Relafen, Polymyalgia Rheumatica

2008-01-31 20:56:46

Michelle,
Your wrote, "Everything is negative, but I have severe pain in my
hands, wrists, feet, ankles and sometimes my neck and back."
Normal blood work combined with tendonitis, joint pain and muscle
pain in many places may well be polymyalgia rheumatica (PMR), so go
to www.google.com and research that topic. Also talk to your doctor
or rheumatologist about that possibility.
One of the tell-tale signs of PMR is that it comes on quite suddenly.
A primary diagnostic is the immediate removal of all pain in response
to small dosages of Prednisone, such as 10 mg per day.
The good news about PMR is that it can be cured in about 1 year with
decreasing doses of Prednisone. Stay on 10 mg of Prednisone for a
couple of months, then go down 1 mg every three weeks. When you are
down to 3 mg, go down 1/2 mg every 3 weeks until you are down to 0 mg.
In the meantime, put yourself on an anti inflammatory diet. Start by
avoiding all beef, citrus and processed foods. Eat salmon, rice and
vegetables. Use olive oil.
I have PMR, but was misdiagnosed as having RA for 5 years.
Sincerely, Harald

Re: [PsoriaticArthritis] Water excersise

2008-01-31 18:11:56

Hi, Pat!
Warm water makes everything better, doesn't it? When
travel (about 1x/month), I use the hotel whirlpool as
a place to loosen up and stretch. I helps a lot!
Re: exercising hands... I don't know what therapists
would recommend, but I find myself just stretching and
flexing my hands open and closed several times
throughout the day. I also do "air arpeggios"... kind
of like piano exercises in the air, moving each finger
separately like you're counting on your fingers. Don't
forget to stretch and flex your arms and shoulders!
They're all connected.
Good luck!
- Allison
=====

Water excersise

2008-01-31 09:24:49

Hi Everyone,
Just wanted to share a good experience I had yesterday. My Rhuemy
recommended that I do water excersise and Tai chi (?). So yesterday I
went over to the health club and did the aqua light class. At 45 I
was one of the youngest there but the class was great. The warm water
felt wonderful and I was able to do all the movements because the
water takes the weight away. I am not too sore this morning so that
is a plus.
I tried the tai chi once before and I hurt so bad the following days
that I couldn't get on or off the toilet.
I am hoping the water excersise will start to strenthen some muscles,
since the fibro is bad,and Pa is progressing and moving is definitely
going to help the tin man knees and hips.
The whole class was very soothing and relaxing.
Does any one have any ideas of how to work out your hands. My fingers
and hands are very stiff and painful.
Well just thought I would share,
Pat

To Annie: Enbrel

2008-01-31 09:01:45

Hi Annie,
Welcome to the group. I am presently on Enbrel and did well on it.
The injections are easier to do then you think. The first time I did
it I messed up mixing it. After that, I never had a problem. I know
it is coming premixed soon. Is that what you have? Enbrel has stopped
working for me and I couldn't get approved for humira, so now I am
waiting on remicaide.(sp?) I hope you have great success with the
enbrel and don't worry by the second shot, you'll be an expert at it.
Welcome again and good luck
Pat

re; michelle

2008-01-30 21:17:55

HI, sounds alittle like what I have and all test were negative, so it was a
"rule out diagnosis" anyway they said I have psoriatic arthritis, also an auto
immune, My hands and feet look OK but I have hurts especially my right hand,
right shoulder. but no psoriasis (yet) anyway they started me on methotrexate
once a week. so far Ive had no bad reactions and today (took the pills last
nite) I actually feel pretty good... didnt even take any alieve today (yet) so
maybe ask about that... Kathy

Re: [rheumatic] affects of methotrexate and predisone

2008-01-30 12:13:17

Dear marilyn,
Try contacting The Road Back Foundation on line. The
person in charge had Scleroderma and if she is still
with the org. she can refer you to tratments and dr's
familiar with antibiotic treatment. According to the
book The New Arthritis Breakthough, it can be beat,
but must be treated aggressively during flare-ups. Low
dose cortsone/prednisone is used fo Rheumatoid
diseases and should be used in certain instances and
can be benificial. The emphasis is low doses. High
doses of intravenous antibiotics are given during
flare-ups and during initial treatment of some cases.
Oral antibiotics-tetricycine- is used otherwise in low
doses. I am taking Doxycyline to control Rheumatoid
Arthritis. Please check these sources and I pray that
the Angel Raphael is with you to guide you to health
and complete recovery for your daughter.
Please contact me at sharonbgood@... to discuss
privately any other questions or if you would like a
list of websites with more info including websites
that clarify the protocol that is being discussed for
you daughter using methotrexate.
best regards,
sharon

Could it be Lyme disease? You might want to consider New Test For Lyme Disea

2008-01-30 08:45:08

Vicki,
Based purely on supposition at this point, I believe my wife possibly
contracted Lyme disease. We have ordered the test that Carol recommended.
Hope to have a result on Monday.
My guess is that my wife, Tammy, contracted Lyme while we were living in a
rental home awaiting the completion of our house. The rental house ended up
being infested with ticks within a month or so of us moving in. The
previous tenant had dogs.
I think the Lyme disease weakened her immune system then led to a mycoplasma
infection which ultimately caused a rheumatic disorder. This is the ultimate
cause of the erosion on her pubic bone.
Letąs see how good my diagnostic skills are....
I will definitely post the outcome on here.
Thanks,
Jon
From: Vicki <genuinelysweet2002@...

Relafen

2008-01-30 03:24:07

Michelle,
Relafen is a non-steroidal anti-inflammatory drug (NSAID). I was on
it in 2005. I found it expensive, with a $50 HMO copay, and also
totally ineffective. If you have to take an anti-inflammatory drug,
take Alieve (naproxen), which is inexpensive and available over the counter.
http://www.drugs.com/relafen.html
"This medicine [Relafen] can increase your risk of life-threatening
heart or circulation problems, including heart attack or stroke. This
risk will increase the longer you use Relafen... This medicine can
also increase your risk of serious effects on the stomach or
intestines, including bleeding or perforation (forming of a hole).
These conditions can be fatal and gastrointestinal effects can occur
without warning at any time while you are taking Relafen."
Do your blood tests support the diagnosis of rheumatoid arthritis, or
are your blood test results normal?
Sincerely, Harald

Re: [PsoriaticArthritis] enbrel and Methotrexate

2008-01-30 00:59:26

Hi Laurie,
Im new to this forum and was thrilled at the response I recieved to my very
first post with questions about anyone taking Enbrel. Since I did have such a
great response I thought I should respond to your question.
I took Methotrexate about a year and a half ago. After about a month or two of
taking it I started experienceing a rapid/irregular heartbeat and consulted with
a cardiologist. After fairly extensive testing and a sonogram of my heart the
doctor was stumped and told me to eliminate caffiene from my diet which I
did.....there was no relief from the palpations.
In desparation for relief I decided to begin my own "eliminating" and
methotrexate was the first thing I eliminated...bingo! Within a couple of days
my palpations were completely gone and I have not experienced them since. Pay
attention to your "feelings" and let you doctor know if you dont feel "right".
Just also to let you know, I have a friend who has very successfully used
Methotrexate and is still using it with absolutely no problems. It definately
keeps her moving! Good Luck!
Sincerely, Annie
Arlie Ann

Unlike Rofecoxib, Celecoxib Not Linked to Increased Risk of Myocardial Infarction

2008-01-29 15:48:34

Dear Friends, I think this is useful for every of us.
Greetings,
Alfredo Arróspide
Lima, Perú
To Print: Click your browser's PRINT button.
NOTE: To view the article with Web enhancements, go to:
http://www.medscape.com/viewarticle/495456

Re: Im a new member

2008-01-29 06:00:54

Hi Annie,
Welcome to the group. It is a great group! I just last Saturday
night started Methotrexate. I was scared to death but many on this
forum encouraged me and told me their experiences with it and I had
no side effects at all. I know you will in a few minutes or couple
of hours hear from many on this group who have taken Enbrel. Don't
be afraid...we are here for you. My next step will be to take
Enbrel or Remicade if the MTX doesn't work. You will be able to
encourage me by then I would bet!
Sharon

Re: [PsoriaticArthritis] Infection

2008-01-29 04:09:56

In a message dated 12/9/04 7:05:58 PM Central Standard Time,
mcqueenm46@... writes:
I'm in the category of people whose joints rear up and shout
when battling an infection.
I certainly agree with that one. I had a bad tooth acting up a few of weeks
ago that caused some swollen lymph nodes, a little headache and mild fever
which broke a near remission of the PA that lasted about 2/12 years. My
shoulders
are nearly as bad as theyve ever been and my skin has gone to about 15% and
more pain in the plaque areas than I can remember before. I had been treating
the occasional mild PA flare with a few days of vioxx but dont have any more. I
just have to be careful not to strain any more than necessary to do my job.
It's hard to face that I've been able go back to work but am getting screwed up
again. If I overdo it then I will be useless for 3 days until the pain
subsides and over-doing it is amounting to as little as carrying 30 pounds 50
feet.
Cant get in to derm till the 23rd and rhuemy till Jan 17 Anyone else notice
big changes during relatively minor infections? Orin

Re: [rheumatic] Chronic Pain and MS

2008-01-28 22:05:01

Thank you so much, Harald. We will be seeing both her rheumatologist and
neurologist in the next few days and now I have this additional information to
share with them and question them about.
Ellen

enbrel and Methotrexate

2008-01-28 14:35:12

Hello:
I started Methotrexate yesterday and waiting approval for enbrel. I
am nervous about taking meds. Any advice or warnings about these
drugs.
Laurie

Re: [rheumatic] Doxy?????

