modifications to the home

2006-12-31 21:06:38

Hi group,
I have a question. I was wondering how would you go about getting some
minor modifications done in an apartment? Here is the problem. I am
having trouble getting up from the toilet in my bathroom. The counter
is on the wrong side for me, if it was on my left that would be great as
my right hand swells more and is harder to grip things. All I have to
try to grip is the wall on my left. I was wondering if you think having
a grab bar/rail thingy put in if that is something that could be done?
I have to grab onto the cat box which is in front of me, and that is
harder as i am reaching forward with my left hand and only then i can
just push down on it for something to use to push myself up. I just
wondered if you thought this might be something that could be done?
Wonder what people I have to talk to besides my apartment office, maybe
my doctor? Any ideas would be appreciated.
Thanks, and hugs to all!
Carla, Jacques (The Little Golden Boy),
Sandy & Schroeder (Kitties)
HYPERLINK "mailto:claesch@..."claesch@...
Interested in Buying Avon?
To browse for products, or
place an order visit
HYPERLINK "http://www.youravon.com/claesch/"www.youravon.com/claesch/
Our Personal Webpage
HYPERLINK
"http://www.geocities.com/prayingkitty/"www.geocities.com/prayingkitty/

uva therapy

2006-12-31 14:31:12

Hi, my name is Marlynn my daughter is almost eight and was recently diagnosed
with localized scleroderma. She tried the topical steroids but they stopped
working, she now has trouble breathing and acid reflux. Doctors recommended
methotraxte, but we declined and are currently trying uva therapy 5 days weekly
for 6 weeks.She is just on her second treatment, and she isn't liking it. It's
hot and scary for a child. Can anyone give me there outcomes of trying uva or
methotraxte. Uva has no side affects right now but can cause skin cancer later
on, I can't bring myself to terms with using meth. yet ,if any child of yours
has used this please give me info. My daughter is recieving treatment at
cleveland clinic in ohio.
Thanks, Marlynn

RE: [rheumatic] multi-vitamin

2006-12-31 10:30:32

Hi Judy,
I have taken Centrum multi vitamins for years with good results.
Regards,
Dee
_____

Celiac.com Update]

2006-12-31 01:20:35

Hi All;
As I had mentioned several times,I could not get AP to work at all
for many years.The reason is my intolorance to gluten and a screwy vit.D
handling problem.Once I got them out of my system it just kicked in
beautifully and I was in remission in less than a year.I still
susbscribe to the celiac news letter and thought you all might be
interested in reading this. Lynne G./SD

RE: [PsoriaticArthritis] Enbrel and neighbors

2006-12-30 17:10:39

Fran,
Thank you for your kind words. Thanks for sharing in my joy. I still have
along ways to go but I have hope now. Yes, Fran, I was at the end of my rope a
few weeks back. I wore everyone of my closes to their end of the rope too. I
did not mean to do this but I was in so much pain and depression of being so
overwhelmed with such coverage of psoriasis and no med could relieve the pain or
burning. I went to a funeral of a friend but not that close, but was a pillar
of our community. All I could do was cry. I know everyone thought the tears
was about Beth, but truth was as I listen to the sermon and he spoke of the
peace, no more tears, and no more sickness I was so homesick to be with my Lord.
I could not stop the tears running down my face. Yes, also, of a night things
do get worse. Many a night I called my Mom crying, which made her cry. Jimmy
would stop what he was doing and hold me until I stopped shaking and crying. At
one point I almost left Jim but he did not
know it but it was because I felt like such a burden to him. One day I had it
all planned and when Jimmy came home from work and gave me a kiss and hug and
said how much he loved me I knew how much I loved him and no words were said.
Now to my neighbors. What a mess ! The girl still is at my home and she
is prying in everyones business all the time. She gets herself in trouble then
comes to me for help. The same with my other neighbor. The were both using me
against each other. This was not good at any time let alone while I was in the
worse flare ever, stepkids killing themselves with hard drugs, worried over the
Grandkids . All my nerves was on edge my skin hurt to be even touched. Last
week Debra was telling on Ranita, then Ranita came over after she left and
started on Debra. Then Debra ran into my home and was crying because Ranita had
called her some names. Out of angrer, pain, and needing peace, I took Debra
outside to where by then all the neighbors were there. I looked at all of them
and told them how childish this all was and that I refuse to be any part of
this. If one has a bad word to say about someone to please go to that person
and tell them. I told them , as for me. everyone one
there was my friend and I want to keep it that way. I will not take sides and
I could care less who they have stay over at their own home as long as it does
not involve me. Then I said, I am going in my home now to have a nervouse
breakdown then afterwards have a cook out for my stepkids that are druggies. I
had had it enough Fran. I usually don't lose my cool but I really was heading
for a breakdown. The fights have stopped and I am friends with them all.
Enbrel seems to be working for now , and the Stepsons, well thats a whole
different story ! I cry and I pray but one Son was telling about the other Son
and I begged him to stop. I could not stand to hear about what they are doing
with their bodies and to the kids. We turned them in but DHS did nothing.
Thank you once again for your friendship and may health and blessing return
to you. Love, Zoella

Re: [rheumatic] Barium and CT info needed

2006-12-30 10:14:54

Debbie,
I have had barium twice, and other than a somewhat unpleasant
(although not really dreadful) taste and texture (mine was chalky), I
did fine. There were no side effects detected from the barium. My
doses were prior to x-rays.
Best wishes,
Pat

Is PA rare?

2006-12-30 05:57:23

Hi Everyone,
I went to my GP yesterday for a checkup to be able to have my total
hip replacement next month. When I was in there I thought I would
get my anger off my chest since she wasn't able to diagnose my PA and
said it was gout two years ago...so I went through months of pain
while my finger I can no longer bend; thank God my husband's
insurance let me get a Rheumy on my own and he couldn't believe how
bad I was...after months it had gone from my fingers to my toes, hip,
spine, jaw. Anyhow she, the GP said the reason she wasn't able to
diagnose PA was because it is rare condition!! She said she had
never seen it and didn't think any GP in her group had seen it!! I
have a hard time believing this-just during my husband's family
reunion this summer two of his relatives had it. I told her my
Rheumy was only in the exam room for less than ten minutes when he
told me what I had...she said it was because he specializes in it so
he would know what to look for. I am still angry at her and it did
feel good getting some of this off my chest. She is right out of
med. school and is a pretty little blonde thing and acts so superior
to me-even one time I "caught" her rolling her eyes at her nurse when
I was telling her about the different areas that hurt...maybe if she
would have listened she would have gotten the diagnosis right. I
just feel that Drs. should be accounted for their actions. Thanks
for listening.
God Bless, Sue in Michigan.

Re: [rheumatic] is there a list of doctors

2006-12-30 00:17:39

Hello,
We maintain the doctors' list and have sent information to you.
Chris.

Re: re:enbrel question

2006-12-30 00:15:03

---
Hi Susan,
I also got that letter about Enbrel pre-mixing-that would be great.
My Pharm. treated me awful when I called to get my Enbrel ordered.
Imagine that a Pharm. with an attitude like some of the Drs. that
have been mentioned. He evens gets an attitude with me about my pain
meds. He acts like the medication at his Pharmacy is his or
something. My Dr. office has had to call him several times to get
pain med. for me when they (Dr. office) called it in already and told
me it should be there waiting for me to pick it up. I want to ask
him if he would like to have PA and see how it is. That goes to show
you that it is hard for healthy pain free people to understand the
pain we are suffering from.
God Bless, Sue in Michigan.

Re: Need basic care tips for psoriasis

2006-12-29 17:04:46

---
Hi Cat,
I use to tan all the time in my 20's and 30's and my P wasn't as bad
as it is now. Also the heat seem to help my joints feel better. :)
God Bless, Sue in Michigan.

Re: [rheumatic] uva therapy

2006-12-29 12:10:40

Dear Marlynn, I don't have a child using meth., but my husband has been using it
since January of 2004. When he first started using it, he was sick. He had
headaches, a fever and I think he was sick to his stomach. Each week the
symptoms were better. After a couple of months his body completely adapted to
it. We thank God that they found something to help him with very mild side
effects. I hope they find the right treatment for your daughter quickly. Your
family is in our prayers.
Sincerely, Barbara

Age and Location

2006-12-29 05:49:52

My name is Mary Johnson, I'm 44, and I live in
Tishomingo, Oklahoma.

Re: [PsoriaticArthritis] Need basic care tips for psoriasis

2006-12-29 03:52:57

Hi Cat,
I tried everything in the 20 years it took to get my
diagnosis. What worked for me (your mileage may vary):
Soap: a non-soap cleaning lotion like Cetaphil or Head
n Shoulders shampoo instead of soap when senstive; a
gentle glycerin, olive oil, or goat's milk soap when
healed. Baby soaps can work in a pinch. I LOVE Burt's
Bees baby soap and Buttermilk soap. Look for unsented
or senstive skin formulas in all your products.
Hair: Treatment shampoos, Paul Mitchell Tea Tree
Shampoo, or Head n Shoulders daily or every other day,
if you can get away with the day between. Dry
naturally, no hair dryers or styling products.
Dry or Moist? I moisterize dry skin with Lubriderm
Sensitive (light blue label) or Super (red label) in
the cold months, a light natural almond oil or sesame
oil from Wild Oats market in the summer. Keep
inverse/raw areas dry unless being treated with creams
or ointments.
Exfoliate? Nothing harsh or rough. Your cleanser of
choice and a soft wash cloth should do the job. Salt
scrubs will burn. Sugar scrubs and nut scrubs (apricot
seeds, walnut hulls, etc.) will leave tiny scratchs
that will cause more problems.
Fragrances? Cheer Free, Ivory Snow Baby, and similar
"free" or "senstive" products for the laundry.
Wear cotton next to the skin. (A camisole with a
built-in shelf bra - no underwire - has been a
lifesaver!) Also use all-cotton sheets, pillow cases,
and towels. You'll notice a difference.
Avoid ANYTHING that rubs or irritates.
I've never done tanning beds. I've always been
"allergic" to sun exposure. Not sure what it is
really; probably some quirk of the autoimmune
spectrum.
Hang in there.
- Allison

=====

Anyone been diagnosed with breast cancer?/Flare question.

