been studying
the causes of viruses since 1960. In 1968, he invented the Pyro-
Energen, the first electrotherapy device that eradicates viral
diseases effectively and without any side effects."
A fool and his money are soon parted

Re: [PsoriaticArthritis] Fwd: FW: I'm Just fine - Kathy

2008-04-13 09:20:36

Oophs, Sorry Kathy I forgot to edit my previous email. I was so excited. I
hadn't thought of that poem for years. Yet it came back to me like it was
"yesterday" and my dad was reciting it with me.
Sandy swOhio

Re: [PsoriaticArthritis] Doctor Recommendation

2008-04-13 02:31:07

Don't laugh but how do you log onto the site?
Nancy
go to the site at

Re: [PsoriaticArthritis] starting Remicade (as Digest Number 2707)

2008-04-12 16:46:35

Hi, Karen,
I take MTX and just started Remicade on 12/22, and
another member here (Pat) is supposed to have started
it yesterday, I think. I've made a couple of posts
since 12/22 about my experience.
So far, so good. The only discomfort I experienced on
the first treatment was the insertion of the needle. I
felt immediate improvement in my feet, and had tons of
energy the next day. Since then, I've had some ups and
downs from overdoing it at Christmas and picking up
another sinus infection. But, I still feel better in
the morning and the general all-over achy-ness is much
less than before. Search the archives for my previous
message to get the detail.
My next treatment is 1/5 if my sinuses behave
themselves. Good luck with Remicade. I hope your
system will tolerate it.
-- Allison
=====

Re: [PsoriaticArthritis] Pats Remicade update

2008-04-12 10:19:27

Congratulations Pat! I sincerely hope the Remicade works well and you truly
have a Happy New Year! Cheri
Pat Says:
I am home and feel
a little more tired but i think that is more from stress than the
infusion. I was very nervous, but my blood pressure and temp stayed
normal throughout the whole thing. I don't feel any change in my
joints but I figure it takes time. Anway, I am glad it is over and
that I am home.
Gentle hugs
Pat

Re: [PsoriaticArthritis] Chronic Sinus?

2008-04-12 09:32:17

Has anyone here had similar experience with chronic
sinuitis? Can it be related to our PA/inflammation in
some way? Has anyone found relief from this sort of
recurring problem?
Allison, I have had 3 sinus infections in the past year and I had never had one
before so I believe the meds make me more susceptible. My doc said that warm,
dry air creates a perfect environment for infection so he suggested I keep a
humidifier going (I live in a fairly dry climate). I am also very careful,
almost obsessive.....no it is obsessive, about keeping my phones, keyboards
including calculator, counters and anything else that others touch, clean. I
wipe all of them down with Clorox wipes or alcohol frequently. Also, at work I
keep my own pen, mechanical pencil, highlighter and stapler puller in a small
basket and never leave it out for others to use. The people I work with are
very understanding and would not knowingly sabotage my efforts to stay well
either. I know it sounds like too much effort but it really helps. I am in
contact with lots of money and people, mainly college students, whose hygiene is
not always the best. I do not get colds or the flu and now I haven't had a
sinus infection since August.
I hope you do not have to give up your PA meds. Good Luck and Happy Healthy New
Year, Cheri

Re: [rheumatic] Generic vs. Name Brand

2008-04-12 06:59:07

dsaamcbe,
Who is the manufacturer of your generic minocycline? Please ask your
pharmacist.
Sincerely, Harald