2008-01-28 05:04:08

Hi...I just switched (2 wks ago) to Doxy 100 mg (2 x's daily) on M/W/F and
Zithromax on Tues and Thurs, 1 daily (weekends off). For 7 yrs, since I was
diagnosed with RA, I've been on minocin (pelletized) in various dosages (never
the maintenance tho). My doctor (holistic and sometimes integrative) has
taken me to higher levels definitely, however, I'm not there yet, and a few mths
ago, I was hurting a lot, especially knees and shoulders. So he "remodeled"
my AP therapy and I just started, as I said, 2 wks ago. However, I have
noticed an improvement this
last week, so I'm hoping this adjustment is working. Will keep you posted.
Anyone else doing doxy plus zithromax?
thanks,
Judy
************************************** See what's free at http://www.aol.com.

Re: [rheumatic] Vitamins, Herbs, or Supplements are Best Treatment

2008-01-28 03:11:53

I've removed and banned this person.
Chris.

re: Annie, first dose of Enbrel

2008-01-27 22:00:40

Annie,
You have nothing to lose but your pain and fatigue. For those that
it works for, it is life changing. I personally have no side effects
but a burst of energy after the injection. After my initial shot I
started feeling the effects at day 3 and was perfect by day 12. I
must add that I take it with methotrexate, that might not be your
case. Don't be scared, think positive! Good luck.
Ellen

Re: [PsoriaticArthritis] Im a new member

2008-01-27 16:03:11

Hi Annie, welcome to the group. No need to be nervous
about Enbrel, it's an easy shot to administer, you
won't even feel the needle...before long you'll be a
pro at administering the shot. Many in the group are
using or have tried Enbrel, and the percentage of
those of us who had a bad reaction to it is low, so
hopefully it will work for you. Keep us posted on your
progress :)
warm blessings, Jane

Infection

2008-01-27 10:59:43

HI this is Mary in W.F. wanting to report on getting an infection on
Enbrel and MTX. This was my first experience with a distinct problem
like this as far as I know. Thanksgiving Day began with some
congestion and coughing. This continued to worsen; on MOnday, I took
my meds -mtx and Enbrel - then went to a rheumy appt. My wonderful
rheumy said I probably had a sinus infection - definitely had the
swollen glands - but no facial pain (perhaps hard to tell with the
Tylenol and NSAID right? She put me on Levequin (sp?) for 7 days and
now I'm starting back on the injectibles. My shocking discovery was
that I'm in the category of people whose joints rear up and shout
when battling an infection. Wow - I felt all the progress of the
past few months was gone. Next time I will be better prepared, but
it really made me crash for a while mentally. I know you discuss
these things and I should have known to stop the injectibles, but I
guess it takes experience to teach some lessons. Now things are
ameliorated and I think I'll be ready to travel next week.
Also wanted to say Right ON, Sharon! I hear you...I'm trying to gear
up for the fight to lose weight - ease the burden on the joints, but
it's hard to get and STAY in gear mentally.
Mary

Im a new member

2008-01-27 08:38:01

Hello, I'm Annie and this is my first time here in this forum. I am
battling psoriatic arthritis and have what will be my first dose of
Enbrel sitting in my fridge right now. All I have to do is set the
appt with my doctor for my first injection. Im kind of nervous about
it so I sought out this forum just on the chance someone might have
experience with it and would give me a heads up on it. I hope to get
to know many of you and thank you for creating this place!
Annie

Could it be Lyme disease? You might want to consider New Test For Lyme Disea

2008-01-27 00:51:59

OOPS! forgot to say that the Lyme could be the trigger that started the SD

Could it be Lyme disease? You might want to consider New Test For Lyme Disea

2008-01-26 15:41:16

Hi Vicki;
It took several years for me to find aan AP system that would work
for me.Had to do a complete diet change and get Celiac under control
before anything worked.Today I am 99% better and no visible sighn of
Scleroderma.I do have acky days but not enough to slow me down Lynne G/SD

Re: [PsoriaticArthritis] how differently PA effects us

2008-01-26 11:43:43

Ellen, your mail really struck a chord with me. I went on Humira last spring and
my life changed. When I was on Humira it was an illuminating & very disturbing
experience to realize how much of my day was governed by pain - needing to plan
out how to roll out of bed, not going to a store because it was too hard to get
my son in and out of his car seat, etc. Now, post-Humira ( I had a severe rxn to
it), I'm scared to try another drug but I definitely will. This time around, I'm
much more aware of how difficult my PA makes my life.
Cheers,
Beth
ellen cahill <ellencg@...
Group,
I must add my observations about my disease for others that are newly diagnosed.
I didn't know how bad I had PA until I finally had relief...

Vitamins, Herbs, or Supplements are Best Treatment

2008-01-26 07:16:28

Vitamins, Herbs, or Supplements are the BEST treatment for you:
Vitamins, Herbs, & Supplements, and SAVE up to 82%:
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Please FORWARD these links to a friend! Or, you can contact Dr.
Fadiaro Afolabi ("Dr. Fa") Holistic Wellness & Natural Therapies Call:
973-678-7575 Mention that you were referred by: Sam L. Calland

Re: [rheumatic] Physician-SLE Patient Relationship

2008-01-25 23:21:55

Sorry Jennifer, I am nor eligible for you survey due to age requirements. I'm
past 60. Adjunct Professor Emeritus, Carol Fisch
In a message dated 4/16/07 11:26:00 PM Eastern Daylight Time,
jbennett31@... writes:
Thanks for opening my thread! I am conducting my dissertation
research on the Physician-Lupus Patient Relationship, and I would
really appreciate your participation in my survey. Please read below
to see if you meet the criteria:
The Physician- Lupus Patient Relationship Survey
The purpose of this study is to investigate the relationship between
Lupus (Systemic Lupus Erythematosus) patients and their physicians.
In particular, the researchers are interested in how individuals'
general experience of relationships relates to their relationship
with their physician. Additional focal points include how this
medical relationship relates to issues such as how healthy patients
feel, their satisfaction with treatment, and their adherence to
treatment. It is hoped that the results of this study will reveal
information that will assist not only lupus patients, but all medical
patients in getting the critical care and attention they deserve from
their medical provider.
Criteria for patient eligibility include:
(a) Being between the ages of 21 and 60
(b) Receiving a diagnosis of Systemic Lupus Erythematosus (SLE) at
least 3 years ago
(c) Having seen the same physician three times in the last year
(d) Willingness to respond to survey questions regarding adherence to
their treatment regimen, overall satisfaction with treatment, their
own health-related quality of life, their relationship with their
physician, and other close relationships in their life.
Participation should take 15 - 30 minutes and involves completing a
survey over the internet or by mail. All information will be
confidential. A donation of $1 will be given to a Lupus foundation
for every individual who participates.
To participate, please click on the link below (if you have trouble
opening the page, try copying and pasting the link into your web
browser):
_http://www.surveymohttp://wwhttp://www.survehttp_
(http://www.surveymonkey.com/s.asp?u=231683246974)
Or, if you have questions, please contact:
Jennifer at (310) 975-9258 or
_jbennett31@..._ (mailto:jbennett31@...)
************************************** See what's free at http://www.aol.com.

a break for laughter

2008-01-25 21:55:44

I love a good laugh when I am not feeling well. A friend sent me this
link with a car commercial from England. It brightened my day I hope
it gives you a lift as well
http://www.my-funny-stuff.com/funniest-car-video.htm
Rusty

Re: [rheumatic] AP Theraphy

2008-01-25 11:29:57

Hi Lucie;
I was just like you.I sure hate to remember those days.Things got
steadily worse for at least a year and then kind of leveled off,no
better,no worse for the next 3 years.It was only after finding out about
too much vit D,celiac and associated food sensitivities that I could get
the AP to make dramatic improvements.You really have to try to find the
cause of your disease first and foremost. Lynne G./SD

[rheumatic] Minocin - Where to buy?

2008-01-25 08:19:40

I am in Shanghai, China now to visit my parents who
are 85, and 81. The average longevity for the people
in Shanghai is 80. I was extremely excited to find
Minocin made by Wyeth for sale in the drug store.
Minocin is the pellated, authentic Wyeth's, in green,
as the one I once took in States, purchased from
Triax. The price is about $70s for 100 (100 meg)
pills, taking account of exchanging US dollars to RMB.
It is about one third cheaper than Minocin sold in
Canada ($126). Wyeth and Pfier spent big money
building many labs and factories in China, greatly
increased the life span of the Chinese. I have
already switched to China's Wyeth's. China is the
paradise of antibiotics at great prices. I will stay
in Shanghai for a while. I can send you a pack with 10
pills (100 meg X10, 50 meg X20) by Wyeth. Don't worry
about the shipping cost because my husband is back to
California soon. If we buy more, we can always
negociate even better prices so we all benefit from
the low price, especially China. I hope you
understand what I mean. Nanchuli@...
--- Sue Emrick <semrick@...

how differently PA effects us

2008-01-24 18:13:40

Group,
I must add my observations about my disease for others that are newly
diagnosed. I didn't know how bad I had PA until I finally had
relief. I thought it was just in my newly diagnosed hot swollen knees.
MTX helped them for a while then stopped. When I went on Enbrel with
Mtx, WOW, I could sleep through the night like a baby in any
position. I never even thought to mention it to the doctor that I
have had back and hip pain at night for the past almost 20 years and
have only gotten sleep flat on my back. Sitting wasn't much better,
at work I had an $850 chair so that I could be comfortable and at the
movies or other events I always brought special seating material.
Well since Enbrel all that is over. I am just about normal. My
rheumatologist is amazed. Not with Enbrel, but with my story. You
see, I just thought I had a "bad back". He says it is very common for
people to have PA for many years and not know it. So before you go
on any treatment think about any "chronic" pain and see how it is
effected. I was pleasantedly surprised (and somewhat disturbed).
ellen

Re: [PsoriaticArthritis] Red meat link to arthritis risk (article)

2008-01-24 13:43:55

In a message dated 12/8/04 2:38:59 AM GMT Standard Time,
mickysz@... writes:
My father in law owns a farm and a lot of his Bullocks get arthritis? I
can't remember but I'm sure they only eat Grass?
Hi Micky,
Now you are making my eyes water.....................................ohhh
you said Bullocks................I thought you said........................oh
never mind. lol
cheers,
Martin
[Editor's Note: Gawd, Martin, I thought the same thing and was wondering why
his father-in-law had more than one, LOL. I thought Mickey was starting to post
cyber porn and I was not sure how to edit it - but then it WAS arthritis
related. Phew...Bullet and bullock dodged. Kathy F.]