2006-12-28 18:22:10

I'm go to an internist instead of a rheumy because not
only is he an amazing doctor but there isn't a good
rheumy in the area. He reminded me recently to make
sure that I kept up with yearly paps and mammograms.
He told me that PA and P could cause many things to
happen to us and cancer being one of them. Guess we
all knew that even though we don't seem to talk about
it much. I made the appointment for the mammogram and
I always keep up with yearly checkups with the GYN but
wouldn't you know it, the GYN found a lump. I've been
sent to a surgeon to have it checked and he has found
two more in the same breast that wasn't there in
August. The mammo. isn't showing anything cancerous
but the surgeon is watching closely for any changes.
I haven't read any post about anyone having any
trouble with lumps or cancer but I've only been a
member, ie. semi-lurker, for a relatively short time.
I'm just wondering how much our lovely disease up's
the odds.
About flares. Is there anyone else that has never
ending flares as I. Yes, I have some REALLY bad days
that it takes everything I've got to walk across the
house. You know, those days that you might can fake
that smile but its only with tears running down your
face? And then there are those good days where if I
rest several times I might can get the dishes done but
if I cook too then I'm done for the day and maybe for
tomorrow too. I always ache. My spine is affected
from my neck to my tail bone. By the way, I've heard
a few of you say that you too have trouble with your
upper back also. For you guys or for you that have
spine involvement, does it affect your breathing? My
ribs hurt all the time. Sometimes that makes it hurt
to breath but it is sometimes hard to breath but I'm
not short of breath. Also, does anyone have trouble
swallowing? I do have reflux but I can push on a
vertebra in my neck that hurts a lot and it mimics how
I feels when I have trouble swallowing sometimes.
Enough complaining and questions for one night. Your
help will be appreciated.
Mary

Re: Remicade - treatment for psoriatic arthritis

2006-12-28 10:55:52

Hi there
I'm not sure where you are in the world but I'm in the uk and have
been on Remicade for the last few months so it is available here.
It hasn't made any difference to me so far but other people getting
the infusions at the same time as me have had great results. If you
would like more information there are various websites or you tell
me what you want to know and I'll see if I can help. I get it on
the NHS so I don't know much about prices or anything like that.
JakieD

Bowel Bag

2006-12-27 22:47:31

Hi Tamara
Read up on gluten at www.celiac.com They can give a lot of help when
looking for other ways of preparing food and have very good recepies.
Lynne

Re: [rheumatic] No reply

2006-12-27 19:46:37

Hi Kelly,
You walk in and introduce yourself and say I have such & such disorder and it
is my choice to try antibiotic therapy instead of the usual autoimmune drugs
normally used for this disease. If you are open to these new ideas and respect
my choices to handle my life with my disease, then it would be my pleasure to
work with you. If not, then I won't waste anymore of my time nor yours. If we
cannot have a working relationship then I thank you for this visit and I will go
on seeking someone who will. Thank You, Depending on his answer, you will turn
around and leave or sit down and discuss the situation. Go armed with all the
information you have on A/P. There are tons of it out there. It took me almost
a year to assemble a team of doctors who now respect and are surprised at my
response. My symptoms are regressing. They are amazed. I have a
pulmonologist, who told me last year that I was terminal. She is now smiling at
my results, I have a cardiologist who is
working on keeping my heart healthy, I have two Rheumatologists who work with
each other for me and they are in different states, I have a gastroenterologist
who is working on my gerd problem and will do the celiac tests and anything else
I need and I have a neurologist. I won them over by showing them that it works.
The ones who would not play by my rules, I discarded along the way. Remember,
it is your body you need to heal. And not the doc's you must impress. But first
get yourself very educated in the field and stay in touch with new research and
information.Get the 3 books by Scammell and Dr.Brown. Read the Bulletin Boards.
Subscribe to the Rheumatology news and Dr. Mercola on the web. Discuss &
research everything. Staying alive is your only job and read the posts at
Roadback.org. On A/P 9 months and my disease is regressing slowly, but
definitely there is much improvement. I have systemic diffuse scleroderma and
had R/A, but it's no longer there. My lungs,
heart, bladder, liver and musclular pain is all reversing as we speak. Good
luck, Dolores
Kelly <dadskel@...
Can someone please tell me how to handle a new doctor? I want to try
AP and really do not know how to go about asking the new rheumy that I
will see Oct.4 Could someone please advise? Thank You!!
Kelly
To unsubscribe, email: rheumatic-unsubscribe@egroups.com

Re: My son

2006-12-27 16:08:29

Good luck Pat - as a Mom myself, I can well imagine how you are
feeling - but you mustn't blame yourself... please don't. Anyhow,
it might not be what you are fearing.... I will be thinking of you
and sending you as many positive vibes as I can. Keep us posted,
Karen

let's do lunch

2006-12-27 06:33:42

Martin, you crack me up. I do have a bit of the devil in me. I suspect my red
hair and Scottish heritage have something to do with it. I hope you keep
posting too because you always give me a chuckle. Wouldn't it be fun to do
lunch? Cheri :-))

your hearing &amp;your sight

2006-12-27 05:53:40

your hearing &your sight
<http://www.geocities.com/islamiccards_3007/alan3am46.jpg

need help

2006-12-26 18:47:46

Hi eveyone - I really need some help and to know if any of you have
experienced the following. I was admitted to the hospital on Friday
for what turned out to be vasculitis. It was explained to me that
the PA caused swelling in blood vessles in my brain. I was very
confused for a few days, didn't know what was going on. My words
were slurred and was having a hard time staying awake. Also, my
hands, feet and knees swelled and the pain was so horrible they gave
me narcotics. I was told yesterday that this can happen with
agressive PA. I am already taking Endbrel (and up until this point
it has helped alot) as well as Vioxx. I am now on high dose
steroids and MTX as well as thinking about switching me to
Remacaide. The hardest part is the doctors said I can't take care
of my children until the swelling is completly (gone they are 8 and
5) so I have had to send them to stay with their father. I just
want them back. Has this happened to anyone else?
Heather

Re: Is PA rare?

2006-12-26 16:18:03

Dear Susie,
That is just awful! Nobody needs a young blond GP who rolls her
eyes... wouldn't she just love to be in our shoes for just one
day... I'm fuming after reading your post. Glad you gave her a
piece of your mind - and I would suggest that perhaps it is high
time you seriously considered finding a doctor who not only knows
what it is you have, but will treat you with the respect and dignity
you deserve. We all need doctors who work with us as partners in
dealing with and treating this disease. We should neither expect
nor settle for less.
Now that I've got that off my chest, I will just say hang in there
kiddo, I'm proud of you for standing up for yourself, and I wish for
you only better and less painful days ahead.
God Bless,
Karen
PS: Don't think PA is that rare either, by the way.

Escalation of pain in intensity/duration

2006-12-26 07:54:24

I have been on ibuprofen, naproxen, sulindac, and now voltaren.
I have been on methotrexate up to the injection level now dropped
down to 20 mg/week because
I am on Enbrel, 2 injections weekly.
I have been put on prednisone for an intense several days tapering
down.
Another doctor has put me on neurontin to treat my sleeplessness.
I have had cortisone injections into my L5/S1 vertebrae.
Lately my fingers, knees, ankles have been in pain constantly.
I talk to my doctor today (8/31).
I haven't slept in 2 weeks and do not want to go on vicodin again.
I'm afraid of becoming addicted.
Is there a better NSAID, DMARD,
Sleep deprived
Suzy

Re: [PsoriaticArthritis] What's going on here?

2006-12-26 03:59:04

Thanks Kathy,
I will type with my nose if necessary. (It's long enough after all! Lol)
Martin

Painbuster 2 to Janet and Martin

2006-12-26 03:22:24

Hi Marcus,
I feel for you having a slipped disc. I remember my father going through
agony with that. He even went through periods of sleeping on the floor because
it seemed to help him. I hope it doesn't recur
Its good that you are keeping the exercise going. Keep it up.
I used to do the jogging in the water you mentioned but I was shown it
without any belt being used. It was called Deep Water Jogging. It meant you had
to
work very hard to stay afloat but boy did it work wonders.
Good to hear from you.
Martin

Re: [PsoriaticArthritis] need help

2006-12-25 14:52:04

Hi Heather,
That's frightening. Hope you get over it very quickly and get your kids
back. My thoughts are with you.
Good luck,
Martin

Re: [rheumatic] My Little Boy

2006-12-25 12:07:29

Hi all:
I'm resending an email I sent to Diane - I meant to send it to the group, but
just hit Reply and later found it went to Diane only.
Hope some others may find this info. to be helpful.
Tim
Diane:
My best to you and Jacob.
Here are a couple of links to sites that discuss costochondritis, a benign
but painful condition that, I think, may at times be associated with MCTD. I
have had chest pains for several years and, after multiple tests to rule out the
usual suspects, a doctor said that costochondritis is the most likely cause.
I hope these links are helpful and that Jacob has a great summer.
http://www.emedicinehealth.com/costochondritis/article_em.htm
http://www.emedicine.com/PED/topic487.htm
Take care,
Tim

Re: Florida Hurricane

2006-12-25 06:14:13

Dear Janet and everyone else who has been so kind to ask about me during
this hurricane, I wanted to let you know we are doing fine. We've had a
lot of wind and rain, but so far haven't lost our power. I know power is
out all over the state and even in our town. The good thing is we got to
have both our daughters home and that almost made the hurricane worth it for
me..lol. This has been a rough season and we have another one on the way
now in the ocean. At this rate, the whole state of Florida is going to need
to be on anti-depressants before the winter gets here..lol.
Anyway, thanks for asking about me and so far so good. Love, Fran

Re: need help

2006-12-24 18:31:08

-Hi Heather,
that's a bad flare!! I've had several that bad over the years but if
vasculitis was involved I didn't know...I'm hoping the prednisone
will calm it down fairly quickly and you will be back with your
children soon! Sorry I can't offer more help.
thinking of you,
Marti

Re: [rheumatic] Mayo Clinic: Rheumatoid arthritis treatment: Can antibiotics ...