Re: [rheumatic] Social Security Disability Approved

2008-04-11 20:15:51

Congratulations, But what does that tell you about a country that doesn't have
a plan to take care of it's sick people w/o that person having to pay for a
lawyer and then having to peddle for a kickback. Most foreign countries just
take care of their sick w/o all the tumult. But, I am glad you are on
disability. Now do you have to wait a year for social security benefits like
Medicare & Medicaid. That's another hassle. Good luck and Congrats. Been
there, done that. Dolores
gubbell <rgsutton@...
disability. I had to get a lawyer -
Allsup, Inc. - and I heartily recommend them. They took 25% of my
back pay, but it was worth it. The information was the exact same as
in my original attempt on my own, but for some reason (I suppose they
know exactly how to write everything up)it was settled in my favor.
Fibromyalgia was my top complaint along with ankylosing spondylitis,
migraines, herniated disks, irritable bowel syndrome, mitral valve
prolapse, and endometriosis. I also have a hiatal hernia which gives
me problems. If you do contact Allsup, give them my name. They said
that if I sent business their way, they'd give me a kick-back of
$50.00 or some such thing. I haven't tested it, so I don't know if
its true or not. To the moderator: if this last section is against
the rules, please take it out. I really do want to recommend Allsup,
though.

Social Security Disability Approved

2008-04-11 15:29:10

I was finally approved for disability. I had to get a lawyer -
Allsup, Inc. - and I heartily recommend them. They took 25% of my
back pay, but it was worth it. The information was the exact same as
in my original attempt on my own, but for some reason (I suppose they
know exactly how to write everything up)it was settled in my favor.
Fibromyalgia was my top complaint along with ankylosing spondylitis,
migraines, herniated disks, irritable bowel syndrome, mitral valve
prolapse, and endometriosis. I also have a hiatal hernia which gives
me problems. If you do contact Allsup, give them my name. They said
that if I sent business their way, they'd give me a kick-back of
$50.00 or some such thing. I haven't tested it, so I don't know if
its true or not. To the moderator: if this last section is against
the rules, please take it out. I really do want to recommend Allsup,
though.

Re: [rheumatic] Dorxy/Virbramycin

2008-04-11 05:57:11

Go to Sarcinfo.com and get that kind of info from the Marshall Papers. Good
luck Dolores
Joi <joifaithhope@...
I haven't emailed in a while, but I hope everyone is doing well. Keep the faith.
I have been on minocin for almost nine years and I am doing well. I acheived
remission once, and I am on my way back to remission after being off of minocin
for some time due to hyperpigmentation. RF is down to 14. Yippie.
I have a friend who is experiencing pretty bad hyperpigmentation on Minocin and
wants to switch to doxcycline. I have some questions about Dorxy/Vibramicin:
1) What is the difference between Dorxy/Vibramicin?
2) Is there a difference between generic doxcycline and Dorxy/Vibramicin? I know
there is a difference between minocin and generic minocycline. I personally
didn't fair well on generic doxycycline.
3) Is Dorxy or Vibramicin pelletized to be time release like Minocin?
4) What is the proper doseage for Dorxy or Vibramicin? The friend is on 100 mg
of minocin per day. Should she take 200 mg of dorxy/vibramicin since
dorxy/vibramicin is not as strong as minocin?
Any advice is appreciated.
Good Bless and Keep Your Spirits Up!!!!!!!

first doctor's appt.

2008-04-11 00:35:01

Here goes......I sure am scared. I have an appt. with my doctor in a
few days. Here are my symptoms: very stiff hands in the mornings,
can't use my hands most of the day to do anything that requires my
fingers to grip (such as peeling a potato), 2 trigger fingers, eyes
that are pink and watery, very tired (especially in the morning),
depression/anxiety (am on meds), and I've lost a couple toe nails.
I've had psoriasis for about 14 years.
Does anyone out there think I might have PA? Just wondering your
thoughts.
Thanks you, Shar Sackett

RE: [PsoriaticArthritis] Hi, an update, its been a long time since posting!

2008-04-10 20:02:33

I really enjoyed your personalized depiction of your holiday travels..makes
a lot of us want to count our blessings, but also proud to know someone so
positive, upbeat, and flexible....I'm afraid some of us get in a rut just
dwelling on our own little miseries. And a happy, healthy, prospersous 2005
to you too!
Liz T