Could it be Lyme disease? You might want to consider New Test For Lyme Disea

2008-01-24 06:16:36

jon, sorry the doctors missed your wifes Lyme disease, they are such idiots most
of them it's so sad. I assume you found out based on the tests Carol spoke of?
Sorry I dont know where your story is. My eyes are burning like crazy and I have
to get off the comp. Please send the link to your story if you can, thanks.
Jon Krutchik <jkrutchik@...
Read my short story on Lyme that it what Carol was responding to. I since
found out that what I thought was my little discovery is already discussed
on here. I am very new to this and have a lot to learn.
Long story short....the majority of people who acquire Lyme disease end up
with Mycoplasma infections that, as as almost all of us on here believe,
ultimately leads to rheumatic disease. I still canąt believe that not one
doctor my wife saw even asked if she ever had Lyme disease; then again, most
donąt see mycoplasma as a real problem in the first place.
Carol,
Thanks very much for the valuable info. I will follow up on this. My only
concern is that my wife is on Cipro for a bladder/kidney infection. She has
another few days to go. I need to find out if the test you mention can be
impacted by the current antibiotics.
Jon
From: Vicki <genuinelysweet2002@...

Could it be Lyme disease? You might want to consider New Test For Lyme Disea

2008-01-24 04:29:35

jon, i am confused what came first, the SS or Lyme? I assume I would do the
testing Carol mentioned to know if I have Lyme or not? And regardless if I do,
isn't the treatment protocol the same? How long before the antibiotics help?
What would I take besides Mincocycline? I took it a month before but quit.
Thanks.
Jon Krutchik <jkrutchik@...
Read my short story on Lyme that it what Carol was responding to. I since
found out that what I thought was my little discovery is already discussed
on here. I am very new to this and have a lot to learn.
Long story short....the majority of people who acquire Lyme disease end up
with Mycoplasma infections that, as as almost all of us on here believe,
ultimately leads to rheumatic disease. I still canąt believe that not one
doctor my wife saw even asked if she ever had Lyme disease; then again, most
donąt see mycoplasma as a real problem in the first place.
Carol,
Thanks very much for the valuable info. I will follow up on this. My only
concern is that my wife is on Cipro for a bladder/kidney infection. She has
another few days to go. I need to find out if the test you mention can be
impacted by the current antibiotics.
Jon
From: Vicki <genuinelysweet2002@...

Re: [rheumatic] Cracked skin - Nexcare product

2008-01-24 00:00:40

Finger Splits
I get those sometimes, especially in winter. When I do, to deal with the initial
pain...I use a product by Nexcare, a liquid, looks similar to nail polish. This
seals the cracks until they heal.
Debbie

Re: Red meat link to arthritis risk (article)

2008-01-23 11:47:25

Hi micky!
well said, and good for a chuckle... i have visions of limping tigers
and lions acting like tin men running through my head now..... :)
glad to hear from you - how are you???
take care friend, hope things are better...
love,
karen

Started Enbrel

2008-01-23 04:30:54

IHey Group! I took my first shot on Sunday I felt sick for two days.
I wasnt sure if it was my nerves. I been very nervous about it. I am
on the 50ml pre made shot.What have been others side effects? I hope
it works for me, I am so tired of feeling tired and in pain. Even
for a little bit would be great.I am been trying to work out but my
feet kill for days after, so I do it then am discouraged. I am
hoping the Enbrel works then my joints will not kill. This group
helps alot becasue you feel like everyone think your crazy about
your pain. Thanks Jennifer

Re: Life

2008-01-23 04:13:58

hi micky ~
anytime ol' boy - just such a wonderful thing to hear your humour
once again - you've had me in stitches for the last 10 minutes....
that's the spirit - and hugs are free and always feel good - i'll
cyber you a whole bunch so when you are feeling down, you can just
pull one out, ok?
bottom line, we all understand and we all have these spells - it's a
crappy disease none of us asked for, but that's what so great about
this board - everyone goes through them, and everyone cares.... we
hold someone up when they're down, and in turn are held up when it's
our turn.
great to hear from you,
love, karen

RE: [PsoriaticArthritis] Life

2008-01-22 20:14:02

Dear Micky, they do have a Spiderman ornament. You can find it on Ebay
under Hallmark. My husband loved the movie too, but thank goodness we don't
have any super heroes on our tree...unless you count Buzz lightyear..lol.
Glad to see you are sounding better. Take care, Fran

Could it be Lyme disease? You might want to consider New ...

2008-01-22 19:51:31

Carol,
She just started the Cipro last week for the infection, so we are talking
very short term (7 days). We are just starting to look for causes and
hopefully starting treatment shortly thereafter. Are you affiliated with
Central Florida Labs? I think we need this test Lyme antigen ASAP. We
happen to live in Florida ourselves. I also need to find out how/where we
can get a PCR for mycoplasma infection. Any info would be hugely
appreciated!!!
Thanks,
Jon
From: <EJFISCH@...

Could it be Lyme disease? You might want to consider New ...

2008-01-22 07:08:19

Jon, If she were on antibiotics for a long period of time it could lower the
percentage of the organisms that get counted by the Flo Cytometer, but short
range antibiotics shouldn't make a big difference. Hopefully she hasn't been on
steroids. Carol
In a message dated 4/16/07 9:19:09 AM Eastern Daylight Time,
jkrutchik@... writes:
Carol,
Thanks very much for the valuable info. I will follow up on this. My only
concern is that my wife is on Cipro for a bladder/kidney infection. She has
another few days to go. I need to find out if the test you mention can be
impacted by the current antibiotics.
Jon
************************************** See what's free at http://www.aol.com.

Could it be Lyme disease? You might want to consider New ...

2008-01-22 06:14:52

Borrelia burgdorferi (the causative agent for Lyme disease along with various
pathogenic strains of Mycoplasma have been found in many of the Rheumatic
diseases. I am positive for Sjogerns; have been given an SLE DX but am positive
for Mycoplasma Fermentans, Mycoplasma pneumonia, and very positive for Borrelia
burgdorferi (The spirochete that causes Lyme Disease. ) Even the CDC which is
very closed mouth about a lot of the things that may be in us have
acknowledged that many or most of the Auto Immune diseases may very well be
triggered by
microbial agents. When our Immune system goes from Cellular Immunity into
Humural Immunity a hyper state (as it can't locate the enemy) , we are left wide
open for auto Immune issues. Normally when a microbe is recognized by the
Immune system and conquered, The Immune system returns to normal Cellular
Immunity. This does not happen when the organisms are sophisticated enough to
fool the
immune system from attacking them. The Immune system stays in Humural
Immunity (a hyper state) and as I said previously this leaves us wide open for
Auto
Immune cytosine issues. Hope this isn't to deep. I can explain it better on the
phone if anyone wants to call me. Email me privately..Carol
In a message dated 4/16/07 7:52:47 AM Eastern Daylight Time,
genuinelysweet2002@... writes:
Thanks Carol. WHat exactly are we testing for and how does Lyme relate to
Sjogrens? I heard it does before but dont know how. Thank you.
carol_fisch <_EJFISCH@..._ (mailto:EJFISCH@...)
New Test For The Detection of Borrelia burgdorferi that
will make a great difference in the testing of the causative agent
for Lyme Disease.
The new test name is "Rapid Antigen Identificatiion of Bb by Flow
************************************** See what's free at http://www.aol.com.

RE: [PsoriaticArthritis] Venting

2008-01-21 16:20:17

Boy, oh boy, you are two lucky guys to get dames like us......! Just think
how boring life would have been with little subservient gals that fetched
your slippers and walked three feet behind!
Liz
Hi Liz
Are you sure you're not genetically linked to my wife!! Lol
She sounds so like you its scary!! Kathy can we check her e-mail just to
make sure it's not her!

Life

2008-01-21 13:25:48

Hi all
Just a quick line to thank everyone who helped me through a tough patch ! I
know I was sounding very depressed and I was, but it was only a two/three
day thing I was just getting my frustrations and anger out of me (I'm sorry
to use you guys to do that ) I'm feeling a lot better now and the humour has
returned to my mind (although very hard to find in the first place I grant
you) I'm still in pain but the funny thing is I can cope with the pain, it's
just that crushing feeling when something else goes wrong that hit me for
six! Especially after having felt so well recently.
Good to see Martin has made a return and I hope the local hospital looked
after you. Were you able to sneak in any Maccie d's? Or some Chinese food?
I know the food is not exactly top notch at those exclusive hospitals that
we use on the NHS. Their Idea of gourmet food would be like Paul Burrells
feast on I'm a celeb! Hope you are feeling better
Sorry to hear Fran has had probs with the decorations. I didn't know there
was even such a thing as a star Trek tree I must see if they have Spider-man
ones? Me and my kids would love that !
Ps: Karen thanks for the hugs
Micky

Could it be Lyme disease? You might want to consider New Test For Lyme Disea

2008-01-21 05:29:13

Vicki,
Read my short story on Lyme that it what Carol was responding to. I since
found out that what I thought was my little discovery is already discussed
on here. I am very new to this and have a lot to learn.
Long story short....the majority of people who acquire Lyme disease end up
with Mycoplasma infections that, as as almost all of us on here believe,
ultimately leads to rheumatic disease. I still canąt believe that not one
doctor my wife saw even asked if she ever had Lyme disease; then again, most
donąt see mycoplasma as a real problem in the first place.
Carol,
Thanks very much for the valuable info. I will follow up on this. My only
concern is that my wife is on Cipro for a bladder/kidney infection. She has
another few days to go. I need to find out if the test you mention can be
impacted by the current antibiotics.
Jon
From: Vicki <genuinelysweet2002@...