2006-12-24 14:27:21

An interesting note to this.................I had severe RA before
discovering Minocin 5 years ago. I am now in complete remission and much of
the
damage caused by the first eight years of treatment with standard meds has
reversed itself. After seeing one of the best AP docs, I went to a new doctor
(internal med) and took my medical records. He was surprised to see how great
I
had done and now...one year later...has five people using minocin. According
to him every one of them is doing well, with two of us in complete remission.
He is quite impressed. Anyone needing a doc in Nashville, Tennessee email
me and I will give you his name. Martha

Re: [rheumatic] AP and Enbrel

2006-12-24 11:34:01

Nicole. I would use prednisone before embrel. I know of two ladies in
their early 50's who developed infections on this med and passed away. That
does not mean if one has tried everything that this might be an option. I
would just not use it unless it was my very last option. We all know
prednisone
is not good for you but a short course to get you over the hump might not be
too bad. Between the two I would definitely opt for the prednisone. Of
course this is just my opinion. Martha

Re: [PsoriaticArthritis] New diagnosis/Azulfadine &amp; depression?

2006-12-24 04:56:07

I experienced mild depression from Azulfadine. My rheumatologist didn't
mention that this was a possible side effect. None of the literature I
read said that it could happen, nor could I find anything on the
internet. I was considering an antidepressant but was trying to find the
cause just in case. I was mystified because my experience didn't seem to
quite fit the typical symptoms of depression. It could have been caused
by a number of things.
Last winter I came down with a sinus infection and needed 3 rounds of
antibiotics to finally get over it. I had a rash at the same time I was
sick. My rheumatologist thought the rash might be from the azulfadine
(which we later learned was not the case), so we discontinued it - and
also had to delay Remicade. I had a huge spurt in energy and mood (as
well as pain and inflammation...). When I started back in on Remicade I
asked the nurse at my treatment if she knew if mood changes were ever
connected to Azulfadine (Sulfasalazine, Sulfazine) and her little book
said YES. Well. I wish I'd known that a few years ago! But now I do.
(I still take vioxx, methotrexate and remicade.)
Best wishes to you!
And thanks to everyone for the good humor and helpful information.
Kathryn

RE: [PsoriaticArthritis] Do bad flare-ups coincide with psoriasis getting worse?

2006-12-24 01:49:09

Dear Dawn,
I would certainly check with your doctor because that much Tylenol could be
very hard on your liver. Your doc should be able to order something
stronger for pain and change your medicines to get you our of the flare it
sounds like you are in. Anne

Painbuster 2 to Janet and Martin

2006-12-23 12:44:01

Dear Marcus, I agree with you totally that surgery is always the last
option for me. I made that mistake once and had minor arthoscopic surgery
on my jaw and I increased the pain about tremendously. I've had two other
surgeons tell me I need jaw surgery and I need it now, but I always ignore
them. I have one specialist who I trust and he is a well respected surgeon
and professor at one the major universities and dental hospitals in the
country. He always tells me to hold off as long as possible since the
outcome of this type of surgery is uncertain and no one can guarantee me
I'll have less pain. He said if anyone does say that to immediately not
trust them.
I think back surgery is very similar since you need an excellent surgeon who
does only that type of surgery. So many people have been worse off after
back surgery, I would be very leery as well.
Well I'm going to give your medication you mentioned a try. As bad as the
injections are, the pain is worse in the long run. I just do my best to
ignore the needles when they bring them in the room. Thanks again for all
the advice and I'll let you know if it helps me or not. Take care,
Fran

Re: [rheumatic] NOTHING IS FREE

2006-12-23 11:38:20

Does anyone have a petition in opposition?
I believe we are here, on earth, to help each other. Far better to help those
in need than to kill innocent folks.
Denise
Pray the Rosary

Re: [rheumatic] Questions about MSM

2006-12-23 02:09:13

Hi, Susie!
Sally in Little Rock here.
I use MSM lotion on my hands (I have Rheumatoid Arthritis-both wrists, both
feet and both hands crippled by it-in the form of Reiter's Syndrome (just
means I got my RA (rheumatoid) from an infection). And when my hands ache I
use the MSM lotion and it is a WONDERFUL relief. Make sure that if your
joints burn like mine, NOT to get MSM cream with menthol or camphor in it,
cause that will burn your joints more and you'll be in MORE pain! I used to
buy the Life-Flo MSM lotion, 8 oz bottle at "The Vitamin Shoppe" when I
lived in the DC area, but there are none here in Little Rock area so I call
them direct at 1-888-999-7440. I get the regular strength because the
maximum strength is too thick. Regular is more watery and just glides over
my sore, swollen joints that feel like they've been hit with a hammer-I do
NOT want to have to rub thick lotions on them!!! Web site is
www.life-flo.com and e-mail is care@.... Last time I ordered (Aug.
'05, I think), 8 oz was only $9.99-WAY cheaper than what I get at our little
health food stores around here.
I tried the MSM pills but they did not work for me. I am in partial
remission from daily AP-200 mg minocin daily and 500 mg Zithromax, twice
weekly, thank Heavens, I look pretty good-people are usu shocked when I tell
them I have RA.
My sister in law is a HUGE success story for MSM with
glucosamine/chondroitin that she bought at Wal-Mart!! She is 50 yo in June
and has been in crippling pain due to Ankylosing Spondylitis (autoimmune
connective tissue disease wherein her spine was basically disintegrating)
her whole life. She can never remember not being in pain. She started the
MSM combo about 2 and 1/2 yrs ago and rarely has to take an
anti-inflammatory these days!!! In fact, she has stopped taking the combo
and is STILL doing well. Because of all the damage to her spine, she does
use a cane and had back fusion surgery about 5 yrs ago, but this was after a
lifetime of steroids and anti-inflammatories (she never did get on the big
guns-methotrexate, etc., but steroids have most of the same side
effects-can't recover from infections, glaucoma, diabetes, osteoporosis, all
kinds of havoc wreaked with our poor unhealthy-to-begin-with bodies)! I'm
very happy for her and a little jealous that I couldn't take the MSM, to
tell the truth.
Hope this helps, Susie, and if the MSM doesn't work for you, try the
antibiotics, they've been a lifesaver for many of us in this group...
I get on here only about once a month (sometimes 2 days in a row, tho :), so
you may not hear from me for a while.
Good luck and good health!!
Sally in Little Rock
Good l

RE: [PsoriaticArthritis] Cracked Feet

2006-12-22 20:12:23

Dear Barb, No I've not tried it, but I've seen Heel Balm in the stores. So
far I've gotten several good recommendations from several members. It looks
like we missed most of the hurricane. We got a lot of wind, rain and so
far, our power has stayed on. I know a lot of people lost their power all
over the state, but so far we've been lucky. This was one stubborn storm.
Thanks so much for asking about me. Love, Fran

Re: [PsoriaticArthritis] Digest Number 2531

2006-12-22 19:52:20

I have noticed a very negative reaction to alcohol due to PA. I at one time
thought I was an alcoholic, but after being admitted to a well known
Rehabilitation Center about 5 years ago at which time they diagnosed me as
nonalcoholic. I was in shock!
I drink alcohol sparingly over the next year, but when my 32 year marriage
became un-saveable, I began to drink at times for extended periods. I became
active in AA, and 12/12/01 I had my last drink. I finally was diagnosed with
PA 8/1/03 and since have reviewed my body reactions to alcohol, and have
become sure that I react to alcohol in a very negative manner physically.
I have read email concerning negative reaction to alcohol and drugs, but
wonder if anyone else has problems with the simple use of alcohol?
Bill
Wm. P
Will8546@...

Cartilage--Dr. Weil's comment

2006-12-22 11:03:36

DrWeil.com
http://www.drweil.com/u/QA/QA366539Print/
Question:
I was about to buy glucosamine and chondroitin for my arthritis aches
when I heard about a new study that found they do no good. What do you
suggest instead?
Answer:
A study published in the February 23, 2006, issue of the New England
Journal of Medicine concluded that, overall, glucosamine and chondroitin
didn't relieve knee pain among the osteoarthritis patients participating.
However, the study also showed that the supplements did help patients with
moderate to severe knee pain, and there were other positive findings. I'm
afraid that news coverage of the study results failed to explain the results
adequately.
A total of 1,583 participants were enrolled in the 24-week study,
sponsored by the National Center for Complementary and Alternative Medicine
and the National Institute of Arthritis and Musculoskeletal and Skin
Diseases. The patients were divided into five groups. One group got 1500 mg
of glucosamine, the second received 1,200 mg of chondroitin, a third got the
combination of glucosamine and chondroitin, a fourth group took 200 mg of
the drug Celebrex and the fifth group got a placebo.
Results showed that Celebrex helped but that glucosamine alone,
chondroitin alone and the combination of the two supplements did not.
However, patients with moderate to severe knee pain had more relief from the
supplement combination than did comparable patients who took the placebo.
The study showed that among these patients, 79 percent of those who took
both supplements reported relief compared to 54 percent of comparable
patients in the placebo group.
The combination of glucosamine and chondroitin for arthritis treatment
was popularized by Jason Theodosakis, M.D., in his book "The Arthritis Cure"
first published in 1997 and revised in 2004. On his Web site
(www.drtheo.com) Dr. Theodosakis has expressed disappointment with news
reporting on findings from the just-published study. For example, looking at
subjects with moderate to severe pain, the results showed that glucosamine
and chondroitin provided more relief than Celebrex in 12 out of 14 outcome
measures (effects on pain, swelling and other arthritis symptoms). Overall,
the glucosamine-chondroitin combination was 50 percent better compared to
placebo than Celebrex was.
Over the years, glucosamine and chondroitin have helped millions of
arthritis patients. Despite the inappropriate negative headlines this
study's findings received, I would recommend that you try the supplement
combination. Chances are, you'll find it helps.
Andrew Weil, M.D.
Want to learn more about the right supplements for aging gracefully?
Join Dr. Weil on Healthy Aging today!
Copyright 2006 Weil Lifestyle, LLC
All material provided on the DrWeil.com Web site is provided for
informational or educational purposes only. Consult a physician regarding
the applicability of any opinions or recommendations with respect to your
symptoms or medical condition.