Re: [rheumatic] questions about AP and MP

2008-04-10 17:23:13

They are both antibiotic protocols. A/P just means that you believe in the
"Infectious Theory" and are using antibiotics, usually 200 mg per day of
Minocin once in the a.m. and once in the p.m. The M/P was started by Trevor
Marshall who is not an MD, but a scientist. He developed this protocol using
various antibiotics and giving them at different dosages and on different days
with rest days in between. It's a bit more complicated than that. He, I
understand cured himself of Sarcoidosis. Don't know who told me that and I
don't know if it is true. Following it exactly is supposed to get rid of all or
most of the micoplasmas that are left over. There are also more protocols, but
these seem to be the two most popular. You must read the books by Henry
Scammell and Dr.Thomas Mac Pherson Brown. It explains the "Infectious Theory"
and then it is easier to understand why the antibiotic is used. I reached
remission using only Minocin twice a day within 18 months. In
September when the sun is not so high in the sky, I will begin the M/P.
Sunlight and watching the ratios between your Vit D 25/ & vit D 125 is
essential. You can get started with phase 1 by going to
www.marshallprotocol.com. Your doc can get phase 2 & 3 direct from Trevor
Marshall himself. Good Luck. Dolores
Kathy <sunbriar@...
differences or reasoning between the AP (antibiotic protocol) and MP (Marshall
Protocol) Im trying to research this so i can have an intelligent converstation
with my DRs. kathy

New meds--acid reflux

2008-04-10 06:05:22

Thanks for that tip, I will try it. I take acidophillus, but sometimes I
overindulge and eat spicy food and then I'm in trouble. Thank you, Dolores
ucccathy <ucccathy@...
posts on this group for a long time,
but I'm back reading now, and I saw your post. I came across an
approach for acid reflux that works very well for me, and apparently
others. I read it in a natural health newsletter years ago, and I'm
sorry I don't have the author or title.
The approach to resolving acid reflux is to avoid liquids with meals.
Liquids generally dilute the digestive acid in our stomachs, and
cause incomplete digestion of food. Then, I guess the mechanism is
that the stomach produces even more acid over time, trying to
compensate. Not sure about that part. What I am sure about is that
this works and I have always seen definite results within three days
of getting back on this routine. I try to stick with it because I
want my supplements to get digested and used by my body, as well as
my food.
No water, juice, milk, coffee, tea, or any liquids for one-half hour
before a meal. Then eat your meal and do not drink liquids with it.
Then no water etc. or any liquids for one hour after the meal--let
the stomach digest the food first.
Thought I would share this since it's been so helpful to me.
Cathy

prolotherapy

2008-04-10 03:22:13

Jan, I have never heard of this before, nor the herb, pregnenolone, you
mentioned. If you try either of these, how about letting the rest of know how
it worked for you. Keep us up-to-date. Thanks. Linda in Poulsbo, WA.
Subject: Re: prolotherapy
prolotherapy - has anyone tried this? here is a web site explaining about it.
www.getprolo.com I've been getting trigger shots in my back and shoulder to
neck area they help alot. also there is a herb that helps - the name of it is
pregnenolone has anyone else tried it?
Jan from AL