Venting

2008-01-21 05:25:53

I'm one of the lucky ones that had a pretty well trained spouse before I got
this disabling disease.
Hi Liz
Are you sure you're not genetically linked to my wife!! Lol
She sounds so like you its scary!! Kathy can we check her e-mail just to
make sure it's not her!
But seriously I agree.
Why shouldn't I do my share around the house?
I was reading one of the posts the other day when someone was talking about
their great boyfriend who
helps with the washing, helps put out the bins, and gee he even does some
cooking !! I nearly chocked on my frosties! Lol
Do they not realize that it's his job too as well? Not a woman's? It's as if
men want an award when they have just put out the bins?
I don't here my wife coming in and saying Micky guess what I just done the
Ironing?? Or hey I just gave the kids a shower and smile and think gee I'm
great??
I know what her answer would be if she read that, as I have it ingrained on
my brain from like you say, years of training lol
she would say just because you have a pair of balls doesn't mean you can't
pick up an iron young man!! lol now get out there and work boy!
Do I respect her? yes
Do I think that it's her job? hell no
Do I try and get away with some chores? yes
Do I get away with it? Hell no
Any woman that puts up with that Bullshit from a man needs to seriously
reconsider what sort of relationship they have?
I know some women of a certain age like to look after there men completely,
but come on this is the 21st century. that's what a mum is for, not a wife
or a partner. Remember one thing! Men need telling! If we get an inch we
take a country mile, including getting out of household chores! It's up to
you fine ladies to train us well !
Micky

Re: [PsoriaticArthritis] Is this psoriasis? Or from the MTX?

2008-01-21 03:48:08

I had the same. I used Dovonex right away and it went away. I also had it
start in my navel after laproscopic surgery. Again, Dovonex right away got
rid of it. I think I might develop patches of P wherever there has been an
abrasion of some sort. The patch on my leg started with a cat bite.
Ks Di

Could it be Lyme disease? You might want to consider New Test For Lyme Disea

2008-01-20 15:16:44

Thanks Carol. WHat exactly are we testing for and how does Lyme relate to
Sjogrens? I heard it does before but dont know how. Thank you.
carol_fisch <EJFISCH@...
Detection of Borrelia burgdorferi that
will make a great difference in the testing of the causative agent
for Lyme Disease.
The new test name is "Rapid Antigen Identificatiion of Bb by Flow
They are all very excited about the test as it is State and CLIA
Certified and now is approved for Medicare. This is the first
blood 'Rapid Antigen Identification for Bb' test that has State and
CLIA approval and now Medicare approval. Afain an Antigen test
checks for the organism itself and is not dependent upon the body to
build antibodies to an organism. Antigen test are much more reliable
as again, they check for the organism itself.
For additional information on certification #'s, validation, and flow
cytometry etc.
go to the labs website at:
www.centralfloridaresearch.com
Best wishes,
Adjunct Professor Emeritus, Carol Fisch

Re: [rheumatic] Can an over the counter chemical have caused my disease?

2008-01-20 14:33:32

Ethel, how does one know to add anti fungals or not?
Lynne, this may be coincidental I do not know. But right before I got sick I
had put a chemical on my head, I used it off label. It was an antifungal called
Neosporin AF. It is used for jock itch. I used it on my head becuase I had read
that miconizole nitrate can speed up hair growth. I had a bleaching disaster
that caused a ton of hair to fall out and huge bald spot. The hairdresser had
done it on purpose i had found out, I strssed so much becuase I had super thick
waist length hair for years that people complimented me on, the only thing I got
compliments on. So for it to be there then gone the next day was too much for me
to bear. To this day i dont know if it the stress from that that led to the
disease or the chemical i put on my head. The stress came in the spring, the
disease in the summer. You would think the chemcial would be okay on the head if
it is okay to put in your privates! its the same ingredient in womens Monistat.
But maybe on the head it had a
reaction, since it seeps into the brain....All I know is that my eyes became
super dry within a week or two of using it, I used it a total of 2 weeks. It
also gave me headaches like you wont believe. So clearly, despite being a
topical, it gets into the bloodstream if it is to cause physcial problems like
the headaches. Then everything else became dry over the months and I wonder if a
chemical like this can trigger auto immune disease like Sjogrens or if it is
coincidental and it was the stress that weakened the immune system. Either way
it goes back to the vinictive hairdresser. I shared this story because you
mentioned chemical exposure....also, I recently began taking silica supplement,
is this okay? Did you mention it can be harmful? Is it another type of silica
you are referring to?
lynneandsantos <lynneandsantos@...
Hi Vicki;
The 2 Drs Marshall do know each other.I can't quite remember if they
are university or work related.Anyway they both are working in the same
direction.Dr.T Marshall is a molecular biologist who was a researcher in
diabetis and cancer.He came down with Sarcoidosis and only managed to
cure himself once he found out how vitamin D affect people with TH1
immune diseases.All of them are micoplasma induced but you have to
ask,how come the micos got the upper hand and it usually boild down to
an immune system that is exausted.Then you have to ask,why is that
so?You really must be part detective here.Many people have chemical
exposure to blame such as exposure to silica or chlorine(for SDers.
Mostothers have weakened immune systems because of diet.Since 70% of
your immune system is in the gut it is no wonder.You have to find the
trigger and remove it for AP to work very well.Constant exposure to
dangerous chemical or foods will only knock down the immune system even more

Is Dr. Mercola legitimate?

2008-01-19 23:13:14

Right on Ethel;
I am also taking 50mg Diflucan every other day and 40mg Benicar
instead of the Zestril that I took for a couple of years..Anyone with SD
should be taking a blood pressure med even if it is not needed just to
protect the kidneys.Systemic yeast was one of my first symptoms when I
got sick....long before we knew it was SD.Tongue was totally coated to
the extent that I could not taste anything.Now that I am on 3
antibiotics it came back but not nearly as badly