Help with sleep

2006-12-22 08:53:56

I'm trying to figure out what is best to help sleep and am getting
pretty desperate. The Duragesic keeps the pain well-controlled now,
but sleep is still a major issue. Ambien works, but insurance
limits to 12 days per month and can't be used long-term; Doxepin
worked but had severe side-effects; Neurontin does absolutely
nothing. I haven't slept more than 3-5 hours a night for the past 2
weeks. What works best for all of you? Thanks for you help.
Cathy

Finally on Arava

2006-12-21 21:48:09

Hello again everyone,
I've been off the air for a while and really missed you all!
After waiting for ages my specialist finally decided that my liver
had regenerated enough from taking MTX.
He's finally put me on Arava - 20mg/day.
I'm also trying to wean myself off prednisone. I'm told that slowly
is the way to do this without causing a flare.
The specialist is not into side effects - all he said was I would
get diarrhea but not to worry that it would go away.
I hope he's right!
With all the side effects of MTX and prednisone etc etc
I will be very amazed if I only get diarrhea.
So far I haven't but I've only been taking it for a week.
Can anyone give me an idea of how long it takes for the Arava to
start working?
On another subject which has been discussed on this list lately.
YES weather does definitely effect my PA and fibromyalgia.
Change in air pressures, especially if their is rain coming ie low
air pressure, makes for a big increase in pain etc.
Bye for now
Keep well everyone
Suzie
[Editor's Note: Hi Suzie, I went through the same routine as you - I had to come
off MTX and wait until my liver readings returned to normal before going on
Arava. Arava never made a dent for me, but as with most of our meds, you should
start to notice a difference after 8 weeks or so. I am currently on Humira and
Arava but only because Humira as been shown to be more effective when taken with
MTX (which I can't take) or Arava or some other medications. When I first went
on Arava, I experienced the worst leg cramps I have ever known, but these
subsided after about two weeks. Arava works wonderfully for a number of people
and I hope it is your magic pill. Kathy F.]

Re: [rheumatic] I have RA and am planning to get pregnant

2006-12-21 11:32:39

Yesenia,
Go to www.google.com and do a search on
+minocin +baby +teeth
Here are two results:
See http://www.healthsquare.com/newrx/min1270.htm
"If you are pregnant or plan to become pregnant, inform your doctor
immediately. If you take Minocin during the second half of pregnancy,
it may cause permanent yellow, gray, or brown discoloration of your
baby's teeth. There is reason to believe that taking Minocin during
pregnancy could also harm the baby in other ways. Therefore, Minocin
should be taken during pregnancy only as a last resort. Because
Minocin appears in breast milk and could harm the baby, it should not
be taken by a woman who is breastfeeding. If this drug is essential
to your health, your doctor may advise you to discontinue
breastfeeding until treatment is finished.
http://www.drugs.com/cons/Minocin.html
"Pregnancy - Use is not recommended during the last half of
pregnancy. If tetracyclines are taken during that time, they may
cause the unborn infant's teeth to become discolored and may slow
down the growth of the infant's teeth and bones. In addition, liver
problems may occur in pregnant women, especially those receiving high
doses by injection into a vein. Breast-feeding - Use is not
recommended since tetracyclines pass into breast milk. They may cause
the nursing baby's teeth to become discolored and may slow down the
growth of the baby's teeth and bones. They may also increase the
sensitivity of nursing babies' skin to sunlight and cause fungus
infections of the mouth and vagina. In addition, minocycline may
cause dizziness, light-headedness, or unsteadiness in nursing babies."
Sincerely, Harald

Re: [PsoriaticArthritis] Escalation of pain in intensity/duration

2006-12-21 10:49:28

Suzy,
What can you get yourself to do phsycally? Try to do
all you can. Do something that gets you out of your
house and away from what you see while you cannot
sleep. Try to be productive in some way.
Do, don't try, just do something physical until you
can't do any more. Do it for yourself. Do something
just for you.
Make sure you have someone to rely on. Be careful.
2 weeks no sleep is horrible. I cannot imagine. I
wish you the best. Hope to hear from you.
DZ

Florida Hurricane

2006-12-21 02:28:05

Hi Fran,
If these hurricanes keep coming your weather station will need to start
sending out GOOD weather warnings! Lol
Hope things are still ok.
Martin

Re: [PsoriaticArthritis] PA and Alcohol

2006-12-20 16:22:42

Bill,
Congratulations on beating alcohol! You are a hero to many people. I am a
moderate social drinker in that I'll have ONE glass of wine if we go out to
dinner with friends or a margarita if we go to a Mexican restaurant. However,
every time I have a drink, I notice that it is harder for me to walk, climb
stairs, etc. I am by no means drunk when this happens as I almost always stop
after one glass of white wine. I agree with you - for me, alcohol definitely
makes my PA worse.
Kathy F.
<< I have noticed a very negative reaction to alcohol due to PA. I at one
time
thought I was an alcoholic, but after being admitted to a well known
Rehabilitation Center about 5 years ago at which time they diagnosed me as
nonalcoholic. I was in shock!
I drink alcohol sparingly over the next year, but when my 32 year marriage
became un-saveable, I began to drink at times for extended periods. I
became
active in AA, and 12/12/01 I had my last drink. I finally was diagnosed
with
PA 8/1/03 and since have reviewed my body reactions to alcohol, and have
become sure that I react to alcohol in a very negative manner physically.
I have read email concerning negative reaction to alcohol and drugs, but
wonder if anyone else has problems with the simple use of alcohol?
Bill
Wm. P
Will8546@...

quit Vioxx

2006-12-20 14:02:08

I went on to the Merck Co. website to see if they said anything about Vioxx,
This whole thing is making me crazy. Anyway this is what they said.
_Merck News Item_
(http://www.merck.com/newsroom/press_releases/product/2004_0826.html)

Re: [PsoriaticArthritis] Alcohol effects

2006-12-20 13:03:20

Since starting the MTX, I've only done a little social
drinking, by which I mean one or two glasses of wine
during a weekend convention, on three separate
occaisions.
For the week following each event, I was much more
fatigued than usual. I suppose both the alcohol and
the extra activity level were to blame, but it was
debilitating.
-- Allison
=====

Re: [PsoriaticArthritis] Help with sleep

2006-12-19 23:04:15

Cathy,
Have you tried a muscle relaxer like flexril? If I would take a 10mg of flexril
it would knock me out and I would sleep all night.
Denise Axelrod

knobby toes

2006-12-19 21:53:38

Fran, and all who feel embarrassed about getting a professional
pedicure.........DON'T hesitate. Think of it as the same a going to the doctor.
They have a solution to a bad problem. I was shy about it the first time but
the benefits are more than worth it. They put your feet jacuzzi type bath, then
cut your toenails (talk about decadent.....I'll never do my own again!). Then
the fun really begins when the start shaving off all......and I do mean
all......of the dead skin. Piles of the stuff falls to the floor. After that
there is the wonderful massage.....SIGH! Then if you want they will paint your
toenails. I don't because I don't want to have to do it more than once a month
and polish makes my nails brittle due to the formaldehyde in it. My only
question is why didn't I know about this years ago? They don't care how knobby
your toes are. They always remark how much they shave off my feet but I feel
they are getting paid well for it. I leave with smooth, exhilarated feet and it
lasts for a good three weeks if I put lotion on immediately after getting out of
the shower. I was told by a dermatologist that lotion slows the loss of the
present moisture but does not add moisture to skin so it is best to do it right
out of the shower. I partially dry then apply. Life is just too short to go
around with miserable feet if it can be helped. Later, Cheri

Re: [PsoriaticArthritis] Finally on Arava

2006-12-19 21:09:14

He's finally put me on Arava - 20mg/day.
Welcome back Suzie!
Arava works well for me without the horrible side effects I experienced with
MTX. The worst thing about it is loss of hair. My hair fell out so bad I
thought I would be bald soon but it finally eased up and the hair grew back.
However, after I went on my little "no med" rebellion and started over on
Arava my hair fell out again. It did grow back though not a thickly which
could be age related. Anyway, as Kathy says, it works for some and not for
others. Let's hope you one of the lucky ones because if it works for you as
it does for me it is preferable to MTX.
Cheri

question about the ball of my foot

2006-12-19 11:53:53

I know this issue has been addressed in the past, but to be honest, since it did
not affect me directly, I did not retain the info people shared.
I sprained my ankle a few weeks ago. Six to be exact. Of course it is still not
healing very well. Now to add to the sprain issue, I am having the burn feeling
on the ball of the same foot. What is the best way to deal with this? I am so
open to any and all ideas.
thanks
annie and the pugherd

Re: Finally on Arava

2006-12-19 07:16:41

Suzie,
I've been on Arava for about 4 months now and I'm having a great
deal of success. It has basically cleared up both my big toes and
reduced the pain in my hip and elbow. I think it took about a month
for me to really feel the difference. By the way, the only side
effect I had was occasional bouts of diarrhea. Other than that, I'm
really pleased with the effects. The only other medication I take
now is Bextra and the combination of the two seems to work. The
hardest part for me is not drinking. I like to have a beer or two
when with friends on the weekend. I know I'm preaching to the
converted, but make sure you have your blood tested regularly when
taking Arava.
Dave

Marshall protocol and Vitamin D

2006-12-18 22:58:39

I guess it depends upon where you are in the world ( latitude ), your skin
reflectance ( white, brown, black ), and how much supplementation you are
taking.
My studies here in NZ ( 42 deg south ) suggest that most patients just don't
get enough D3 from sunlight even in summer. They swear that they are
exposing their skin to sunlight, but when I check the levels, they are
uniformly miserably low.
I have people taking 50,000 IU once a month, and maybe I need to increase
that to fortnightly, or even weekly for some. R Veith's work suggests that
4000 IU per day is what the body needs, and that works out to be about
50,000 IU once per fortnight. I was using a lower dose as I was hoping some
sun exposure might provide the rest ... but for most people I see, that does
not appear to be the case.