PSORIATIC ARTHRITIS NEWSLETTER NO. 78

2008-04-09 21:01:29

PSORIATIC ARTHRITIS NEWS AND VIEWS
VOLUME- 4 ISSUE- 20
December 31, 2004
PSORIATIC ARTHRITIS MEDICAL NEWS
TWO NEW PSORIASIS TREATMENTS COMING SOON?
Two New Psoriasis Treatments May Be Ready for Human Testing
Dec. 16 (HealthDayNews) -- Two separate approaches to treating psoriasis, a
painful condition that attacks the skin, have shown promise in the lab and may
be ready to try on humans.
The first is an experimental drug called benzodiazepine-423 (Bz-423) that is
a chemical cousin of the anti-anxiety drugs Valium and Xanax, a new
University of Michigan study finds.
In human skin cultures designed to model psoriasis, the researchers found
that Bz-423 suppressed cell growth. Psoriasis is characterized by unchecked cell
growth.
"Currently, the best treatments for skin lesions associated with psoriasis
are topical steroids, but the problem with those drugs is that they're not
selective for the disease-causing cells. They affect normal cells as well, and
repeated use over time can lead to tissue destruction," Gary Glick, a professor
of biological chemistry, said in a prepared statement.
"What makes our compound particularly exciting is that it has the potential
to be applied topically, and it shows very good selectivity for models of the
disease-causing cells versus normal cells. So we believe the problems
associated with repeated topical steroid use could possibly be alleviated with
compounds like this," Glick said.
He and his colleagues hope to begin human clinical trials with Bz-423 in the
near future.
Glick is a shareholder in GMP Immunotherapies Inc., which signed an
exclusive patent license and a sponsored research agreement with the University
of
Michigan to develop Bz-423 and other compounds.
The second study goes to the cause of psoriasis itself. A Dec. 12 news
release from The University of Texas M.D. Anderson Cancer Center in Houston says
scientists have identified a protein called STAT3 that initiates psoriasis when
the body's immune system is activated to fight off a wound, burn or some
other invasion.
The scientists actually developed a skin cream that cured the itching,
redness and scaling that psoriasis caused in the study mice. The ointment can
also
prevent recurrence, they said.
John DiGiovanni, Ph.D., the study's lead investigator and director of M.D.
Anderson's Department of Carcinogenesis, said in the news release, "We may have
found an entirely new treatment option for psoriasis." The study appears in
the January 2005 issue of the journal Nature Medicine.
Until now, the cause of psoriasis has remained a mystery. According to the
news release, patches of skin that become inflamed are most often the scalp,
elbows, knees, and lower back. Treatments have been most effective in slowing
down its progress, but nothing exists to cure psoriasis, DiGiovanni says.
"We may have found the link - the change in keratinocytes [skin cells that
make keratin, the substance that comprises hair, nails and skin] that
cooperates with the immune system cells necessary for development of human
psoriasis."
Robert Preidt - SOURCES: University of Michigan, news release, December
2004; news release, The University of Texas M.D. Anderson Cancer Center,
Houston,
Dec. 12, 2004 - Copyright © 2004 ScoutNews LLC.
*******************************************************
SHOVEL SNOW SAFELY
Experts list precautions you can take before you tackle this winter chore
Dec. 11 (HealthDayNews) -- Shoveling snow can be more than a chore; it can
be a health hazard if you don't take some basic precautions, warns the Canadian
Physiotherapy Association (CPA).
Back injuries, muscle strains, hypothermia and heart attack are among the
potential dangers. The CPA offers the following advice for safe shoveling:
Before you start shoveling, take time to warm up and stretch your muscles.
Warm, relaxed muscles are less likely to suffer strains than cold, tight
muscles.
Choose the right shovel. A shovel's handle length is right for you when you
can slightly bend your knees, bend forward 10 degrees or less, and hold the
shovel comfortably in your hands as you begin a shovel stroke. A plastic shovel
blade is lighter than a metal one, so it puts less strain on your back.
Ergonomic shovels with a bent shaft are better than straight shaft shovels.
When you hold the shovel, keep your hands at least 12 inches apart. This
increases your leverage and reduces the strain on your body.
When you lift snow, squat with your legs apart, bend your knees and keep
your back straight. Make sure to lift with your legs and don't bend at the
waist. Scoop up small amounts of snow and walk to where you want to dump it.
Spraying a lubricant or silicone on your shovel will help prevent snow from
clinging to it.
Step in the direction that you're throwing the snow. This will prevent
twisting in your low back.
If there's heavy snow, tackle it in two stages. First, skim off the top
layer and then remove the bottom layer. Don't overload your shovel. If you can't
say a long sentence in a single breath, you're working too hard. Take a break
or reduce the intensity of effort.
Take plenty of breaks while you shovel. Every so often, stand up straight