Remicade Info

2008-01-19 19:06:35

FDA Accepts Application Requesting Approval of REMICADE in the Treatment of
Psoriatic Arthritis
MALVERN, Pa.--(BUSINESS WIRE)---- Supporting Data Show Significant Reduction
of Joint and Skin Symptoms in Psoriatic Arthritis
Centocor, Inc. announced today that the U.S. Food and Drug Administration
(FDA) has accepted its filing of a supplemental Biologics Licensee Application
(sBLA) for REMICADE(R) (infliximab) for the treatment of psoriatic arthritis
(PsA) in patients with active disease. PsA is a chronic, potentially
debilitating
disease, which affects approximately one million people and causes joint
inflammation frequently associated with active psoriasis.
"We are pleased that the FDA has accepted this application for REMICADE in
the treatment of psoriatic arthritis," said Cynthia Guzzo, Senior Director,
Clinical Research, Centocor, Inc. "The results we have seen are extremely
encouraging and we hope to gain approval for patients impacted by this disease."
The filing is based on the results of two double-blind, placebo-controlled
trials, IMPACT and IMPACT 2. The study results were presented in October 2004 at
the American College of Rheumatology Annual Scientific Meeting and in June
2004 at the European League Against Rheumatism's Annual European Congress of
Rheumatology.
IMPACT 2 is a Phase III, multi-center, randomized, double-blind,
placebo-controlled trial that demonstrated that treatment with REMICADE 5 mg/kg
resulted
in marked improvements in patients with PsA and significant improvement in both
joint and skin disease was evident as early as week 2. These data showed that
at week 14, more than half of the patients in the REMICADE treatment group
achieved significant improvements in the signs and symptoms of PsA as measured
by the proportion of patients achieving ACR 20 (58 percent of the REMICADE
patient group versus 11 percent placebo, p less than 0.001) and 75 percent
improvement in PASI (63.9 percent of the REMICADE treatment group versus 2.3
percent
placebo, p less than 0.001). The ACR 20 and PASI 75 responses were achieved
regardless of concomitant methotrexate use or level of joint involvement at
baseline.
Furthermore, compared to placebo, significantly more subjects in the REMICADE
treatment group achieved ACR 70 or PASI 90 as early as week 6 and improved or
maintained these results at later points in the study. At week 24, results
showed that 27 percent of patients treated with REMICADE exhibited a 70 percent
improvement in symptoms of arthritis (as measured by ACR 70) compared with 2
percent in the placebo group (p less than 0.001).
Thirty-nine percent of patients showed a 90 percent improvement in psoriasis
(as measured by PASI 90) compared with 0 percent in the placebo group (p less
than 0.001). In the first study, IMPACT, 104 people were randomized to
REMICADE (5mg/kg) or placebo. At week 16, 65 percent (n=34) of people on
REMICADE
therapy achieved ACR 20. Additionally, of the 38 people with evaluable
psoriasis,
68 percent (n=15) achieved a 75 percent or greater improvement from baseline
(PASI 75) indicating clinically meaningful improvement in psoriasis.
Significant improvements were maintained through 1 year.
REMICADE was generally well tolerated in these studies, with similar numbers
of patients experiencing adverse events (AE) in each group. No deaths, cases
of tuberculosis or other opportunistic infections were reported and serious
infections and infusion reactions were uncommon. Also, with the exception of one
case of basal cell carcinoma in the placebo group, no malignancies were
reported. In general, the AE observed in these studies were consistent with
those
reported in other indications, and most common AE included events that commonly
occur in the general population. Significant laboratory abnormalities were
unusual, with an elevation in liver function tests during the IMPACT 2 trial
being the most common abnormality. Overall, there were slightly more patients
with
serious AE in the REMICADE group than in placebo. See "Important Information"
below.
About Psoriatic Arthritis
PsA involves joint pain and swelling that can lead to debilitation coupled
with inflamed, scaly, red patches of psoriasis. Symptoms may include stiffness
and tenderness of the joints and surrounding tissue, reduced range of motion,
nail changes and redness and pain of the eye. Joints of the hands, wrists,
knees, ankles, feet, lower back and neck are commonly affected. Approximately
one
million Americans have PsA, and the disease affects both men and women
equally, most commonly between the ages 30 and 50.
About REMICADE
REMICADE is the global market leader among anti-tumor necrosis factor alpha
(TNF-alpha) therapies and the only agent approved for the treatment of both
rheumatoid arthritis (RA) and Crohn's disease (CD) in North America, the
European
Union and Japan, and was the first biologic approved for ankylosing
spondylitis in the European Union. In the EU, REMICADE is indicated for the
treatment
of ankylosing spondylitis in patients who have severe axial symptoms, elevated
serological markers of inflammatory activity and who have responded
inadequately to conventional therapy.
In September, the European Commission gave approval for expanded labeling for
REMICADE, in combination with methotrexate, for the treatment of active and
progressive psoriatic arthritis in patients who have responded inadequately to
disease modifying anti-rheumatic drugs.
REMICADE is the only biologic indicated for the treatment of patients with
moderately-to-severely active Crohn's disease who have had an inadequate
response to conventional therapy. REMICADE is also indicated for reducing the
number
of draining enterocutaneous and rectovaginal fistulas and maintaining fistula
closure in patients with fistulizing Crohn's disease.
REMICADE is unique among available anti-TNF biologic therapies. Unlike
self-administered therapies that require patients to inject themselves
frequently,
REMICADE is the only anti-TNF biologic administered directly by caregivers in
the clinic or office setting. In RA and CD patients, REMICADE is a two-hour
infusion administered every eight weeks, following a standard induction regimen
that requires treatment at weeks 0, 2 and 6.
As a result, REMICADE patients may require as few as six treatments each
year. The safety and efficacy of REMICADE have been well established in clinical
trials over the past 12 years and through commercial experience with more than
a half million patients treated worldwide.
Important Information
Many people with heart failure should not take REMICADE; so prior to
treatment discussion of any heart condition with a doctor is necessary. A doctor
should be informed right away of new or worsening symptoms of heart failure
(such
as shortness of breath or swelling of your ankles or feet).
There are reports of serious infections, including tuberculosis (TB) and
sepsis. Some of these infections have been fatal. Tell your doctor if you have
had
recent or past exposure to people with TB.
Evaluation for TB should be performed. If latent (inactive) TB exists, a
doctor should begin TB treatment before starting REMICADE. REMICADE can lower
one's ability to fight infections, so if prone to or if a history of
infection(s)
exists, or one develops any signs of an infection such as fever, fatigue,
cough, or the flu while taking REMICADE, tell a doctor right away. Also tell a
doctor if you have lived in a region where histoplasmosis or coccidioidomycosis
is common. Blood disorders have been reported, some fatal. Tell a doctor if you
develop possible signs of blood disorders such as persistent fever, bruising,
bleeding, or paleness while taking REMICADE. Nervous system disorders have
also been reported.
Tell a doctor if there is a history of a disease(s) that affects the nervous
system, or if one experiences any numbness, weakness, tingling, or visual
disturbances while taking REMICADE. Reports of lymphoma (a type of cancer) in
patients on REMICADE and other TNF blockers are rare but occur more often than
in
the general population; tell a doctor if there exists a history of cancer.
Serious infusion reactions have been reported with REMICADE, including hives,
difficulty breathing, and low blood pressure. Reactions have occurred during
or after infusions. In clinical studies, some people experienced the following
common side effects: respiratory infections (that may include sinus
infections and sore throat), coughing, and stomach pain or mild reactions to
infusion
such as rash or itchy skin.
About Centocor
Centocor is a leading biopharmaceutical company that creates, acquires and
markets cost-effective therapies that yield long-term benefits for patients and
the healthcare community. The company is dedicated to the research and
development of treatments for a wide range of Immune-Mediated Inflammatory
Disorders
(IMID), such as arthritis and inflammatory skin diseases and for cancer.
Centocor's products, developed primarily through monoclonal antibody technology,
help physicians deliver innovative treatments to improve human health and
restore patients' quality of life. Centocor is a wholly owned subsidiary of
Johnson &
Johnson, the worldwide manufacturer of healthcare products.
Centocor has exclusive marketing rights to REMICADE in the United States.
Schering-Plough Corporation (NYSE:SGP) has rights to market REMICADE in all
other
countries throughout the world, except in Japan and parts of the Far East
where Tanabe Seiyaku, Ltd. markets the product.
Centocor, Inc. Michael Parks, 215-325-4010 Mobile: 610-216-3965
12/1/2004 09:01 ET
© Business Wire 2003

Live Chat: Psoriasis And Diet

2008-01-19 13:08:27

Live Chat:
Friday, December 10, 2004
Psoriasis and Diet
Can snacking make your psoriasis flare? Are vitamin supplements helpful or
harmful? Could cooking with garlic and spices be beneficial?If you listened to
our recent talk with Amy Neuzil, N.D., you probably already know the answers to
these questions. But you no doubt have more questions about the foods
commonly associated with flares, ingredients that can help, and which vitamins
you
should favor and those you should skip.Now's your chance to get the answers you
need. We hope you'll join us for an extended Q&A with our expert on psoriasis
and diet.If you haven't already, listen to the talk with Dr. Neuzil. Make a
note of any questions you have. You can submit your questions when you register
and anytime during the chat.Then register for the Dec. 10 moderated chat.Our
team will review your questions and present them to Dr. Neuzil so there won't
be repeats or too many off-topic questions. Moderation ensures the conversation
will flow smoothly and remain focused on your needs and concerns.We look
forward to seeing you there!
Register now
Date: Friday, December 10, 2004
Time: 4 p.m. EST (1 p.m. PST)
Location: On the Internet
Guests: Amy Neuzil, N.D.
Board-certified naturopathic physician
Day of Event Link:
http://www.healthtalk.com/psoriasis/programs/11_358/index.cfm
Print out this e-mail to help remind you of this event.
How to participate:
It's okay if you haven't registered prior to the event - we'd still love for
you to attend. Here's how:On the Internet:
On Friday, December 10, 2004, approximately 5 minutes prior to the scheduled
program time (12:55 p.m. PST / 1:55 p.m. MST / 2:55 p.m. CST / 3:55 p.m. EST)
access the following Web address from any computer:
http://www.healthtalk.com/psoriasis/programs/11_358/index.cfm.You should check
your Web browser
compatibility before the chat. For details on which versions are supported, how
to
install and test Java and some general chat tips, please see
http://www.healthtalk.com/java.cfm.Thank you for taking part in this program.We
wish you and your
family the best of health,The Psoriasis Information Network Teamp.s. - We
encourage you to check out the Psoriasis Community message boards and join the
conversation on this and other topics.This program is supported through an
unrestricted educational grant from Amgen and Wyeth Pharmaceuticals.

Is Dr. Mercola legitimate?

2008-01-19 08:53:02

OOOOPS! forgot to mention that it can take many years to get sick and by
then one is likely to have several strains of micoplasma at work and all
do not respond to the same antibiotic.That is why Dr. T Marshal, and
many others use several antibiotics at the same time. Lynne

Is Dr. Mercola legitimate?

2008-01-18 22:34:15

Hi Vicki;
The 2 Drs Marshall do know each other.I can't quite remember if they
are university or work related.Anyway they both are working in the same
direction.Dr.T Marshall is a molecular biologist who was a researcher in
diabetis and cancer.He came down with Sarcoidosis and only managed to
cure himself once he found out how vitamin D affect people with TH1
immune diseases.All of them are micoplasma induced but you have to
ask,how come the micos got the upper hand and it usually boild down to
an immune system that is exausted.Then you have to ask,why is that
so?You really must be part detective here.Many people have chemical
exposure to blame such as exposure to silica or chlorine(for SDers.
Mostothers have weakened immune systems because of diet.Since 70% of
your immune system is in the gut it is no wonder.You have to find the
trigger and remove it for AP to work very well.Constant exposure to
dangerous chemical or foods will only knock down the immune system even more

Is Dr. Mercola legitimate?

2008-01-18 21:31:09

oh im sorry i got them confused thinking they are the same person, thanks for
explaining. Can you tell me please if the protocol is only mino 100mg-200mg
daily here? or are there other antibiotics that are added to the prortocol?
because the 2 people with SS using AP therapy i know of take a few different
antibiotics. Like i said before, one has had a lot of success but the other just
a little and she has been doing it years. Sarcoidis was mentioned, is that
disease closely enough linked to SS that one can say the protocol would work for
both? Thank you.
Jean Probert <jpro2@...
Barry Marshall, the Nobel laureate, is not the same Marshall who uses an
antibiotic protocol for sarcoidosis.
I'd never made the association before that they have the same name, but they
should not be confused.
Barry Marshall, Nobel laureate, discovered the microbial cause of peptic
ulcer
http://nobelprize.org/nobel_prizes/medicine/laureates/2005/index.html/
Dr Trevor Marshall is a PhD researcher, not an MD. Otherwise I don't know
much about him or his work.
--
Jean

Is Dr. Mercola legitimate?