--
Dr Graham Chiu
http://www.compkarori.com/forum

Arcoxia

2006-12-18 19:01:55

Hello everbody, i'm from Northern Ireland and had PA for 4 years and
am only 29.
I have been on various meds ranging from Methetraxate (sorry my
spelling is terrible)to others which i cant even pronouce, all of
which made me ill but worked only for a while.
But i have have been on Arcoxia now for 4 months and in my opinion
has made a great difference, ok i still have the pain and stiffness
but i feel much better within myself and movement is better than
before.
Will keep you posted.
Speak to you soon.
dazza
I thank god for this message board because it has been helpful in
the bad times and the good times.
[Editor's Note: Hi, Dazza. Congratulations on finally finding a medication that
works for you. I was first diagnosed when I was 16 (I'm now 55) and I can relate
to how frustrating it is to be young and carrying this burden. Fortunately, we
are in an age where new medical discoveries are coming at a rapid pace.
Hopefully, you will find something that will remove the pain and stiffness.
There are meds out there than do this for a lot of folks, so please continue to
let your doctor know that there's more to be done. We're so glad you've posted.
Please feel free to post often. Kathy F.]

CAUSE and CURE for MOUTH SORES

2006-12-18 05:06:41

Yeeeeeeeeeeah, something else I know a little about!
Mouth Sores, a.k.a., canker sores and (clinically) apthous ulcers. I have
suffered from apthous ulcers for years! I would have a few large ones to
about 20-30 small ones (I'm sick and tired of my dentist commenting on
them); just as one batch would start to clear up the next would start. I did
a great deal of research on this topic. A number of things have been rumored
to help (including lysine pills, aspirin, herpes medicine, and so on).
I am happy to say I feel that I have found at least ONE CAUSE and ONE
SOLUTION for my mouth sores. Through my research, I kept coming up with
statements about SODIUM LAURETH SULFATE (SLS). It's a surfactant/detergent
that helps "disperse" and coat whatever it is in (take a look, it is in
almost all cleaners including dish soap, clothes detergent, mouthwash, and a
ton of other items). It also appears a number of us react to it - and the
result is mouth sores! Well, try finding toothpaste that doesn't have it! I
finally went to a "natural" remedy and almost immediately my sores
disappeared (2-3 weeks). After awhile I thought it was just coincidence and
tried regular toothpaste. WHAM! They were back. I have not used any oral
product that contains SLS since I have been almost completely free of mouth
sores!
There are only 1-2 toothpastes on the market and most are not carried except
in populated areas. In fact, in Seattle, I can only find one. Believe it or
not, REMBRANDT tooth whitening products actually makes a toothpaste for
"canker sore suffers" - they don't say HOW they prevent it but if you look,
you'll see that this (and only this) product of theirs does not contain SLS!
http://www.theessentials.com/store/prodinfo.asp?number=7505
<http://www.theessentials.com/store/prodinfo.asp?number=7505&variation=&aite
m=1&mitem=1&bc=5_6
There is also a topical oral steroid designed for this called ORADENT - you
dab it on and it gets "gooey" and adheres to your mouth. Works best at night
when you're not "chewing" on it :-) The other thing that works is Nasonex
allergy nose spray or another allergy (rx) spray that has steroids in it -
you just spray it on (per my otolaryngologist).
Cheers,
Jim
_____
From: farrell [mailto:farrell@...]
Sent: Tuesday, September 07, 2004 1:02 AM

Re: [rheumatic] Polymalgia Rheumatica &amp; Giant Cell Arteritis

2006-12-18 02:59:54

Gwen,
I was diagnosed with polymyalgia rheumatica (PMR) last December,
after being treated for a false diagnosis of RA for 6 years.
Like you, I would like to communicate with others with PMR. I am
currently on 4 mg of Prednisone, but that dosage may be slightly too
low, since my symptoms are not entirely gone. There do not appear to
be any web pages which propose minocycline as a treatment for PMR.
My rheumatologist has given me the green light to set my own dosage
of Prednisone. Use the lowest dosage possible, but increase the
dosage in 1/2 to 1 mg steps if the pain returns. Do not change the
dosage more often than once every two weeks.
I just found this discussion board on PMR:
http://www.arthritis.ca/open%20forum/boards/polymyalgia/default.asp?s=1
All of the pages of that board contain this introduction:
"Polymyalgia rheumatica is a syndrome characterized by severe pain
and stiffness in the muscles of the neck, shoulder girdles, low back,
hips and thighs. It is thought that polymyalgia rheumatica is a
result of blood vessels becoming inflamed."
Sincerely, Harald

Marshall protocol and Vitamin D

2006-12-17 18:30:21

Hi Group;
All of this Vit. D story is awfully interesting but somehow I do not
think anything will apply to everybody.My absolutely wonderful AP doc
does not buy the fact that everyone with a chronic disease had a D
imbalance but out of curiosity had me tested And things came back WAY
TOO HIGH in fact 3 times too high
I have SD and regular AP did nothing for me after using the Harvard
protocol for over 4 years.Since I am a
scientist(archeology/paleoanthropology) I just love too dig around and
see what comes up.so my doc gave me a prescription for Olmesartan after
a few months of not ingesting and D , being moderately careful of bright
lights and lowering minocin dosage.Within 5 months I was able to get off
MTX without remummyfying and have been doing beautifully for the last
year.Needless to say we were both totally surprised.A few months into
this treatment my doctor told me to get tested for Celiac as she says a
large proportion of people with chronic disease have it.Sure enough I
came in at a count of 129 when I should have been under 10.So the guess
is....what is helping,gluten avoidance or vit D avoidance or both.Bye
the way I live In Montreal with long dark winters and despite the lack
of sun my D was high.The scientist in me says try one or the other to
see what happens but I am so totally normal now that I hate the prospect
of setting myself back. Lynne

San Diego Dr.

2006-12-17 18:04:19

Hi,
I'm looking for a Dr. in the San Diego area who is experienced with
low dose antibiotic treatment. Can anyone offer a referral?
Thanks,
Doug

Re: [rheumatic] San Diego Dr.

2006-12-17 07:52:30

Dr Franco is good, he is in Riverside..I believe..not very far

Autumn has arrived

2006-12-17 06:11:48

Autumn has arrived in the Midwest.
How do I know this?
It's not the kids going back to school.
It's not the sweaters and pumpkins in the stores. It's
not even the first orange leaf on the lawn.
Oh, no. Nothing so simple and eloquent.
What is this harbinger of seasonal change and bleaker
things to come?
It's my first itchy scalp and joint flare of the
season. AARGH! OW! (sigh).
Happy Autumn. The calendar says it starts on
Wednesday. I'm a bit ahead of schedule, methinks.
-- Allison
=====

RE: [PsoriaticArthritis] To Everybody, The Cleveland Clinic. a Nightmare!

2006-12-16 18:47:50

Dear Martin, At least you made me laugh over the 3 stooges remark. That
really describes them perfectly I think. I did have my hopes up, but I was
also dreading the ordeal as well. I am really tired of doctors and now of
course this just sort of was the final thing to top everything off. I agree
with you that an hour would be good for most of these doctors to experience
our pain. Actually though for the rheumatologist, we are letting him off
too easy with only an hour, he deserves at least a week...lol.
I was really down yesterday after finally getting home. Staying busy just
kept my mind off the whole ordeal, but when I first got home it all came
rushing back. I'm starting to feel back to my normal self now and all the
wonderful emails from everyone has really helped. I was really sort of
nervous to tell everyone how bad it was, but I can tell that everyone
believes me. It just was such a shock. I had thought there was a chance
they couldn't help me, but I really thought they would at least try or at
least order a blood test. None of that ever entered their minds I guess.
I'm just glad I didn't have a terminal disease like cancer. Telling someone
to go look at the sunsets could be really dangerous in that situation. It
wasn't helpful in mine, but at least it won't hurt me, plus I like
sunsets...lol. Well life goes on and it did make me realize what great
doctors I currently have. My family is all behind me and so supportive, so
that makes a huge difference as well.
Take care and I hope you are doing ok and not having too many sleepless
painful nights. Love, Fran

RE: [rheumatic] Leaky Gut Syndrome

2006-12-16 15:32:45

These are graet links Harold. Thanks!
cooky
Cooky and Group,
Go to www.google.com and do a search on this term:
+"leaky gut syndrome" +"rheumatoid arthritis"
Here excerpts of just two of the thousands of pages:
http://arthritis.about.com/od/diet/a/leakygut.htm
"Some researchers claim that leaky-gut syndrome, or increased
intestinal permeability, is implicated in dozens of diseases. The
syndrome is the result of the wall of the small intestine being
damaged. A healthy intestine allows only nutrients to pass into the
bloodstream. When the intestine is damaged, larger molecules such as
incompletely digested fats, proteins, starches, and even bacteria,
also permeate the intestinal wall...