and walk around to extend the lower back. Place your hands on the back of your
hips and bend backwards slightly for several seconds.
Dress properly. Wear mitts, not gloves. Dress in layers. The inner layers of
clothing should be made of material that wicks perspiration away from your
body. Don't wear cotton. It traps moisture close to your body. Outer layers
should be windproof and water-resistant. Wear a scarf and hat to reduce heat
loss. Your footwear should have good treads that will prevent slips or falls.
If you have any health problems or are in poor shape, don't shovel. Before
winter, arrange for someone to clear the snow off your driveway and sidewalks.
Robert Preidt - SOURCE: Canadian Physiotherapy Association, news release,
December 2004 Copyright © 2004 ScoutNews LLC.
*********************************************************
MORE EVIDENCE OF INFLAMMATIONâS ROLE IN HEART DISEASE
Even infection can have inflammatory effect on blood vessels, research finds
By Ed Edelson - HealthDay Reporter
Dec. 15 - Two studies an ocean apart illustrate the growing importance of
inflammation as a contributor to heart attack, stroke and other cardiovascular
diseases.
In the United States, researchers at the Harvard School of Public Health
report that blood levels of C-reactive protein, a molecular marker of
inflammation, rank with cholesterol levels as indicators of future coronary
heart
disease.
And in England, researchers at the London School of Hygiene and Tropical
Medicine report that an ordinary infection -- such as the flu -- may raise the
risk of heart attack or stroke over the next few days because of an
inflammatory effect on blood vessels.
Both studies appear in the Dec. 16 issue of the New England Journal of
Medicine.
Inflammation is the process by which the body responds to injury or
infection. Laboratory evidence and results from clinical and population studies
suggest that inflammation is important in atherosclerosis, the process by which
fatty deposits build up in the lining of arteries, according to the American
Heart Association.
The British study was undertaken because inflammation is known to play a
long-term role in cardiovascular disease, said study author Liam Smeeth, a
senior lecturer in epidemiology.
The idea that an infection could have an immediate damaging effect on the
endothelium, the delicate lining of the blood vessels, came from laboratory work
done by Dr. Patrick Valliance of University College London, Smeeth said. So,
the British researchers looked at the record of infections reported by
nearly 40,000 people who had had a stroke or heart attack.
"The risk of both events were substantially higher after a diagnosis of
systemic respiratory tract infection and were highest in the first three days,"
the researchers reported. Urinary tract infections also raised the risk, but to
a lesser extent, the study found.
There was one bit of good news: Getting vaccinated against influenza,
tetanus or pneumonia did not increase the risk of a cardiovascular event, as the
researchers suspected might happen.
"Either it [vaccination] produces no inflammatory effect or it has an effect
only in a subgroup of people," Smeeth said. "That is reassuring news."
The Harvard report used data from two studies that have been following more
than 120,000 health professionals, male and female, for many years. They
underwent a large number of blood tests, including markers of inflammation, at
the start of the study. The researchers looked at those levels in the 239 women
and 265 men who had heart attacks or died of heart disease over the next six
to eight years.
A high level of C-reactive protein -- more than 3 milligrams per liter of
blood -- increased the risk of such an event by nearly 70 percent, compared to a
reading lower than 1 milligram per liter, after adjusting for the presence
of two other risk factors, diabetes and high blood pressure, the researchers
found.
Blood levels of cholesterol and other lipids were stronger predictors of
trouble, but "the level of C-reactive protein remained a significant contributor
to the prediction of coronary heart disease," they reported.
Right now, measuring blood levels of C-reactive protein are "supplementary
to measuring traditional risk factors," such as cholesterol, blood pressure and
obesity, said Dr. Nieca Goldberg, chief of women's cardiac care at Lenox
Hill Hospital in New York City, and a spokeswoman for the American Heart
Association.
"There are individuals in whom we would want to measure C-reactive protein,
such as those who have coronary disease but no other risk factors and those at
borderline or intermediate risk," she said. "But we are not at the point
where we would use it as the sole determinant of risk."
Jennifer K. Pai, a research associate at the Harvard School of Public Health
and lead author of the journal report, said she agreed with that assessment.
"Using it [C-reactive protein levels] in conjunction with these other risk
factors probably would be best," Pai said.
SOURCES: Liam Smeeth, PhD, senior lecturer, epidemiology, London School of
Hygiene and Tropical Medicine, England; Nieca Goldberg, M.D., chief, women's
cardiac care, Lenox Hill Hospital, New York City; Jennifer K. Pai, Sc.D,