2008-01-18 19:44:03

Barry Marshall, the Nobel laureate, is not the same Marshall who uses an
antibiotic protocol for sarcoidosis.
I'd never made the association before that they have the same name, but they
should not be confused.
Barry Marshall, Nobel laureate, discovered the microbial cause of peptic
ulcer
http://nobelprize.org/nobel_prizes/medicine/laureates/2005/index.html/
Dr Trevor Marshall is a PhD researcher, not an MD. Otherwise I don't know
much about him or his work.
--
Jean

Is Dr. Mercola legitimate?

2008-01-18 11:23:08

thank you Chris. I recall seeing Dr. Marshall on TV giving himself some bacteria
that caused him an ulcer to prove to his colleagues many years ago that it was a
bactria tht caused the ulcer, not a virus or something else. It was interesting.
Is Dr. Brown alive and practicing today? Thanks.
P.S. Is Dr. browns approach just Mincocycline? I read that you need to use
several antibiotics over time otherwise the body becomes immune to them or
something. That is how I learned of Dr. Wheldon and Dr. Stratton, it;s
overwhelming how many some use but it appears to be at least three.
Chris Adlard <cadlard@...
This group spreads information about the protocol used by Dr. Thomas
McPherson Brown over 50 years of treating rheumatic patients. Dr. Brown
believed that a number of rheumatic diseases are all triggered by
infection - rheumatoid arthritis, lupus, scleroderma, polymyositis,
dermatomyositis, psoriatic arthritis, ankylosing spondylitis and
similar diseases. Hence his low dose antibiotic protocol to reduce the
infectious cause.
The protocols developed by individual doctors in recent years are
variations on Dr. Brown's protocol. Some of the variations have merit,
some are just individual doctors wanting to put their own 'stamp' on
the approach, for instance, using 200mg per day instead of Dr. Brown's
100-200mg on Mon Wed and Fri.
In general, Dr. Brown's protocol is the definitive work.
Chris.

Is Dr. Mercola legitimate?

2008-01-18 06:23:05

Hi Vicki;
There is a lot more info on Scleroderma and AP at the
www.roadback.org site.I can tell you that it works very well as I am in
remission. Lynne G/SD

Is Dr. Mercola legitimate?

2008-01-17 21:01:17

This group spreads information about the protocol used by Dr. Thomas
McPherson Brown over 50 years of treating rheumatic patients. Dr. Brown
believed that a number of rheumatic diseases are all triggered by
infection - rheumatoid arthritis, lupus, scleroderma, polymyositis,
dermatomyositis, psoriatic arthritis, ankylosing spondylitis and
similar diseases. Hence his low dose antibiotic protocol to reduce the
infectious cause.
The protocols developed by individual doctors in recent years are
variations on Dr. Brown's protocol. Some of the variations have merit,
some are just individual doctors wanting to put their own 'stamp' on
the approach, for instance, using 200mg per day instead of Dr. Brown's
100-200mg on Mon Wed and Fri.
In general, Dr. Brown's protocol is the definitive work.
Chris.

Is Dr. Mercola legitimate?

2008-01-17 19:12:07

ebay seller, I assume you saw dr. Mercola personally or did you have a phone
consult? What is your Ap exactly? I just dont hear enough about SS and AP
therapy and wonder what some of the well known AP docs think about it being used
for SS and if they prescribe it. Does anyone have his contact info by any
chance? Or any other well known AP proponent? Sorry I may have asked this
before, but how do we know which AP protocol is best for our particular disease?
Mercola? Marshall? Stratton? Wheldon? Thanks!
Ebay Seller <1250ebs@...
is very much legitimate.. as with most people who are actually doing something
to help, they often get slammed. Personally, he's my hero. with his help I went
from being in constant pain all the time, despite three different medications,
and being totally unhappy to where I am today. Pain free and looking forward to
walking a 5K fundraiser.
I used to carry three different pain meds with me at all times and just thinking
about getting up in the am and putting my feet on the floor could make me cry.
I'll be the first to admit that he's not flexible about certain things, but
frankly, I am not willing to think about where or what state I would be in with
out his help.
Jan
Susan Boston <essybee@...
God Vicki it broke my heart reading all you've been through with those asshole
doctors scuz my french!
I am so sorry to hear about your journey...it just brings back bad memories from
when I was so sick and hurting and got all the same type of double talk and
offerings for stuff I knew was never going to help me.
antidepressants indeed.....I don't think he knows what he's talking about,
although, Vicki, you might consider that ANYBODY would be a bit depressed going
through what you are going through...in that case just take the whole bottle
...more is better, right? geeeezzz
I don't think anyone here was offended at you asking about Dr. Mercola. He has
been attacked many times and just keeps on ticking. And like I said, there is
nothing like personal experience to testify against his quackiness. He might be
a quack, but he helped me heal and if he can help somebody else that would be
just wonderful.
I can't speak to your disease. don't know anything about it. I can tell you
this. There is a self-help technique called EFT. I and my family have used it
with good results for everything from weight loss, to allergic reactions, to
arthritic pain, to emotional crap coming up inappropriately. I wil put the
website at the bottom of this email. .
It might help to use it to alleviate some of the more uncomfortable symptoms you
are experiencing, it might help you to clear your head so you can deal with
these medical morons, and maybe it will even help you unearth the deeper reason
why you are going through this disease.
I know I had to dig really deeply into myself to find out why at 34 years old I
developed arthritis. My life was a roller coaster before that and had only just
begun to settle down and become the fairy tale I had dreamed of as a kid...you
know, the whole hubby, stayathome mommy, new baby thing, home of my own, blah
blah blah. and here I was in agony with joints that swelled and wouldn't work
and at one point I couldn't even get to the toilet without help. Believe me, God
heard some cussing and cursing back then.
Anyway, I learned I had a lot of self-hate and blocked energy, but it was a damn
long odyssey and it's almost 20 years later. One doctor declared I had a
miracle, but then I had a relapse and they declared I still and always would
have RA. They almost seemed happier that I had not broken out of their textbook
definitions. Most of them are so schooled they cannot think outside the box and
so overworked and into their own "programming" they can't see past their own
nose. We have to have the compassion for them which they so seem to lack for us.
Physician heal thyself??? hmm DO NO HARM...yeah right!
I think the main advice I would give you is to not give up. Your strength is in
your faith that your body will figure out how to heal itself...the immune system
is a remarkable thing. Ours have obviously been damaged somehow, but I think the
basic design of this body is that it repairs repairs repairs and if we just give
it the correct tools it can repair what is wrong with you now.
Your body is trying to tell you something and only you know what that is. I
could go on for days about my trust issues, about my strength issues, about my
total lack of faith in everything issues...I still doubt so much and still have
so far to go...guess that's why I'm still around even after many bumps and
dings. So unfortunately, while I can't offer you anything in the way of medicine
for your disease, I hope you will be able to use what I say here to figure out
your own best cure and that if nothing else, I've helped to encourage you to
keep fighting. You will find what you need. I never thought I would and doubted
myself and everybody and even God, pretty much every step of the way. I can be
pretty dumb and stubborn sometimes, but with a lot of handholding, searching,
and praying I am pretty healthy and still kicking. Even get up everyday and
still find something to complain about...but then, I'm a professional. hah.
Here is the website for EFT:
http://www.emofree.com/default.htm
This rheumatic.org website saved my life. The folks on here have been through it
all and they are never selfish with their knowledge, their encouragement, their
help, their good thoughts and their prayers. You'll be in my thoughts too.
Best wishes for returned good health
Susan

Is Dr. Mercola legitimate?