Cleveland Clinic

2006-12-16 12:27:03

Isn't it pathetic! Even in Australia (due to the internet)I know of
the Cleveland Clinic.Alot of the information, on PA, comes from
there, and yet the staff sound truly ignorant.I had actually thought
about saving up and taking Owen to somewhere like that if his PA
continues to be as aggressive as it currently is. Now...stuff that.If
I'd gone ahead and taken him there and got that response, I'd throw
one hell of a stink. How dare they!
I'd like to add a hug to you all, as everyone takes news like that
badly.
Leanne

Harald's email

2006-12-16 05:25:02

Hubby picked up my Minocin yesterday for 30 pills. Insurance paid $25.00 of
it. Cost was $247.00 out of pocket. Someone needs to take the
pharmaceudical companies out behind the toolshed.....or was it barn? This is
shameful.
Sandra

Re: SPAM-LOW: [PsoriaticArthritis] Autumn has arrived

2006-12-16 00:09:24

Allison, your post made me laugh!! I too am a Midwesterner!! Speedway IN to be
exact....and you???
annie and the pugherd

Harald's email

2006-12-15 18:24:46

Sandra,
The shame is with our Government and its support of our current drug
policies. We should take our Government behind the toolshed -- but
this Group is not suppose to discuss politics.
Harald

PSORIATIC ARTHRITIS NEWSLETTER ISSUE NO. 71

2006-12-15 13:50:23

PSORIATIC ARTHRITIS NEWS AND VIEWS
VOLUME- 4 ISSUE- 13
September 15, 2004
PSORIATIC ARTHRITIS MEDICAL NEWS
AMA TO WEIGH INFLUENCE OF DRUG COMPANIES
CHICAGO (AP) -- Drug companies' influence on medical research and on doctors
themselves will be under the microscope as the nation's largest group of
physicians gathered for its annual meeting in June.
Proposals facing the American Medical Association include a measure seeking
to make all drug study results public, even unpublished research funded by
pharmaceutical companies that might reflect poorly on their products.
The measure stems partly from concern over unpublished data linking some
antidepressants with suicidal behavior in children. Government officials are
investigating the potential link.
Another measure would strengthen a policy the AMA adopted last year on
"shadowing," the practice of drug company representatives sitting in on
patients'
visits with their doctors.
Critics say the practice is an attempt to influence what medicines are
prescribed. Drug companies say the practice is educational, but they sometimes
pay
hundreds of dollars a day to the doctors for these visiting rights -- money
the new measure says doctors should refuse.
The more than 250 proposals prepared for the meeting, also asked the AMA to
take a stand on issues that include the obesity epidemic, the execution of
juvenile criminals and the harvesting of organs from patients who haven't
explicitly given consent.
The generally cautious AMA frequently avoids taking bold stands on
controversial issues, and many proposals at the five-day meeting will be
rejected or
revised before being sent to the group's delegates, who begin voting on
policies to adopt.
A new financial report touts the group's fiscal health, showing a $20.1
million operating profit in 2003 -- the fourth consecutive year of operating in
the black. The increase from $11.7 million in 2002 was attributed partly to
revenues from publishing and sources other than AMA dues, which have been
declining along with membership.
The AMA had 250,830 members in 2003, down from 260,455 in 2002, representing
about a third of the nation's doctors and medical students.
Still, any AMA support could lend credence to the meeting's proposals,
including the move to make all drug study results public.
As drafted, the measure would ask the U.S. Department of Health and Human
Services to consider forming a national registry of all drug studies, possibly
available over the Internet.
Alan Goldhammer of the industry group Pharmaceutical Research and
Manufacturers of America said a public research registry could lead to
misinterpretation.
"Those are the kinds of things that we'd have to look at and discuss before
endorsing or rejecting any proposal," Goldhammer said.
Calls for publicizing all drug studies also have come from the American
Psychiatric Association, the American Academy of Child and Adolescent Psychiatry
and bioethicists concerned about industry influence on doctors.
"It would be good to see the AMA get on board," said Merrill Goozner of the
Center for Science in the Public Interest. "Medical professionals who are
after all the prescribers and the primary users of these tools ... should be
the
guys in the forefront" of the issue, Goozner said.
It is critical for doctors to have all information on tested drugs so they
can make informed prescribing decisions, said Dr. David Fassler, a Vermont
psychiatrist.
Drug companies aren't required to publish study results, and medical journal
editors "are at the mercy of what is sent in the mail," said Dr. Catherine
DeAngelis, editor of the Journal of the American Medical Association.
Drug company-funded submissions more often than not have positive results, a
phenomenon called publication bias.
DeAngelis voiced support for the push for a national registry, as did Dr.
Jeffrey Drazen, editor of the New England Journal of Medicine. Copyright 2004
The Associated Press. All rights reserved.
****************************************************************
CONSUMER GROUP URGES BAN OF CHOLESTEROL DRUG
CONCERN OVER SIDE EFFECTS OF CRESTOR GROWS
By Robert Bazell-Correspondent NBC News
Otis Elliott started taking the cholesterol-lowering drug Crestor and
developed severe muscle pains within days.
â(I) just couldnât stand it anymore, the pain was too severe,â says
Elliott. However, by then it was nearly too late; Elliott went into kidney
failure,
which doctors say almost killed him.
In a recently published letter published in the medical journal The Lancet,
a consumer advocacy group warns that the danger of such life-threatening side
effects is unacceptably high with Crestor, a statin that was approved by the
Food and Drug Administration last August.
âSo everywhere you turn there are ads for Crestor and there is no question
that those ads help to sell drugs, but what patients have not known and what I
think a lot of doctors have not known is that the drug has unique risks,"
says Dr. Sidney Wolfe of the nonprofit group Public Citizen. All statins carry
a
slight risk of muscle damage, but the consumer group says the danger is
higher with Crestor, and only Crestor threatens the kidneys.
Ever since Crestor was approved by the FDA, the manufacturer, AstraZeneca,
has been heavily advertising the drug.
AstraZeneca says the concern about side effects is just flat-out wrong. âWe
believe the safety profile for Crestor has been very, very extensively studied
and weâre confident that it is comparable to the other statins," says David
Brennan, the company's CEO.
What is at stake is a potential portion of an enormous market â and human
lives. Sales of statin drugs in the United States now total $14 billion a year,
with 13 million people taking them. In addition, experts say the number of
people who should be taking the drugs is triple the numbers who are currently
taking them.
FDA officials say they agree with the manufacturer that Crestor is safe and
effective, but add that they will continue to study reports of harmful side
effects, such as Elliottâs case, to see if they reveal an unusual pattern. ©
2004 MSNBC Interactive
*************************************************************
YOUR GENES CAN AFFECT DRUG ACTIVITY
By Ed Edelson - HealthDay Reporter
A study showing that an individual's genetic makeup affects the response to
a cholesterol-lowering drug heralds a new medical discipline, researchers say:
pharmacogenetics.
It's not something that will change medical practice just yet, says Dr. Paul
M. Ridker, chief of the Center for Cardiovascular Disease Prevention at
Brigham and Women's Hospital in Boston and lead author of a new study appearing
in the June 16 Journal of the American Medical Association. But "over the next
10 years we will see a lot of studies of this kind that will help address the
issue of how we treat our patients."
"Burgeoning" is the word Ridker used for the field of pharmacogenetics,
while Susanne B. Haga, project director of human genetics at the Center for the
Advancement of Genomics, a private research group, said knowledge about the
interaction between genes and drugs "is growing by leaps and bounds."
Over the long run, said Haga, co-author of an editorial accompanying the
report, "information on how genetic variation affects drug efficacy and drug
safety will become a basic part of drug development." But right now, she said,
"the commercial ability to test for these variations is not available."
Still, the study "will be a real eye-opener for physicians and patients,"
Ridker said.
He and his colleagues did detailed genetic studies of 1,563 people taking
pravastatin (Pravachol), one of several statin medications being prescribed to
lower cholesterol levels. The researchers looked for individual variations
called single-nucleotide polymorphisms (SNPs) in genes that play a role in the
metabolism of cholesterol and other lipids.
One of those genes produces a molecule called HMG-CoA reductase. Two common
and closely linked SNPs in that gene "were significantly associated with a 22
percent smaller reduction in total cholesterol and a 19 percent smaller
reduction in LDL cholesterol following 24 weeks of pravastatin therapy," the
report said.
That gene-based reduced activity was found in about 8 percent of the people
studied, Ridker said, adding that the finding was more or less expected.
"We've known for some time that some patients get a greater reduction than
others," he said. "We were looking for evidence that genetic variation played a
role. We found it on the basis of genes that are the target of the drug
itself."
The finding doesn't call for any major change in treatment of patients with
the specific SNPs, at least now, Ridker said. "It could well be that just a
higher dose will overcome this problem," he said.
What is important is that the effect of genetic variation on the effects of
drugs used to treat cancer now has been verified for at least one drug used in
cardiology, Ridker said. It's not known yet whether genetic variation acts
in the same way on other statins, he said, and many more studies are needed to
determine the role played by pharmacogenetics in drug therapy.
"This paper is important because it is a first demonstration, but we are in
no way there yet," Ridker said.
SOURCES: Paul M. Ridker, M.D., MPH, director, Center for Cardiovascular
Disease Prevention, Brigham and Women's Hospital, Boston; Susanne B. Haga, Ph.D,
project director of human genetics, Center for the Advancement of Genomics,
Rockville, Md.; June 16, 2004 Journal of the American Medical Association.
Copyright © 2004 ScoutNews LLC.
**********************************************************
BLOOD CLOT RISK NOT TREATED PREVENTIVELY, STUDY FINDS
DURHAM, NC â In a nationwide study of hospitalized patients, researchers at
Duke University Medical Center and Brigham and Women's Hospital found that
individuals at risk for developing deep vein thrombosis (DVT) -- a disorder
characterized by the formation of blood clots in the deep veins of the legs --
often fail to receive preventive medications. DVT can cause death when leg
clots break free and lodge in the lungs, a condition known as pulmonary
embolism.
The study found that, of more than 5,000 patients who developed DVT, the
majority failed to receive prophylactic therapy in the 30-day period prior to
their diagnosis. What's more, said the researchers, in patients with DVT,
physicians often failed to prescribe the drugs proven most effective for
treating
the disorder, opting instead for older treatment methods.
"Clearly, there is a disconnect between evidence and execution as it relates
to DVT prevention and treatment," said co-lead investigator Victor Tapson,
M.D., associate professor of medicine at Duke University Medical Center. "The
bottom line is that every patient admitted to a hospital ought to be
considered for preventive measures."
Tapson and study first author Samuel Goldhaber, M.D., of Brigham and Women's
Hospital, report their findings in the Jan. 15, 2004, issue of The American
Journal of Cardiology. The study was supported by Aventis Pharmaceuticals,
which manufactures low molecular weight heparin, a drug that can treat and
prevent DVT. Tapson is a paid consultant and has conducted research for
Aventis.
Those who most often develop DVT include patients with cancer, obesity and
heart failure. Also at increased risk for DVT are elderly patients and those
who have had surgery within the previous three months or who have been immobile
in the previous 30 days.
Symptoms of DVT can be mild to severe, and include swelling and discomfort
in the extremities. Administration of low-dose anticoagulants, including
unfractionated heparin, low molecular weight heparin and warfarin, have been
found
to significantly reduce the risk of DVT. Once clots have formed, higher
doses of the drugs act as effective treatments.
Left untreated, leg vein clots can enter the bloodstream and travel to the
lungs causing pulmonary embolism, a condition that can affect lung function.
Pulmonary embolism is responsible for more than 100,000 deaths in the U.S. each
year -- more than the number of breast cancer deaths, highway fatalities or
deaths from AIDS, Tapson noted.
For the study, over a period of six months, physicians at 183 sites
nationwide enrolled 5,451 patients with DVT in the registry. The study
investigators
obtained information about patients' histories from medical records.
Less than 30 percent of patients enrolled in the registry received
preventive blood thinning drugs within 30 days prior to their diagnosis of DVT.
Of the
2,726 patients who developed DVT while in the hospital, 42 percent failed to
receive prophylaxis within 30 days prior to diagnosis, the team reported.
Furthermore, said Tapson, physicians often treated patients diagnosed with
DVT with unfractionated heparin rather than low molecular weight heparin,
despite clear advantages of the latter drug. For example, low molecular weight
heparin is administered by subcutaneous injection, while unfractionated heparin
generally requires intravenous infusion. Patients receiving low molecular
weight heparin can often be discharged while receiving treatment, he added,
while those receiving unfractionated heparin require longer hospital stays.
"Studies like this allow us to look at real life in terms of the treatment
that patients are receiving," Tapson said. "Clearly, anticoagulants proven to
aid in the prevention of DVT are being underused by physicians in the United
States for both medical and surgical patients, despite a very low risk of side
effects."
The solution, said Tapson, is to educate physicians that all hospitalized
patients should be evaluated with regard to their DVT risk and those at risk
provided prophylaxis. Source: Duke University Medical Center news release.
**********************************************************
CAN AUTOIMMUNE DISEASE BE DETECTED EARLY?
By Steven Reinberg HealthDay Reporter
Study: Antibodies can foretell problems long before symptoms
For many autoimmune diseases, such as type 1 diabetes, lupus, multiple
sclerosis, Addison's disease and rheumatoid arthritis, antibodies to the
diseases
appear years before symptoms.
Knowing that antibodies are present before the disease develops, doctors can
alert patients to symptoms to watch out for, and researchers may be able to
develop early treatments, according to a report in the May 8 issue of The
Lancet.
Antibodies are specific proteins made by the body's immune system to fight
infection or harmful foreign substances.
However, in autoimmune disease, the body makes autoantibodies that attack
the body itself, said study author Dr. Hal Scofield, an associate member of the
Oklahoma Medical Research Foundation.
"It is now clear that these antibodies, which are markers of autoimmune
diseases, appear in people's blood long before the clinical illnesses begin," he
added.
These autoantibodies are preclinical markers to the disease, and that
appears to be true for almost every autoimmune disease, Scofield explained.
"It may be possible to identify people with the potential of developing
these diseases before they get sick," Scofield said. "As we can identify many of
these diseases before people get sick, you can imagine prevention trials
taking place."
This approach is being done now in a trial of type 1 diabetes in children
with autoantibodies that are markers for the disease. The children are being
administered nasal insulin to try to prevent diabetes from developing, Scofield
said.
In addition, Scofield believes, if patients knew they were at risk for an
autoimmune disease, they could be told what to watch out for. They might also be
able to avoid some of the most serious complications, such as diabetic coma
or Addisonian crisis, a life-threatening condition that happens when the
adrenal gland fails to produce enough of the hormone cortisol.
The next step, according to Scofield, is to study large groups of people
with autoantibodies to various diseases to see how predictive these
autoantibodies are in determining who develops a disease and how long it takes
symptoms
to appear.
Scofield cautioned that right now the benefit of identifying autoantibodies
has little practical application. "There is the potential in the next few
years to identify people who go on to get an autoimmune disease, and that kind
of
identification may lead to preventive therapies," he said.
"I am very enthusiastic about this approach," said Dr. Noel Rose, director
of the Center for Autoimmune Disease Research at Johns Hopkins University.
"This is an extremely important report."
"These autoantibodies are a warning sign of impending disease, and it opens
the possibility of predicting disease and possibly benefiting patients by
early treatment or even interrupting the autoimmune responses," he added.
"Antibodies in diseases such as lupus, rheumatoid arthritis, multiple
sclerosis, diabetes and others can be measured and should allow the development
of
patient-specific therapies," said Dr. Paul J. Utz, an assistant professor of
medicine at Stanford University School of Medicine.
"As newer technologies are developed, we will be able to measure thousands
of unique antibodies at one time. Their measurement will be an important
component of future drug development for biotechnology and pharmaceutical
companies," Utz said.
"This paper really shows the importance of early screening, particularly in
people with early symptoms," said Virginia Ladd, the president of the American
Autoimmune Related Diseases Association.
Earlier diagnosis will lead to preventing major organ damage, she added.
Today, even when patients have autoantibodies, doctors dismiss them, Ladd
said, "but this paper says that it is important to follow patients who have low
levels of autoantibodies."
SOURCES: Hal Scofield M.D., associate member, Oklahoma Medical Research
Foundation, and professor, medicine, University of Oklahoma Health Science
Center, Oklahoma City; Noel Rose, M.D., Ph.D., director, Center for Autoimmune
Disease Research, Johns Hopkins University, Baltimore; Paul J. Utz, M.D.,
assistant professor, medicine, Stanford University School of Medicine, Palo
Alto,
Calif.; Virginia Ladd, president, American Autoimmune Related Diseases
Association, Detroit; May 8, 2004, The Lancet. Copyright © 2004 ScoutNews, LLC.
All
rights reserved.
***************************************************************
DRUG PRICES OUTSTRIP MEDICARE DISCOUNTS
Discounts: A report from the AARP Public Policy Institute presents the
results of a study of changes in manufacturersâ prescription drug prices from
2000-2003 for the nearly 200 brand name prescription drugs most widely used by
Americans age 50 and older. This report compares price changes to the rate of
general inflation. It focuses on the price that drug manufacturers charge
wholesalers because that is a substantial component of the final retail price. A
change in the price the drug manufacturers charge to wholesalers generally
results in a similar percentage change in the price that the consumer pays.
On average, prices charged by drug manufacturers for widely used brand name
prescription drugs in 2003 increased three times the rate of inflation. Ranked
by their volume of sales, the price for Fosamax (alendronate) was up 5.6%,
the price for Lipitor (atorvastatin) was up 6.0% and the price for Plavix
(clopidogrel) was up 7.8%.
Comment: This report is more evidence that drug prices are continuing to
escalate and that they are not even being kept within the rate of overall
inflat
ion. The report also confirms what we all already know. Something has to be
done to control the ever-increasing prices of drugs in the US. Barbara K.
Hecht, Ph.D., Frederick Hecht, M.D.,Medical Editors, MedicineNet.com
DRUG PRICE INCREASES TRIPLE THE RATE OF INFLATION
By Karen Pallarito, HealthDay Reporter
(HealthDayNews) -- Prices for the most popular brand-name medications used
by older Americans increased at three times the rate of inflation last year,
claims a new AARP study.
"That's a pretty substantial increase," said study co-author Steven W.
Schondelmeyer, head of the department of pharmaceutical care and health systems
at
the University of Minnesota.
The study, released Tuesday, measured changes in the prices that drug
manufacturers charged wholesalers over a four-year period starting in the year
2000. The authors said the underlying price fluctuations are significant because
they affect the actual prices seniors pay at their local drugstore or by mail.
"These price increases typically pass straight through to the consumer,"
Schondelmeyer said.
Prices for widely used brands rose 4.1 percent, on average, in 2000, and 6.9
percent in 2003, while inflation fell from 3.3 percent to 2.2 percent over
the same period, the report said.
And the average cost to consumers for top brands nearly doubled from 2000 to
2003 -- rising from $33.76 to $60.38, the authors estimate. This means the
typical older American who takes three drugs would have paid $101 more in 2000
and $181 more in 2003 if the higher prices were passed along, AARP noted.
When it came to individual brand names, a 10-milligram dose of the
cholesterol medication Lipitor rose 6 percent in 2003, almost triple the 2.2
inflation
rate that same year. A 75-milligram dose of the blood thinner Plavix rose
7.8 percent each year covered by the study.
Large increases were also seen in estrogen drugs and thyroid medications,
checking in at 10 times and six times the rate of inflation, respectively, in
2003.
Pharmaceutical Research and Manufacturers of America, the brand name drug
industry's lobbying group, did not respond to a request for comment on the
findings.
AARP's Public Policy Institute tracked prices for the top 200 drugs used by
seniors, based on both annual sales volume and the number of prescriptions
dispensed each year. The analysis yielded a combined list of the 291 most widely
used drugs, including 197 brands -- the focus of this report.
At some future date, AARP said it intends to issue a separate report
examining price changes for the top 94 generic drugs used by seniors.
The new report is the latest step in a larger campaign by the senior citizen
advocacy group to put pressure on the pharmaceutical industry to lower drug
prices. The effort comes in the wake of sharp criticism of AARP leaders for
supporting last year a Medicare prescription drug benefit program that bars the
federal government from negotiating lower prices from drug makers.
As part of that legislation, seniors may take advantage of a new drug
discount card program effective June 1. Federal Medicare officials say the
program
will give cardholders price breaks averaging 11 percent to 18 percent off
average retail prices. But critics of the program say the discounts are
meaningless if drug prices continue to escalate.
"The new prescription benefit in Medicare was an important step, but our
members have made it clear that they want AARP to continue to push for
affordable drugs," AARP Chief Executive Officer Bill Novelli said in a
statement.
Earlier this year, AARP asked the pharmaceutical industry to hold its price
increases to the rate of general inflation. The new data provide a benchmark
against which to monitor the industry's future performance, the group said.
Overall, the new prescription drug report showed the average rate of growth
in manufacturers' drug prices has accelerated in recent years, said study
co-author David J. Gross, a senior policy adviser with AARP's Public Policy
Institute.
On a cumulative basis, prices for the 155 brand-name drugs on the market for
the entire four-year period rose 27.6 percent, on average. That compares
with a general inflation rate of 10.4 percent for the four-year period, the
report said.
Only four drugs had price increases below the four-year average rate of
inflation, according to the report.
The rapid price increases for estrogens and thyroid hormones may be due to
the fact that few generics have cropped up to compete against these drugs, the
study authors said.
These medications have been on the market since World War II, noted
Schondelmeyer, who suspects drug makers are raising prices to reflect current
pricing
trends. "They're drugs that have not had the same kind of generic
competition that we see (elsewhere)," he added.
Also Tuesday, AARP unveiled a new quarterly report to consumers on
prescription drug prices. The "Rx Watchdog Report" will update consumers on drug
maker
activities, their pricing policies, quarterly profits and spending on
lobbying and advertising, the group said.
SOURCES: David J. Gross, senior policy adviser, AARP Public Policy
Institute, Washington, D.C.; Steven W. Schondelmeyer, Pharm.D., Ph.D.,
professor,
pharmaceutical management and economics, head, department of pharmaceutical
care
and health systems, and director of Prime Institute, College of Pharmacy,
University of Minnesota; May 25, 2004, AARP report, Trends in Manufacturer
Prices of Brand Name Prescription Drugs Used by Older Americans, 2000 Through
2003
- Copyright © 2004 ScoutNews LLC. All rights reserved.
***************************************************************
LACK OF VITAMIN âDâ LINKED TO PAIN
By Salynn Boyles WebMD Medical News Reviewed By Brunilda Nazario, MD
Study Shows Limited Sun Exposure Has Health Benefits
There is new evidence that small amounts of unprotected sun exposure could
be good for you. Earlier studies have linked vitamin D deficiency with an
increased risk for several cancers. Now comes word that it may also be a major
cause of unexplained muscle and bone pain.
In a study involving 150 children and adults with unexplained muscle and
bone pain, almost all were found to be vitamin D deficient; many were severely
deficient with extremely low levels of vitamin D in their bodies.
Humans tend to get most of their vitamin D from exposure to sunlight, so
those who avoid the sun completely or who always wear sunscreen to protect
themselves against skin cancers are at risk for vitamin D deficiencies, says
Michael Holick, MD. Holick runs the Vitamin D Research Lab at Boston University
Medical Center.
"I think the current message that all unprotected sun exposure is bad for
you is too extreme," he tells WebMD. "The original message was that people
should limit their sun exposure, not that they should avoid the sun entirely. I
do believe that some unprotected exposure to the sun is important for health."
Dermatologists Disagree
Holick claims there is now a strong epidemiological case linking vitamin D
deficiency with a host of cancers including those of the prostate, colon, and
breast; and he says vitamin D may also help protect against heart disease,
autoimmune diseases, and even type 1 diabetes.
He will present the evidence in a book scheduled for publication next
spring, but the nation's largest dermatology group remains unconvinced. In a
recent
press release, American Academy of Dermatology officials wrote that they
were "deeply concerned" that the message that unprotected sun exposure may have
health benefits could "mislead the public about the very real danger of sun
exposure, the leading cause of skin cancer."
Patients Should Be Tested
In the latest study, Gregory A. Plotnikoff, MD, of the University of
Minnesota Medical School found a much higher incidence of vitamin D deficiency
in
the patients with unexplained muscle and skeletal pain than expected,
regardless of their ages.
All of the African Americans, East Africans, Hispanics, and Native Americans
who participated in the study were vitamin D deficient, as were all of the
patients under the age of 30.
The researcher says it was a big surprise that the worst vitamin D
deficiencies occurred in young people -- especially women of childbearing age.
The
findings are reported in the December issue of the journal Mayo Clinic
Proceedings.
"The message here is that unexplained pain may very well be linked to a
vitamin D deficiency," Plotnikoff tells WebMD. "My hope is that patients with
unexplained pain will be tested for vitamin D status, and treated, if
necessary."
Food and Pills
Although it is possible to get vitamin D through foods or supplements, both
researchers say it is not easy. A glass of fortified milk or fortified orange
juice has about 100 international units (IU) of vitamin D and a multivitamin
typically has 400 IU. Holick believes most people need about 1000 IU of
vitamin D each day. The recommended dietary allowance (RDA) for vitamin D
varies
with age, sex, and various medical conditions but in general is 200-600 IU
per day. Other sources of vitamin D include:
Cod Liver Oil. 1 tablespoon=1360 IU of vitamin D
Salmon. 3 ounces=425 IU of vitamin D
Herring. 3 ounces=765 IU of vitamin D
Sardines. Canned, 3 ounces=255 IU of vitamin D
Multivitamin supplements commonly provide 200-400 IU of vitamin D daily.
He says a light-skinned person wearing a swimsuit at the beach will have
absorbed about 20,000 IU of vitamin D in the time it takes their skin to get
lightly pink.
The amount of sun exposure needed to get the proper dose of vitamin D
depends on a person's skin type, where they live, and time of year, and time of
day
the exposure occurs. Holick says it is difficult for people living in
northern climates to get the vitamin D they need from the sun in the winter, but
in
the summer a light-skinned person at the beach should get all the vitamin D
they need in about five minutes.
"The trick is getting just enough sun to satisfy your body's vitamin D
requirement, without damaging the skin," he says. "It is difficult to believe
that
this kind of limited exposure significantly increases a person's risk of
skin cancer."
SOURCES: Plotnikoff, G. Mayo Clinic Proceedings, December 2003; vol. 78: pp.
1463-1470. Gregory A. Plotnikoff, MD, MTS, departments of internal medicine
and pediatrics, University of Minnesota Medical School, Minneapolis. Michael
Holick, MD, department of medicine, Boston University School of Medicine,
Boston. News release, American Academy of Dermatology, July 3, 2003; "Vitamin D
+ Sunshine + Bad Medicine." © 2003 WebMD Inc. All rights reserved.
********************************************************
FDA SAYS REMICADE USERS SUFFER AILMENTS
August 24, 2004 - WASHINGTON (AP)
The Food and Drug Administration and manufacturer Centocor are warning
doctors that patients receiving the drug Remicade to treat rheumatoid arthritis
and Crohn's disease have suffered sometimes-fatal blood and central nervous
system disorders.
Centocor's Aug. 11 warning letter to doctors said the "causal relationship"
between the ailments and Remicade therapy "remains unclear."
The Malvern, Pa.-based company, working with the federal drug regulatory
agency, revised its label for the monoclonal antibody.
Patients receiving the drug suffered reductions in their red and white blood
cell, granulocyte and platelet counts, leaving them more vulnerable to
abnormal bleeding and infections. In some instances, patients died. In rare
instances, patients suffered central nervous system disorders, including
confusing
immune system responses that swelled, then decayed, blood vessels.
Remicade was approved for use in the United States on Aug. 24, 1998.
Worldwide, 509,000 patients have taken it. In late July, a European advisory
committee approved expanding its use for treating people with psoriatic
arthritis.
Copyright 2004 The Associated Press. All rights reserved.
******************************************************
My âtime awayâ this summer was just what the doctor ordered, however I am
glad to be back in the newsletter business.
My computer has so many news items, articles, studies, etc, saved on it, I
could write newsletters forever. Since I havenât published since June, some
information you may have already seen or heard about from other sources,
however I will be including news item that could be vital knowledge for our
membership, particularly new members.
Good Health to All,
Jack Nicholas
Newsletter Editor
_Cornishpro@..._ (mailto:Cornishpro@...)
Issue 2004 09/15/04 -13