2008-01-17 15:58:46

Thank you Susan. I went to the web site but between the head and neck pain so
bad and dry eyes, throat and dizziness i swear i cant focus. Can you tell me how
it helped you and how you think it can help me?
I dont know what my body is trying to tell me. I can't imagine that there is
any good reason for anyone to suffer so much. I am not religious though so I
have a hard time with thinking that there is a reason for anything, especially
when there is so much suffering in the world. I wish I could go back one year
when my tmjd, as bad as it was/is, was my only problem. Last spring I stressed
like I never had before and I believe that is what brought on all these
disgusting symptoms. I would literally give my left arm to get my old life back.
I would give up anything. I would give up a powerball jackpot if I had won it. I
would not think twice. People dont know how good they have it, they have no
idea.
Susan Boston <essybee@...
God Vicki it broke my heart reading all you've been through with those
asshole doctors scuz my french!
I am so sorry to hear about your journey...it just brings back bad memories from
when I was so sick and hurting and got all the same type of double talk and
offerings for stuff I knew was never going to help me.
antidepressants indeed.....I don't think he knows what he's talking about,
although, Vicki, you might consider that ANYBODY would be a bit depressed going
through what you are going through...in that case just take the whole bottle
...more is better, right? geeeezzz
I don't think anyone here was offended at you asking about Dr. Mercola. He has
been attacked many times and just keeps on ticking. And like I said, there is
nothing like personal experience to testify against his quackiness. He might be
a quack, but he helped me heal and if he can help somebody else that would be
just wonderful.
I can't speak to your disease. don't know anything about it. I can tell you
this. There is a self-help technique called EFT. I and my family have used it
with good results for everything from weight loss, to allergic reactions, to
arthritic pain, to emotional crap coming up inappropriately. I wil put the
website at the bottom of this email. .
It might help to use it to alleviate some of the more uncomfortable symptoms you
are experiencing, it might help you to clear your head so you can deal with
these medical morons, and maybe it will even help you unearth the deeper reason
why you are going through this disease.
I know I had to dig really deeply into myself to find out why at 34 years old I
developed arthritis. My life was a roller coaster before that and had only just
begun to settle down and become the fairy tale I had dreamed of as a kid...you
know, the whole hubby, stayathome mommy, new baby thing, home of my own, blah
blah blah. and here I was in agony with joints that swelled and wouldn't work
and at one point I couldn't even get to the toilet without help. Believe me, God
heard some cussing and cursing back then.
Anyway, I learned I had a lot of self-hate and blocked energy, but it was a damn
long odyssey and it's almost 20 years later. One doctor declared I had a
miracle, but then I had a relapse and they declared I still and always would
have RA. They almost seemed happier that I had not broken out of their textbook
definitions. Most of them are so schooled they cannot think outside the box and
so overworked and into their own "programming" they can't see past their own
nose. We have to have the compassion for them which they so seem to lack for us.
Physician heal thyself??? hmm DO NO HARM...yeah right!
I think the main advice I would give you is to not give up. Your strength is in
your faith that your body will figure out how to heal itself...the immune system
is a remarkable thing. Ours have obviously been damaged somehow, but I think the
basic design of this body is that it repairs repairs repairs and if we just give
it the correct tools it can repair what is wrong with you now.
Your body is trying to tell you something and only you know what that is. I
could go on for days about my trust issues, about my strength issues, about my
total lack of faith in everything issues...I still doubt so much and still have
so far to go...guess that's why I'm still around even after many bumps and
dings. So unfortunately, while I can't offer you anything in the way of medicine
for your disease, I hope you will be able to use what I say here to figure out
your own best cure and that if nothing else, I've helped to encourage you to
keep fighting. You will find what you need. I never thought I would and doubted
myself and everybody and even God, pretty much every step of the way. I can be
pretty dumb and stubborn sometimes, but with a lot of handholding, searching,
and praying I am pretty healthy and still kicking. Even get up everyday and
still find something to complain about...but then, I'm a professional. hah.
Here is the website for EFT:
http://www.emofree.com/default.htm
This rheumatic.org website saved my life. The folks on here have been through it
all and they are never selfish with their knowledge, their encouragement, their
help, their good thoughts and their prayers. You'll be in my thoughts too.
Best wishes for returned good health
Susan

Re: [PsoriaticArthritis] Greg's last visit to the rheumatologist

2008-01-17 09:16:49

Hi Greg,
I have got to agree with everyone who said you should drop that doctor and
try to get one who cares. Sounds to me like the only thing your current doc
hates about being a doctor is the fact that he has to try and help people with
health problems! Likes being called a doctor but can't be bothered actually
working.
Good luck in the future,
Martin.

RE: [rheumatic] Fish Oil Dosage

2008-01-16 17:27:16

Harold, I was thinking at one time you were taking the Fish oil not in
capsules but in the liquid state? Do you find that the capsules work just
as well? Patrice
_____

Re: [PsoriaticArthritis] Back Now

2008-01-16 10:14:30

Welcome back Pam,
Sorry to here about your Grandfather. I hope you are coping ok.
Take care,
Martin

Rib Pain, to Nancy, Mary, Janet, Beth and anyone...

2008-01-16 06:53:24

Janet, you wrote that you had a "weird burning sensation" down your arm? Maybe
its different, but when my wrists get really bad, my forearms get numb - my
rheumy told me its a sort of arthritis induced carpal tunnel syndrome. If this
is what you're experiencing a wrist brace may give you some relief - it helped
me.
Take care,
Beth
fam24@... wrote:
In a message dated 12/5/2004 12:21:56 PM Eastern Standard Time,
fran@... writes:
PS COSTOCHONDRITIS is how the word is spelled, I think...
I think it is costrochondritis and it is really painful sometimes. I had a
new thing yesterday going down my arm. It was a weird burning sensation on
my forearm. Why am I not surpised. Now when anything weird happens or goes
on in my body I am not surprised at all. What is one more thing.
Janet

Re: Is this psoriasis? Or from the MTX?

2008-01-16 05:50:56

Hi,
What you describe sounds like inverse psoriasis that comes under the
arms and in other sensitive areas. I hope not....but a dermatologist
would be able to tell you if it doesn't clear up soon.
Good Luck,
Marti

Re: Have you heard about druginduced psoriasis?

2008-01-16 03:37:55

. Can anyone help? Maybe give me the information or lead me in the
Hi Lynda,
The national psoriasis foundation has a list of medications that can
make psoriasis worse. www.psoriasis.org I have seen lithium
listed. I don't know if it can cause the p but if a person is prone
to get it anyway I'm sure it would not help.
Good Luck,
Marti

Re: [rheumatic] OT - Last one

2008-01-15 15:19:40

I'm new to the group but I'm a little confused since this doesn't apply to RA.
Jeannie
Geoff <geoff@...
Hi Gang! Geoff here.
I've been running across this odd stuff today because I follow the markets
in order to pay for my health care. That may sound odd, but it works for
me. Anyway, part of that has been watching the subprime mortgage sector
since before it became news and watching where the fallout is going to
spread. Today an interesting piece of info came across my desk that is more
of an "our neighborhood" thing than it is health -- but if our neighborhoods
fall prey to these hijinks, our health and safety are jeopardized. So with
that in mind, I'm sharing this one last OT item.
-------
START
-------
(snip)
In Part 1 of this article, I discussed the recent bankruptcy filing of New
Century Financial Corp. of Irvine, Calif., and the significant numbers of
layoffs within the subprime mortgage industry. I noted that the economic
ripples will spread and lap upon distant shores. In Part 2, we will look at
some of the broader implications of the decline and fall of the subprime
lending business.
Indirectly, a Green Housing Boom
There is one segment of the California economy that apparently has benefited
greatly from the cheap home financing and minimal credit checks in the
environment fostered by the subprime lenders. In fact, this effect gives a
whole new meaning to the term "subprime." "California is in the midst of a
major boom in large-scale marijuana cultivation operations run from inside
homes," according to the LA Times in an article entitled "Busts Point to
Boom in Indoor Pot Farms."
Marijuana seizures have quadrupled in just the last three years, according
to officials authorized to speak on behalf of the U.S. Drug Enforcement
Administration. Many of the seizures have occurred in what are considered
middle-class homes and upscale suburbs of Los Angeles and Sacramento.
Gang-related pot growers have taken advantage of cheap financing and the
general lack of background documentation of borrowers, receiving loans
cynically known in the trade as "liar loans" to acquire homes and then
remodel them as indoor greenhouses.
The common practice of these urban plowboys has been for the new homeowners
to black out the windows and install ventilation and lighting systems. After
settling in, the drug growers use sophisticated growing, watering, and
fertilizing equipment to cultivate as many as four crops per year in their
otherwise humble, subprime abodes. This output equals or exceeds the yield
from traditional outdoor pharmacological agriculture and lacks the danger
posed by the discovery of the pot plants via DEA air surveillance or
itinerant hikers and campers. "I am not talking about the Cheech and Chong
marijuana cultivation of two plants in someone's closet," stated DEA agent
Gordon Taylor. "I am talking about organized crime groups who are purchasing
homes in our communities and creating marijuana factories."
So as not to attract the attention of neighbors, some drug-growing subprime
borrowers have hired gardeners and other employees to perform landscaping
work, take out the trash, do maintenance on the houses, turn lights on and
off, and otherwise give the indoor pot houses that "lived-in" appearance.
And doubtless, of all the subprime borrowers who took out loans to purchase
real estate, it is probable that the pot growers are the least likely to
miss their mortgage payments and suffer a foreclosure. In that case, their
investment might really go up in smoke.
(snip)
-------
END

Is Dr. Mercola legitimate?