Harald's email

2006-12-15 01:07:49

Hi Sandra,
You can by pelletized Minocin from Canadianpharmacytrust.com for $
135 per 100.
I have bought it over the last two years and it is good. My wife
takes it for RA and has god
results.
Good Luck
Robert and Marianne

Virus warning to all members

2006-12-14 21:32:26

Hi there is a new virus out that is slowing down all the lists and appears to
be a blackmal trojen. The email is headed 'New graphic Site' please do not
open! It appears to be a new virus so no patch seems to be available yet.

Re: Autumn has arrived

2006-12-14 19:35:21

Just today I was wondering why my ankle was bothering me....just a
little but definitely something. This will be my first Fall with a
diagnosis/drugs so I guess this is normal....even with the drugs?
Bummer.

group

2006-12-14 06:43:21

Congrats! I sure wish that my aunt had been able to have the same option of
being able to use the AP in the 70's. Oh believe me, I know it works for many.
I went to one of the best docs in the country for the AP for several years, but
for me it didn't stop the damage. Good to see that you are still participating
in the group!
Leslie

Re: [rheumatic] New Graphic Site

2006-12-14 02:45:13

Steve, if you want to share a message with the group, you have to copy and
paste it into your email, you cannot forward to this list. The moderators
set this up so that the list cannot spread viruses.
What is the graphic site? Is it related to our topic? I'm an artist, so I
might be interested, but I don't know about the rest of the rheumatic group.
;-)
--
Jean

support group email

2006-12-13 22:37:26

Hi Everyone,
I believe there is something wrong on the site because I have replied to
people's email and it doesn't return to the support group to read. Maybe the
way
you respond has changed or I have forgotten how? If there is nothing wrong
then explain how you get your answer back to the group and not just to the
individual?
Thanks,
Shirley

RE: [rheumatic]