2008-01-15 07:43:51

May I add that Dr. Mercola is very much legitimate.. as with most people who
are actually doing something to help, they often get slammed. Personally, he's
my hero. with his help I went from being in constant pain all the time, despite
three different medications, and being totally unhappy to where I am today.
Pain free and looking forward to walking a 5K fundraiser.
I used to carry three different pain meds with me at all times and just
thinking about getting up in the am and putting my feet on the floor could make
me cry.
I'll be the first to admit that he's not flexible about certain things, but
frankly, I am not willing to think about where or what state I would be in with
out his help.
Jan
Susan Boston <essybee@...
God Vicki it broke my heart reading all you've been through with those
asshole doctors scuz my french!
I am so sorry to hear about your journey...it just brings back bad memories from
when I was so sick and hurting and got all the same type of double talk and
offerings for stuff I knew was never going to help me.
antidepressants indeed.....I don't think he knows what he's talking about,
although, Vicki, you might consider that ANYBODY would be a bit depressed going
through what you are going through...in that case just take the whole bottle
...more is better, right? geeeezzz
I don't think anyone here was offended at you asking about Dr. Mercola. He has
been attacked many times and just keeps on ticking. And like I said, there is
nothing like personal experience to testify against his quackiness. He might be
a quack, but he helped me heal and if he can help somebody else that would be
just wonderful.
I can't speak to your disease. don't know anything about it. I can tell you
this. There is a self-help technique called EFT. I and my family have used it
with good results for everything from weight loss, to allergic reactions, to
arthritic pain, to emotional crap coming up inappropriately. I wil put the
website at the bottom of this email. .
It might help to use it to alleviate some of the more uncomfortable symptoms you
are experiencing, it might help you to clear your head so you can deal with
these medical morons, and maybe it will even help you unearth the deeper reason
why you are going through this disease.
I know I had to dig really deeply into myself to find out why at 34 years old I
developed arthritis. My life was a roller coaster before that and had only just
begun to settle down and become the fairy tale I had dreamed of as a kid...you
know, the whole hubby, stayathome mommy, new baby thing, home of my own, blah
blah blah. and here I was in agony with joints that swelled and wouldn't work
and at one point I couldn't even get to the toilet without help. Believe me, God
heard some cussing and cursing back then.
Anyway, I learned I had a lot of self-hate and blocked energy, but it was a damn
long odyssey and it's almost 20 years later. One doctor declared I had a
miracle, but then I had a relapse and they declared I still and always would
have RA. They almost seemed happier that I had not broken out of their textbook
definitions. Most of them are so schooled they cannot think outside the box and
so overworked and into their own "programming" they can't see past their own
nose. We have to have the compassion for them which they so seem to lack for us.
Physician heal thyself??? hmm DO NO HARM...yeah right!
I think the main advice I would give you is to not give up. Your strength is in
your faith that your body will figure out how to heal itself...the immune system
is a remarkable thing. Ours have obviously been damaged somehow, but I think the
basic design of this body is that it repairs repairs repairs and if we just give
it the correct tools it can repair what is wrong with you now.
Your body is trying to tell you something and only you know what that is. I
could go on for days about my trust issues, about my strength issues, about my
total lack of faith in everything issues...I still doubt so much and still have
so far to go...guess that's why I'm still around even after many bumps and
dings. So unfortunately, while I can't offer you anything in the way of medicine
for your disease, I hope you will be able to use what I say here to figure out
your own best cure and that if nothing else, I've helped to encourage you to
keep fighting. You will find what you need. I never thought I would and doubted
myself and everybody and even God, pretty much every step of the way. I can be
pretty dumb and stubborn sometimes, but with a lot of handholding, searching,
and praying I am pretty healthy and still kicking. Even get up everyday and
still find something to complain about...but then, I'm a professional. hah.
Here is the website for EFT:
http://www.emofree.com/default.htm
This rheumatic.org website saved my life. The folks on here have been through it
all and they are never selfish with their knowledge, their encouragement, their
help, their good thoughts and their prayers. You'll be in my thoughts too.
Best wishes for returned good health
Susan

Training Spouses, was VENTING..

2008-01-15 06:54:14

<G
used model, after all.) He does the laundry (in the
basement -- too many stairs!). I fold and put away the
clean clothes when he brings them up, and we've agreed
not to complain when the baskets of clean laundry pile
up. (At least they're IN baskets now... early on, he'd
dump the CLEAN laundry on the floor in the corner of
the bedroom!)
But for some reason, I always have to remind him to
take out the trash.... Go fig. ;)
-- A.
=====

Re:Monique--Portland Vicki?

2008-01-14 22:02:02

hi
thanks for this info. but i don't need a doc in portland. was it vicki
who does?
monique

Re: [PsoriaticArthritis] Have you heard about druginduced psoriasis?

2008-01-14 21:17:26

Lynda I found this site and it talks about the drug Lithium I hope this helps.
http://www.psoriasis.org/facts/triggers/
Elaine

Back Now

2008-01-14 13:40:50

Sorry I haven't posted in a while but I have had issues with my daughter and I
was out of town at a Memorial...My Grandfather died Dec 2. So I just got back
in today...:) Hugs, love, Pam

Is Dr. Mercola legitimate?

2008-01-14 07:24:18

God Vicki it broke my heart reading all you've been through with those asshole
doctors scuz my french!
I am so sorry to hear about your journey...it just brings back bad memories
from when I was so sick and hurting and got all the same type of double talk and
offerings for stuff I knew was never going to help me.
antidepressants indeed.....I don't think he knows what he's talking about,
although, Vicki, you might consider that ANYBODY would be a bit depressed going
through what you are going through...in that case just take the whole bottle
...more is better, right? geeeezzz
I don't think anyone here was offended at you asking about Dr. Mercola. He
has been attacked many times and just keeps on ticking. And like I said, there
is nothing like personal experience to testify against his quackiness. He might
be a quack, but he helped me heal and if he can help somebody else that would
be just wonderful.
I can't speak to your disease. don't know anything about it. I can tell you
this. There is a self-help technique called EFT. I and my family have used it
with good results for everything from weight loss, to allergic reactions, to
arthritic pain, to emotional crap coming up inappropriately. I wil put the
website at the bottom of this email. .
It might help to use it to alleviate some of the more uncomfortable symptoms
you are experiencing, it might help you to clear your head so you can deal with
these medical morons, and maybe it will even help you unearth the deeper reason
why you are going through this disease.
I know I had to dig really deeply into myself to find out why at 34 years old
I developed arthritis. My life was a roller coaster before that and had only
just begun to settle down and become the fairy tale I had dreamed of as a
kid...you know, the whole hubby, stayathome mommy, new baby thing, home of my
own, blah blah blah. and here I was in agony with joints that swelled and
wouldn't work and at one point I couldn't even get to the toilet without help.
Believe me, God heard some cussing and cursing back then.
Anyway, I learned I had a lot of self-hate and blocked energy, but it was a
damn long odyssey and it's almost 20 years later. One doctor declared I had a
miracle, but then I had a relapse and they declared I still and always would
have RA. They almost seemed happier that I had not broken out of their
textbook definitions. Most of them are so schooled they cannot think outside
the box and so overworked and into their own "programming" they can't see past
their own nose. We have to have the compassion for them which they so seem to
lack for us. Physician heal thyself??? hmm DO NO HARM...yeah right!
I think the main advice I would give you is to not give up. Your strength is
in your faith that your body will figure out how to heal itself...the immune
system is a remarkable thing. Ours have obviously been damaged somehow, but I
think the basic design of this body is that it repairs repairs repairs and if
we just give it the correct tools it can repair what is wrong with you now.
Your body is trying to tell you something and only you know what that is. I
could go on for days about my trust issues, about my strength issues, about my
total lack of faith in everything issues...I still doubt so much and still have
so far to go...guess that's why I'm still around even after many bumps and
dings. So unfortunately, while I can't offer you anything in the way of
medicine for your disease, I hope you will be able to use what I say here to
figure out your own best cure and that if nothing else, I've helped to encourage
you to keep fighting. You will find what you need. I never thought I would and
doubted myself and everybody and even God, pretty much every step of the way. I
can be pretty dumb and stubborn sometimes, but with a lot of handholding,
searching, and praying I am pretty healthy and still kicking. Even get up
everyday and still find something to complain about...but then, I'm a
professional. hah.
Here is the website for EFT:
http://www.emofree.com/default.htm
This rheumatic.org website saved my life. The folks on here have been
through it all and they are never selfish with their knowledge, their
encouragement, their help, their good thoughts and their prayers. You'll be in
my thoughts too.
Best wishes for returned good health
Susan

RE: [PsoriaticArthritis] To Fran on Venting

2008-01-13 22:37:02

Dear Pat, Well I got tickled reading about your cats. At least I don't
have a cat that is in the house anymore. We have one that eats at our front
door, but that is about it. He's wild as a raccoon and rarely comes in.
It's kind of sad because he used to be so cute as a kitten, but when he grew
up he just got mean as hell...lol. So now I have to watch him or he bites
anyone he sees. Drives me crazy because he is big as a house and healthy as
a horse. My husband has threatened to put him to sleep so many times I
couldn't even count, but I think deep down he's afraid to catch him...lol.
The main problem is he is very very smart too..lol. He can turn door knobs
and we had to put two different types of child proof controllers on our
bottled water container because he would stand up and flood the floor when
he wanted a ''COLD" drink of water...lol. That was when he was an indoor
cat and now he won't come in unless it's really cold and still wants right
back out. We have so many stories about him, but I won't go into all of
that now. So I know cats do just love trees.
I'm glad you had help putting yours up and kept your sense of humor.
Normally I do better than I did that day, but I think the pain was just
wearing me out. After awhile it's too much to deal with when everything
goes wrong on top of it all. I notice that I loose my balance a lot lately
too. Is that a PA thing? Or are we just getting clumsy? Lots of times for
me it's when I first stand up, and I have a real time stepping down on
curbs...those nearly get me every time. We can't fall because that would
hurt for days, even if we didn't break anything. Hopefully the clumsy
stage will pass?
Take care Pat and enjoy your tree. Love, Fran

Is Dr. Mercola legitimate?

2008-01-13 14:40:33

Can Dr. Mercola help me then with my Sjogren's? My insurance does not cover
phone consults and I heard he was expensive :(
Ebay Seller <1250ebs@...
legitimate.. as with most people who are actually doing something to help, they
often get slammed. Personally, he's my hero. with his help I went from being in
constant pain all the time, despite three different medications, and being
totally unhappy to where I am today. Pain free and looking forward to walking a
5K fundraiser.
I used to carry three different pain meds with me at all times and just thinking
about getting up in the am and putting my feet on the floor could make me cry.
I'll be the first to admit that he's not flexible about certain things, but
frankly, I am not willing to think about where or what state I would be in with
out his help.
Jan
Geoff <geoff@...
Hi Jon! Geoff here.
You wrote:
"In my opinion, most doctors are complete and total idiots. According to
most, if they didn't learn it in med school or the drug companies don't
endorse it, then it doesn't work."
Actually, the drug companies fund the medical schools, their research, etc.
:-(

Re: [rheumatic] anybody with SD and lung has been involved?

2008-01-13 14:05:26

I have been dignosed with scleroderma. don't much skin
thightening but my lung has been involved . I have
started taking inocin since 10 days ago. My doctor who
is not AP believer says I should do chemotherapy to
supress my immune system. Another doctor who believs
in AP encourge me to try T-cell trasplant and
chemotherapy. I am confused and scared. any comment
appreciated.
soheila